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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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GabrielleM

What To Do After Accidentally Eating Gluten?

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I've been diagnosed and gluten-free for a little under a year, but I still have some trouble eating 100% gluten-free. I try very hard to make sure everything I eat is gluten-free, but sometimes I still get sick. I assume it's because of cross-contamination or some ingredient I didn't know had gluten in it. Does anyone have any advice for how to feel better after accidentally eating gluten?

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For feeling better: I drink Yogi Tea Green tea Kombucha, with Yogi Tea being the brand. I put honey in it, and then I heat up a heating pad -- like for muscles -- and wrap it over my abdomen. That helps a lot.

The best thing you can do is know that it will be over soon, and ride it out. Watch TV or do something that passes the time, and use distractions as best you can.

Okay, for staying away from gluten: There's a couple things you should take a look at. You didn't give a lot of detail, so I apologize if I go over ground you already have. =)

First, make sure the products -- not just the food -- you are using are gluten free. Shampoos, soaps, lotions, make-up, even dishwash detergent. Your pans and toaster and breadboards are all replaced, right? Colanders, non-stick pans, things like that, should have been replaced right away -- not everyone needs to, but I tend to be super-sensitive, so I had to.

Then look at every aspect of your day. What about your chapstick? Lipstick? Are you prone to putting your fingers in or around your mouth, or chewing on pens? (if you are, stop that! I did both, and would get sick a lot more than I do-- er, did until recently.)

Do you have an SO? If so, is your So gluten free too? My husband had to go gluten-free because not only was he starting to show rash symptoms with gluten, but he'd cheat, then touch me or kiss me, and I'd get sick! If your family or SO is not gluten free and they get their gluteny fingers on you or your stuff, you could get sick if your fingers or those items go by your mouth.

I hope this helps at all!!

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For feeling better: I drink Yogi Tea Green tea Kombucha, with Yogi Tea being the brand. I put honey in it, and then I heat up a heating pad -- like for muscles -- and wrap it over my abdomen. That helps a lot.

The best thing you can do is know that it will be over soon, and ride it out. Watch TV or do something that passes the time, and use distractions as best you can.

Okay, for staying away from gluten: There's a couple things you should take a look at. You didn't give a lot of detail, so I apologize if I go over ground you already have. =)

First, make sure the products -- not just the food -- you are using are gluten free. Shampoos, soaps, lotions, make-up, even dishwash detergent. Your pans and toaster and breadboards are all replaced, right? Colanders, non-stick pans, things like that, should have been replaced right away -- not everyone needs to, but I tend to be super-sensitive, so I had to.

Then look at every aspect of your day. What about your chapstick? Lipstick? Are you prone to putting your fingers in or around your mouth, or chewing on pens? (if you are, stop that! I did both, and would get sick a lot more than I do-- er, did until recently.)

Do you have an SO? If so, is your So gluten free too? My husband had to go gluten-free because not only was he starting to show rash symptoms with gluten, but he'd cheat, then touch me or kiss me, and I'd get sick! If your family or SO is not gluten free and they get their gluteny fingers on you or your stuff, you could get sick if your fingers or those items go by your mouth.

I hope this helps at all!!

Thank you so much! The heating pad & tea are a great idea.

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I drink peppermint tea or traditional medicinals eater's digest. It has peppermint and other hebs that are calming.

WhimisKay: Please read the labels on Yogi tea. I was debating whether to buy Yogi tea or Traditional Medicinals. I was looking at the ones for liver detox...and one of theirs had wheat in it! Since my stomach was already gurgling I went for the brand that has no wheat in any one. (I used traditional medicinals mother's milk tea while nursing.)

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I take Immodium if things go on for too long--otherwise I figure it's best to get rid of everything. I drink a lot of water to help sort of rinse out the toxins and to replace the fluids I, uh, lose. I eat very conservative safe foods for a few days like bananas and rice, Then I take extra acidophilus for about a week to get my intestinal flora back in order. I got glutened big time last week while on vacation and was continent enough to travel the next day.

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I think if you know you have been glutened the best thing is to get rid of it as fast as possible. I think of gluetening as kind of like having a poison in your system. So, I think it is best to get the "poison" out fast and limit the damage. So, instead of an anti-diahrea product a laxative might be a better choice. Certainly not an option when out and about traveling or whatever though.

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My reaction to gluten is extreme gas, pain and I feel like I should make a BM. but nothing happens. After 3 days of agony, I get D. I find that taking a laxative helps things move along. I don't always have 6-12 hours with nothing to do but wait for the pills to kick in. If I pop the pills early on, it shortens the sickness by about 3 days, but there is a danger of becoming dependent on laxatives, so don't go overboard!

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I'm actually in the middle of my first experience getting glutened. I'm watching TV and just riding it out tonight, but was curious if there's anything people recommend I do or take for the pain. I'm drinking lots of water and using a heating pad, but what I'd really like is something to dull the stomach pains I'm having. Does anyone know if something like xanax would relax my insides? I think I'll try making some green tea, if I have some that is wheat free...

