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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Dear all,

Thanks for being on this forum. It helps to know I'm not alone.

After several years of unexplained bouts of nausea and tiredness

I was diagnozed last year. I've been gluten-free and dairy free for 8 months

and have started feeling better. Occasionally I make a mistake

(not good, have to be completely strict about this, but work takes

me many places), and the response is quite severe.

The local Celiacs here have a wide range of symptoms, but not like

mine and I was wondering if there is anyone out there who reacts

similar to me and if he/she has any suggestions on how to deal with

the reactions.

My main reactions are fatique, muscle aches (like you're having the

flu: arms, legs), nausea, and occasional bloating and dizziness.

I'm currently at home, having eaten some gluten in a marinade

last Friday.

My diet mostly consists of rice, vegetables, fruits and meat.

I have not taken anything for the aches or nausea. Bit nervous

about taking over the counter medication. If there is anyone who has

suggestions perhaps in the herbal area (maybe a certain herbal

tea) or the food area to improve energy levels and reduce the

aches, I'd be very interested.

Does it also take you a week or longer to recover from a (tiny)

mistake?

Best to

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Guest jhmom

How long have you had these new symptoms? I do not want to alarm you but I would talk to your doctor about them if they persist. The reason I say this is because about 4 months after going gluten free I starting experiencing EXTREME fatigue along with other problems. Turns out I may have Lupus.

I hope you feel better soon! Take care :D

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Have you noticed a pattern when you feel nausea? Like is it after you eat or anything?

I get tired as well as nausea. Ginger, certain teas, enzymes, probiotics...these are some suggestions of things to try to help with nausea. It takes a long time in some cases to get the gluten out of your system. Some people have symptoms long after they are diagnosed.

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Hello again,

Thanks heaps for your responses.

Symptoms have been with me for as long as I can

remember, but not all the time. On and off for several years.

I've been checked for other diseases (including lupus).

I'm lucky, nothing else there. Sorry to hear about your

troubles. Hope things will work out fine.

Nausea happens pretty much all day but generally more when

I just wake up. Common reaction of doctors is to think I'm

pregnant, which I'm sure others have experienced also.

Eating does not have any effects.

I will just have to be ultra strict and wait!

Cheers, Margot

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Have you been checked for Epstein Barr Virus or fibromyalgia? We dealt with very similar symptoms and found that my daughter and I had recurring EBV and for both of us it had translated into fibromyalgia (weakness, fatigue, muscle aches, off and on low grade fevers are symptoms of both). Both can be problems for weakened immune systems such as occur with celiac disease.

There is not a "cure" for either, but there are symptomatic treatments for both. Besides, if it is something like this you feel better just knowing what it is and that it is not going to kill you. It may make life tougher, but most of us are stronger than that and can cope better when we know what we are dealing with. It is the unknown that tends to eat away at our imaginations.

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For me I feel really bad when I even have the slightest mistake. For me the more I have been of of gluten I have become more sensitive to it. I can tell almost instantly and usually the 7th day after is the worst.

Again if you are having nausea problems you might want to try ginger types of mint teas. I have Celestial Seasonings Tummy Mint and Original Indian Spice and they are very calming to the stomach.Enzymes help with nausea whenever you have it...especially when you are having food. I talk alot about enzymes with people experiencing nausea because I have found that enzymes have helped me tremendously. Also, Probiotics are essential as well. Probiotics help boost the immune system.

I had mono a few years back and those symptoms do match up to a degree.

Has your thyroid been checked? That can run with celiac alot of the time

Also have you been tested for any food allergies or tolerances? There could be a chance you can't have other things that are possibly giving you these symptoms.

Good luck with everything and don't hesitate to ask if you need anything. :D

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hi all, can you tell me what the enzymes are probiotics are called? I have heard of them, but I dont really know what to ask for. My main symptom is dizzyness and fatigue...

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Dizzy-That's what they are called Probiotics and Enzymes.

Probiotic bacteria favorably alter the intestinal microflora balance, inhibit the growth of harmful bacteria, promote good digestion, boost immune function, and increase resistance to infection.Probiotic bacteria also produce substances called bacteriocins, which act as natural antibiotics to kill undesirable microorganisms.

Enzymes are specifically for digestion and help to absorb food as well. Enzymes help with nausea and tummy aches as well.

I take the brand Enzymatic Therapy because all of their vitamins and supplements have written on the bottle what they are free of which makes it alot easier. There are also other gluten-free brands that people mention on here that they take that are very good as well.

Hope this helps :D

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