• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anxiety
0

7 posts in this topic

Hi,

For the last twelve years I have had lots of stomach pains, diarrhea, accidents etc. I am feeling a lot better now that I am gluten free. But I still get anxious when I travel, or when I know the bathroom is a long distance away. My husband travels a lot with school kids, and I would just love to go with him, but the fear of having an accident keeps me from going anywhere. I will travel with him, but am afraid to travel with other people, having an accident is just so embarrassing. Do we ever get "regular" again?

BAM

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


<_< its an irrational fear that you may not ever get rid of--i know i panic when i dont know where the bathroom is or i am where there isnt one and i have been gluten-free for over 3 1/2 years--it's because we have been through so much before going gluten-free and we still dont trust our bodies---its a trust that doesnt come back easily---i do have very good days where i can go without knowing where each bathroom is along the way----maybe with time you will feel safer---it's hard, i know--i live it too--we do get regular, but sometimes that irrational fear will make us panic and then we have to go--its a vicious cycle for us---try talking to yourself and reminding you that you will be fine----i have to do the driving, i can ride with my boyfriend, but only him, no one else--i know i havent helped you, but i have reminded you there are others of us out here that feel the same way----i do have good days--more good then not :lol: deb
0

Share this post


Link to post
Share on other sites

I am still suffering from that anxiety. I went to therapy and started anti-anxiety medication after my dignosis. It really helps a lot!

0

Share this post


Link to post
Share on other sites

I still have anxiety as well. It's alot better then before but it's still there. Once you try things a few times with success you will trust your body more. I went to therapy and they told me it was a fear of what might happen since so many times I have went to do things and started not feeling well and I was just expecting something like that to happen.

I started on medications but I eventually was able to get off of those pills thankfully:)

Good luck:)

0

Share this post


Link to post
Share on other sites

Yes ... anxiety is a real tough one to get rid of. I have been gluten free for about 17 years, and still have some of those problems. I think maybe because every time you start to get comfortable you run into a contamination. I think what helped me the most is a few, very close friends getting me out of the house for short periods of time, to start with and then extending the time. They even helped me find the bathrooms :D I am probably more confident than a lot of Celiacs now, but that comes with time and the fact that I'm very careful what I eat for two or three days before an important outing. Well ... I'm always careful, but before an outing I never try anything new and go back to the very basics. Hope this helps some :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Oops ... I forgot. If it's an un-planned event, and I start getting nervous about it and of course, we all know what happens when we get nervous and tie up those stomach muscles, then I take my old friend "Imodium". It's got me through more than one occasion :lol:

0

Share this post


Link to post
Share on other sites

It is so nice to hear that I am not the only one suffering from this! Before diagnosis, I had a career counselor psychologist (?) say it sounded like i had agoraphobia. At first I thought she was nuts. Then i realized i was nuts, lol.

I found a book at the library that was very helpful with anxiety called "Fearless Living: (something more...)" by Judith Marquart (sp?). It's also available from Amazon. Come to think of it, I think I may check it out again....I'm in need of a refresher :)

btw, does anyone have any advice on how to help dh's deal with this sort of thing? Mine is very understanding, but still....feels limited in going places sometimes, though tell him to go solo or whatever, if i just don't feel well. I may post this over in the "friends of" section...

Thanks,

Merika

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,395
    • Total Posts
      930,317
  • Member Statistics

    • Total Members
      63,812
    • Most Online
      3,093

    Newest Member
    knk
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would say get retested, to be sure, do a gluten challenge with her where she eats gluten for 12 weeks, not much just a half slice of bread a day or a wheat cracker for the blood test and 2 weeks for the biopsy. You mentioned bumps, and dry patches...this might be DH from celiacs and if it is you can go to a dermatologist and they can test it. In some people with DH reactions to gluten, their intestines do not show much damage as most of the antibodies are directed elsewhere. In this case you would have your symptoms. Now Celiac is a autoimmune disease that commonly has other auto immune diseases associated with it. NOW if your daughter has the gene for it she could have another automimmune disease I am not very familiar with and someone else might be able to help you more on suggestions for testing. Now in my personal opinion it sounds like she was still getting into gluten when you said she was off of it. NOTE gluten is a tricky bugger, it is a protein smaller then a germ that can stick in cracks and scratches on all your utensils, food prep area, knifes, etc. As a flour it can hang in the air for hours and even be inhaled effecting some of us. It is present in a lot of things we do not consider, like makeup, playdough, shampoos, seasonings, sauces, even some dry wall spackles.  Now if she is in a shared house hold with other kids and not everyone is on this diet she has likely been getting into gluten somewhere, like touching glutened surfaces the other kids touched after eating gluten foods then putting her hand in her mouth or on safe foods. Or just randomly eating gluten foods, note symptoms can last weeks and wane from how it is effecting you. It does not take much to trigger symptoms you might have to be more careful and move her to a whole foods only diet, and have a separate prep area, utensils, cooking zone for her if you wish to keep fixing separate meals for her vs the gluten family.     I would suggest just changing the entire family over, anyway perhaps start with a separate fold out table, use freezer paper to line the prep area, a microwave, mini toaster oven, and some microwave cook ware like steamers, steam bags, etc. and using gloves to fix her meals. She will need her own condiment jars (crumbs in hte jars) and area for safe snacks. I would suggest getting her only gluten-free CERTIFIED FOODS for now. You can find some whole food healthy snacks at mygerbs.com, and a few other places. I will provide a link to gluten-free food list. PERHAPS you can change the entire family over....now days it is more like changing brands as everything you used to eat is available in a gluten-free brand. ALSO have a lot of dairy free options there. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
    • Hi wondering if someone could help. my daughter has mildly raised TTG  levels and the gliadine levels, she has one Coeliacs gene, but her biopsy came back negative.   We have kept her off gluten (and low dairy) for nearly a year to see if her symptoms improved.  They haven't.  But I don't know if they are related to gluten specifically.  Just wondering if anyone has other suggestions that may be going on with her.  Her symptoms are: - Short stature, she's nearly 9 and my 6 year old boy is nearly bigger than her - bumps on back of her arms - urine leaking and occasional soiled pants, which could be from constipation she has at time's - sticking out stomach - dry patchy rashes on her face - joint pain sporadically - vomits every 6 weeks, but hasn't had gluten and seems to be no food connection - reoccurring thrush She had gluten last night at a party and was fine today. I'm a bit lost and not sure where else to turn.  Thanks for any help.
    • We have gone gluten free, our whole house, as of a month ago. It was pretty seamless since I had been gluten-free for 5 months last year. I have found many good recipes, and my picky husband and one of my boys who is also a picky eater, even prefer many gluten-free recipes to the regular ones.  My husband did see my point about the size of the gluten protein means nothing. Its a gluten protein period, that's what you are avoiding. It doesn't matter if its hiding in the scratch of your baking sheet and you can't see it. You can't see the wind, but it's still there. I hear you on the anemia. I've been anemic for several years, I just thought it as because I was getting a little older. Has your anemia gone away or do you still have problems with it? 
    • Ennis, it is made out of metal, coated with plastic I think. You have such a hard time, my heart really hurts for you. But you are such a support to those on this board, and a great teacher for those of us who are new.  
    • Thanks everyone! I think its hard for people to fully accept because they cant see the damage it does every time you get glutened. It's invisible. Im glad to know I wasnt being paranoid. I sure was when I was first diagnosed. I laugh at myself now, but its a pretty steep learning curve. 
  • Upcoming Events