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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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kellyk

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I was diagnosed with Celiac disease in early Oct this year. Had the symptoms all my life. blah blah, I'm gonna leave out the details now, becuz I have a specific question I need some feedback on, and if I let myself ramble I will...

so

being gluten free for about 3 months now, except for the occasional slip up, I'm wondering what is going on with my mouth, or my tongue rather. I have always in the past sporadically encountered mouth sores, sensitive tongue, glositis (the temporary flattening of the tongue due to many things, acidity, spicy foods...etc.), however, about a week ago (I noticed after chowing down on frito baked lays) my tongue got the glositis, where it became sore and raw feeling. It went away for a few days, then just yesterday came back with a vengence. Not only my tongue, which feels swollen and sore, with what looks like an inflamed tastebud on it, but the insides of my mouth are a little torn up...(I've been chewing on candy though all day today and yesterday).

I'm thinking that's the cause of the mouth soreness. The weird thing is is that I can't quite locate the specific spot of burning and soreness, its pretty general. I'm thinking it could be a combo of the lays and the fact that, even though knowing I would suffer in some way, on Tues. of this week I ate out, makng my own salad at this salad bar using the balsamic vinegerette that they had (to steer clear of any gluten) and then drank "Fizz" along with it, a natural fruit carbonated drink.) Would the acidity from all of that really cause me this much discomfort...this is really bad, I don't remember it acting up like this before...I did read that celiac can cause this though...what do you all think, I really would appreciate your feedback. Do any of you get this? Thank you.

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Guest Leidenschaft

I've had my tongue split right in the middle when I've had too much acidic candy, juice etc. such as throat lozenges, Neocitrin, etc. As you maintain a gluten-free diet, your sensitivity level increases (some more than others, I'm fortunate that I'm not highly sensitive) so you may notice more severe reactions now than before.

Not sure where you're from so don't know your labelling laws, but in Canada, the baked Lays do list wheat right on the ingredients...

I used to enjoy the BBQ flavoured corn chips, and then one day a friend asked how I knew if they were safe, I told her I just have to read the labels all the time. As I was about to put a chip in my mouth, it occurred to me that I hadn't checked these in awhile. Sure enough, the ingredients had changed, and they now contained wheat! :( I gave the bag to my friend and stuck to the kettle chips I had brought as well! It was a close call that reminded me to always check labels! I do still forget at times! <_<

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Thanks for your feedback. I am actually from Chicago Illinois, in the States, and to tell you the truth I'm still doing my research, still trying to get used to all this. The reason I mentioned the chips was becuz I literally noticed, that since I was lstuffing my mouth! I could feel my tongue burning after a couple dozen, as if the salt or some indgredient was causing a reaction. Just as if you were slamming down a salad with lots of acidy dressing in it, ya know. I have read some posts on here that mentioned Lays are wheat free.

It could be that I'm just more sensitive after being off gluten for awhile now.

No more of those chips for me that's for sure.

It's just really uncomfortable to have my tongue swell and be like this.

Thank you so much for the response though, the support on this board is amazing.

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Acidy stuff burns my tounge up!

Here is the Frito-Lays list:

http://www.fritolay.com/fl/flstore/cgi-bin...odID_352992.htm

However, they do say:

"*The above products do not contain gluten nor casein; however, they are produced on the same line as our products that do contain gluten and casein. Although the lines are washed between batches, a slight residue may remain on the lines. Individuals who are extremely sensitive may be affected."

I have been glutenfree for well over a year and get sick when I eat their products so I stay away from them.

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Guest Leidenschaft

Lays discussion

Hi Kelly, the link above will take you to previous discussions on this board for this topic. The only ingredients list I can find on the Baked Lays is US label which does only list "modified food starch"... personally if it doesn't list the source, I don't take the chance.

I've eaten the Lays Original, the good old greasy ones, without problem. although sometimes I think I get a bit of lactose reaction from them. I'm almost positive the one and only time I picked up a bag of Baked Lays in Canada, it listed wheat right on the label. I just haven't found an ingredients list for Canadian Lays online anywhere! :unsure: I am at the grocery after work tonight so will check then. Curiosity you know! ;)

Looks like there is plenty of info on this forum already though to meet your question. I will try to add Canadian info when I can get it!

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My doc seems to think that my mouth sores and tongue problems may actually be a B deficiency. I take (1,000% each pill) a B Complex Complete twice a day and then they get better for a while - along with my mulit vitamin. Someone suggested that it may be due to citric acid but that level stays pretty constant in what I eat/drink and the sores come and go.

I can go for a month without any problems then they start again. I then go back on the mega doses of B. In the meantime, my tongue is swolen and sore, I have bunches of sores, hard to eat, etc. I didn't have any problems until I went gluten-free last year. It is crazy...I don't know what else to do. Sometimes I even carry my bottle of Chloroseptic (sp???) with me to work so I can eat! I am just getting over another round.

-Kate

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I agree with the mouth sores. I think they are related to a vitamin deficiency of some sort. Every once in a while it happens in my mouth. I then make sure I am taking my vitamins and eventually it goes away.

The last time it happened was about a month ago and it seemed to spread into cold sores then eventually went away.

Until I read it on here I didn't relate it to the celiac.

Thanks

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I suffered a lot of mouth/tongue sores. I had two different things going on: 1) generally a single spot on the tongue, usually on the side, swollen, extremely painful like the nerve was inflamed. These went away about 6-9 mopnths after going gluten-free. They can come back only occasionally when I get run down (best I can determine). 2) oral lichen planus (a.k.a. OLP), on the gums and lower inside cheaks. Got better when I went gluten-free; healed completely when I went casein free (CF). Only had one flair up since CF when I got a flu shot, which I attribute to stressing my immune system.

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