• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Wrong Blood Test For Celiac Diagnosis
0

4 posts in this topic

I need some help figuring out if my Mother got the correct blood test to detect Celiacs.

After years of problems I was finally diagnosed with Celiacs last year. My mother shows many of the signs of Celiacs, it runs in her family, and so I have asked her to get the blood test. After much teeth pulling she was finally tested by a Family Practice doctor. This was her first visit to the doctor. I have no idea how much this doctor knows about Celiacs.

The problem is that I asked her to get the exact name of the tests and the normal range and her numbers when they called the results in to her. She said the blood test was called "anti-endimesio antibody" (SP?). I doubt that this is the correct spelling. She had a 5.9 and said anything under 20 is considered Normal.

I have never heard fo this anti-endimesio antibody blood test being used to detect Celiacs. I thought she needed the "Anti-gliadin IgA, IgG, and Tissue Transglutimase"? (We had the Anit-Gliadin test listed above used on my daughter to determine that she does not have Celiacs.)

Any help or advise would be greatly appreciated.

My Mother is 65 and has hemachromatosis, Hypothyroidism, Joint pain/Arthritis, and "stomach problems" aka diarrhea reactions to foods.

Thanks,

Ann

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The anti-endomysial antibody test is the test that was used most commonly, before the tissue transglutaminase test was made. Some doctors do both, others do one or the other, and some don't do either. There is not set standard for how to test for Celiac, and that is part of the problem. The tissue transglutaminase test is supposed to be more accurate, but if it is not performed properly it is not accurate, the anti-endomysial is not as specific to Celiac, but still a decent test. The anti-gliadin tests are not very specific to Celiac at all, but still have their place in the full panel of testing, since some people only test positive on one test, but not the others. Your mother should probably repeat the tests, but she needs a celiac panel. This includes the following:

Gliagin IgA AB

Gliadin IgG AB

Anti-endomysial

Anti-human tissue transglutaminase

*Total serum IgA

*this is very important, since there is a higher occurance of IgA deficiency in people with Celiac Disease (than with the general population) and this would alter the blood test results if you were in fact deficient.

I hope you are able to figure out if your mother has celiac disease or not. Have you conscidered Enterolab for their home testing kit?

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thanks for the information. I'll try to have her get the blood work done again.

Is it better to have the Celiac Blood test done by a doctor who is familiar with the disease, i.e., has other celiac patients?

Thanks for the help!

0

Share this post


Link to post
Share on other sites
Is it better to have the Celiac Blood test done by a doctor who is familiar with the disease, i.e., has other celiac patients?

Yes, it is better, but good luck finding one. Most people who do find a good doctor seem to find them accidentally. Also, keep in mind that the blood tests are not 100% accurate. It is always a good idea to further test for Celiac Disease if the blood tests come back negative or borderline, and the symptoms continue.

God bless,

Mariann :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,341
    • Total Posts
      935,591
  • Member Statistics

