• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Here --
0

4 posts in this topic

Hi,

I'm new here, but unfortunately, not new to celiac disease. I've been diagnosed for about 10 years.

I was a scrawny kid, underweight my whole adult life, and often sick. I suffered from infertility, and after finally getting pregnant each time, I would have a miscarriage (4 total). Still knowing nothing about celiac and having no doctors who could diagnose why all the infertility and miscarriages, I did the only thing I could think of and went to an all-organic, all-whole-foods diet (and obviously got rid of refined, processed foods, such as flour). After just a year, I got pregnant without any help (okay hubby did his part! LOL!), and sailed through that pregnancy without a hitch. A few years later, though, I fell off the "health-foods" kick, and was sick for many more years until diagnosis. (I didn't seem to get the connection between it all, for whatever reason.) OK, finally about 10 years ago, I read about celiac disease and insisted my doctor test me. Positive, of course. Since then I'm doing very well. The cooking is no longer a challenge, but I like to travel a lot, and eating out is difficult, especially if I'm NOT in a big city with gluten-free restaurants.

Glad to have found the board, and look forward to "meeting" everyone.

(Hey, how come I can't do things like put up my photo? Do I have to be here a while or something? It said I can't have access to that part of the board.)

Patty

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


You probably tried to add a personal photo--none of us have that option. You can, however, add an avatar. Scroll up a bit and go to my controls. Then on the left hand toolbar, click "edit avatar settings." You can add one from the gallery and import one of your own (I don't remember, but you might need 30 posts--advanced member--to be able to import your own avatar). Other ways you can kinda personalize yourself on the board is by editing profile information--including AIM, YIM, e-mail, MSN Messenger, etc. so people can talk with you (if you choose to) and adding hobbies and interests, birth date, location, etc. Finally, you can add a signature, clicking "edit signature". The signature is added automatically to the bottom of every post you make. Mine has my name, diagnosis story, etc., some people have a quote that they like or something. All of these options are located in the same general area on the left side under "my controls".

Welcome to the board! :)

That's about all I have to say--no words of advice or reassurance needed--you've been on the diet 10 times longer than I have been :lol: .

-celiac3270

0

Share this post


Link to post
Share on other sites

Thank you for explaining it! LOOK -- I got the photo to work -- yay me!

As far as me needing no words of encouragement or support, well, that's another story . . .

I guess there are two great difficulties I experience. One is travel -- always SO difficult to just head to wherever, and survive. We usually end up renting a house or apartment, so we can cook. Hard enough to find gluten-free restaurants (non-existent in some places), but much more inconvenient to travel to them three times a day.

The other is people who just don't "get it" -- I've tried explaining til I'm blue, and get so tired of it. I think a friend or family member totally understands, but then I get to their house for my birthday party and there are sandwiches, pizza, and cake! LOL! So, I have a glass of iced tea and then they ask why I can't have some occasionally. Everyone here must know this feeling? :(

At least my home is safe -- we have a totally gluten-free home, so there is no cross-contamination or anything for me to worry about (cookware, dishes, or just crumbs off the counter). Easy to stay healthy there at least.

Patty

0

Share this post


Link to post
Share on other sites

Hi Patty,

welcome to the board from me, too. It just amazes me how fast our "little" group grows every week! :lol:

Stef

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,401
    • Total Posts
      935,867
  • Member Statistics

    • Total Members
      65,084
    • Most Online
      3,093

    Newest Member
    Madaly320
    Joined
  • Popular Now

  • Topics

  • Posts

    • Get the full celiac blood test.. It includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA It's just a blood test, no reason not to do it. You have to be eating gluten for 12 weeks for the test to not show a false negative. One slice of bread per day is enough. A positive on any one test is supposed to lead to an endoscopy to confirm celiac. Since you're already getting an endoscopy you're good to go there. There are several things you could have, digestion-wise, so I'd do the tests. Celiac requires 100% compliance to the diet, no cheating, so it's good to test for it.
    • Where are you? Nuts are gluten free by nature, some companies might use contaminated seasonings, or make them in a facility that processes trail mix or something with gluten in it. This is where your concern lies, A nut only company should be safe, unseasoned nuts are your best bet, and yest if you can get them in the shell then wash them off really well before shelling and eating them your pretty darn safe with them. Raw walnuts in shell are safe, they normally do not add anything them to them, in case they might have gotten dusted with something just rinse them off before shelling them, I really love taking the walnuts afterward and putting them in a pan on low heat til they start to brown and lightly roast, they are great this way. I also used to take raw walnuts and candy them. Might post that recipe since I can no longer eat them and do not sell them anymore. I have a bit of a issue getting nuts myself by I am allergic to peanuts (not really a nut but a legume). SO for me it is really tricky finding peanut and gluten free nuts lol. I found 3 companies I order from, 1 for organic almonds, 1 for my own almonds, and one that sales walnuts and pistachios only. Most people here just order from Nuts.com but they might not ship to you at a good price. Tried amazon?
    • There aren't any gluten free nut brand in my country. Are nuts with shells like peanuts,walnuts sold in stores without package gluten free? Do they add anything else to them? 
    • Supplementation with Natural Vitality Stress & Energy, will help a lot it is a sublingual B-vitamin pretty much. I use it with the Neurological support from the same company and Natural Vitality Calm Magnesium. These along with a diet in foods that help with mood like snacking on cocoa nibs, hemp seeds, etc. Takes the edge off of everything and I do not worry but just roll with life. Here are some helpful links https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/ A set of microwave cookware from nordicware will make the transition and cooking some foods super simple and cheap, steam trays, rice cooker, grill plates, omelette makes etc, also great for trips. Butcher paper/Freezer paper can make a nice safe cook and eating surface and makes clean up a breeze. Crockpot meals with a crockpot liner makes really easy soups, risotto, stews, pot roast, etc and the liner can make cleanup super simple just pull it out and toss it.    Eggs dishes like omelettes using the microwave cooker, scrambled egg dishes, are super simple and one of my go to meals I also so simple stir fry meals a lot. Saute in order of harder and seasoning veggies and meats first and finish off with a sauce/deglazing mix 10-20min meal. I have posted recipes for meals in the recipes sections. MY flat bread recipe seems to bit hit recently being cheap easy and very versatile in how you can make it.
    • Hey everyone... newbie here. I have a few questions but first my history: Dx with Hashimoto's in 2003. Had SEVERE adverse reaction to T4 no idea why but then switched to T3. But T4 opened a can of worms. Immediately after starting T4 had digestive issues. Aften a few years tried gluten free. No help but stayed on gluten-free diet. 2013 gave in to blt cravings and had wheat sandwiches everyday for a week. Woke up one morning with muscles so swollen or inflammed couldn't  get out of bed. No more gluten. Also had blood in stool. 2014 finally dx with pancreas insuffiency. Digestion improved and blood stopped but at same time also dx with colitis (i strongly doubt this dx and don't  take colitis drugs). A year later added cheese back into my diet. Bleeding came back. No more dairy now, blood gone. Now i might have gastritis and sibo. Endoscopy planned for October. 23andMe testing also shows a single mutation for celiac. If i just stay Gluten-free Casein-free does it really matter is i get a dx for celiac? Celiac disease and gluten intolerance... same thing? Is blood in stool common with celiac disease? Is colitis often a wrong dx for celiac disease. Can a biopsy dx celiac when already Gluten-free Casein-free?  Which end of the small intestines used for biopsy? Meaning, when doc looks at my stomach can he do small intestine biopsy or do i need a colonoscopy instead?
  • Upcoming Events