    • Total Members
      65,004
    • Most Online
      3,093

    Newest Member
    susa
    Joined
  • Popular Now

  • Topics

  • Posts

    •     http://www.takepart.com/article/2014/08/11/coffee-adulterated https://www.thetimes.co.uk/article/how-was-your-morning-coffee-did-it-taste-like-mud-v6rfdmrrr92 http://grist.org/food/coffee-taste-like-dirt-thats-because-it-might-be/ " Using liquid chromatography, which identifies the individual chemical components of a mixture, the Brazilian scientists found wheat, soy bean, brown sugar, barley, corn, and rice commonly interspersed with the grounded coffee they tested. Large amounts of wood and dirt were also prevalent, an issue not only for purists who prefer to drink their coffee black, but for those with potential allergies to the unknown additives. As TIME reports, the scientists are identifying the rogue coffee with increasing accuracy:" http://www.bodyandsoul.com.au/health/health-news/is-there-wheat-hidden-in-your-coffee/news-story/a3d53a7c36b76156f08d89eab6a396b3   -----   I have also read other references to coffee upsetting those with celiac.   Personally I have a family history of officially diagnosed celiac even though I have never been diagnosed myself..then again Ive never been properly tested. My drs just keep saying the following symptoms are anxiety and wont refer me to a gastroenterologist for:   Loss of bowel control, pale coloured stools, severe bloating, passing undigested food, ataxia, vertigo, migraine headaches, feeling feverish, repeated ulcers on my tongue and in my mouth, feeling generally ill and sleep issues (mostly falling asleep when I dont want to but rarely insomnia).   Because they insist its anxiety as routine blood tests are normal they wont refer me to a gut dr. They did do a blood test for celiac once on my request but it came back negative. This does not phase me when it comes to my suspicians that gluten is an issue for me because:   1 I was on a gluten free diet at the time, hence why i was well enough to crawl to the gps office. 2 I have a family history of celiac 3 MY symptoms are alleviated by a gluten free, dairy free, oat free, corn free diet..and lately, coffee free it seems. Coffee has indeed become a problem for me recently. 4 I could not tolerate gluten based baby foods as an infant. I was admitted to hospital as a baby for being underweight because I was vomitting all my food up. They put me on gluten free formula and i was fine, stopped being sick and gained weight. I could have grown out of it but considering the symtpoms i get on a gluten based diet, i really doubt it.   -----   When it comes to the coffee, food manufacturers will do most anything to make profits if they think they can get away with it. We live in a world where money is most important and if they do get caught...they can always claim they have no idea how the barley got in there!    
    • If you have had a sleep study and been diagnosed, you have sleep apnea. It's definitely different than waking up to go to the bathroom. Are you using your cpap every night for The entire night. Naps too? SA can actually cause death so it's very Important for you to use it every time you sleep. Do you follow up with your doctor yearly? Sorry to sound like the SA police, but I know someone who died from it. He wasn't using his cpap anymore, thought it was uncomfortable.     What Is Sleep Apnea?   Sleep apnea (AP-ne-ah) is a common disorder in which you have one or more pauses in breathing or shallow breaths while you sleep. Breathing pauses can last from a few seconds to minutes. They may occur 30 times or more an hour. Typically, normal breathing then starts again, sometimes with a loud snort or choking sound. Sleep apnea usually is a chronic (ongoing) condition that disrupts your sleep. When your breathing pauses or becomes shallow, you’ll often move out of deep sleep and into light sleep.
    • Summer sausage, rope sausage or link sausage? what were the ingredients? Msg makes me dizzy.
    • I found it confusing as to whether this was gluten or free not.  However, I've not had gluten in two weeks now and had Hillshire Farms beef sausage this morning and my head is literally spinning.  I'm going to assume I shouldn't have eaten it.  It was good......but will avoid it from now on.
    • I've suffered with this for a very long time and never knew it was part of celiac. At age 13 I had the very first episode that I can recall.  Much later in life I had the bad peristalsis that accompanies celiac and would suffer for up to an hour after the initial symptoms began accompanying the D.  Mine would courteously wait until later in the mornings as I would get up at 4AM to get ready for work, and then it would burst upon the scene at about 7:30 AM with a vengeance.  Finally, 17 years ago, I did a search on my computer for causes for D and learned it could be caused by wheat, or celiac most likely.  Afterward I visited my MD who poopoo'd the idea that an adult could possibly have have celiac, her words "That's a children's disease".  She then sent me to gastro for a Sigmo, and it was then labeled IBS.   The symptoms continued until I got all the glutens out of my diet and then there was mostly quiet in my gut.  Then 10 years ago she sent me back to gastro to have a look at why it kept happening, had both upper & lower GI and the old Doc could not confirm anything as by then there was healing. Had it been caught back when I was 13, sure the food choices would have been plain foods instead of the cool pies and cookies offered at home, but better health. BUT, yes Night D does accompany celiac disease.
  • Upcoming Events