I was diagnosed only 2 days ago and have been trying to be gluten-free for the last week. I'm having a follow up with my primary doc next week and was curious if there's any Rx I could ask for to help with these episodes, when they do happen...

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Try some Pepto Bismol. I take Pepto and plain old aspirin. I also take DPP-4 and I think it helps some. Lots of water and rest if you can. L-glutamin is supposed to help also. I never noticed any affect from it myself. There is also marshmallow root which is supposed to be soothing. If you are gassed up in the stomach peppermint is supposed to help relax the muscles. This does help me for gassy stomach issues. Altoids peppermints are ok. You also might do well to try some pro-biotics.

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I asked my GI about the Immodium conundrum. He said to go ahead and take it. It makes life after glutenation more manageable, and by the time the symptoms show the damage has been done.

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I'm actually in the middle of my first experience getting glutened. I'm watching TV and just riding it out tonight, but was curious if there's anything people recommend I do or take for the pain. I'm drinking lots of water and using a heating pad, but what I'd really like is something to dull the stomach pains I'm having. Does anyone know if something like xanax would relax my insides? I think I'll try making some green tea, if I have some that is wheat free...

I was diagnosed only 2 days ago and have been trying to be gluten-free for the last week. I'm having a follow up with my primary doc next week and was curious if there's any Rx I could ask for to help with these episodes, when they do happen...

To help ease stomach cramps, well the pain, i use rose massage oil, i was slightly skeptical but it really helped me, i just rubbed it (warm!) clockwise on my abdomen until it turned slightly pink then replaced my heating pad :)

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Try activated charcoal to absorb it so it just passes through your gut!!

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It seems everyone reacts a little differently. I was diagnosed with Celiac 9 months ago and had my first "glutened" experience about a week ago. It took about 12 hours after eating something from Chili's gluten-free menu to get sick. It was a severe reaction. The whole experience lasted 7 days. Just getting better today. I took something called "gluten flam" which I ordered online to help my digestive system. All I can say is, it wasn't fun and not eating out for a long time.

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It seems everyone reacts a little differently. I was diagnosed with Celiac 9 months ago and had my first "glutened" experience about a week ago. It took about 12 hours after eating something from Chili's gluten-free menu to get sick. It was a severe reaction. The whole experience lasted 7 days. Just getting better today. I took something called "gluten flam" which I ordered online to help my digestive system. All I can say is, it wasn't fun and not eating out for a long time.

I also had a terrible experience at Chilli's. I ordered off of their gluten free menu and discussed it with the waiter and then my meal came with a piece of toast laying right on top of half of my steak!!! Needless to say I don't think they understand or care about the severity of gluten to people on a gluten-free diet.

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The longest I have been sick for was 1 month when I ate gluten infested chicken fingers in Seoul. It was one of the hardest months of my life. I tried laxatives, tea and lots of sleep but nothing helped. To bad there wasn't a pill we could take so that we could enjoy gluten again.

I'm also lactose intolerant and it's nice to just take a pill whenever I want a glass of milk.

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Try some Pepto Bismol. I take Pepto and plain old aspirin. I also take DPP-4 and I think it helps some. Lots of water and rest if you can. L-glutamin is supposed to help also. I never noticed any affect from it myself. There is also marshmallow root which is supposed to be soothing. If you are gassed up in the stomach peppermint is supposed to help relax the muscles. This does help me for gassy stomach issues. Altoids peppermints are ok. You also might do well to try some pro-biotics.

 Altoids are not gluten free they contain wheat so they are not ok to eat

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 Altoids are not gluten free they contain wheat so they are not ok to eat

 

Hi

 

In the USA the peppermint Altoids are gluten-free.  They may not be gluten-free in other countries though.  So that is something to watch out for.

 

http://www.wrigley.com/global/brands/altoids.aspx#panel-3

 

INGREDIENTS:SUGAR, GUM ARABIC, ARTIFICIAL FLAVOR, GELATIN, CORN SYRUP, NATURAL FLAVOR, RED 40.

Wrigley's goal is to keep our online nutrition information up-to-date and accurate. However, we always recommend that you check our labels, or call 1-800-WRIGLEY, for the most up-to-date ingredient and nutritional information.

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I have a really bad coping mechanism: I drink a glass or two of wine. Most of my initial symptoms are more psychological in nature (dizziness, tingling limbs, disorientation, etc.) so to keep myself from over-thinking everything that's happening and making it worse by becoming psychosomatically ill (illness without physical causes, based in psychology), I kind of induce the same symptoms through a little bit of alcohol. I also get rid of or away from whatever the culprit was.

 

For the rest of the time until my body decides it's done with the gluten and I need a bathroom ASAP, I try to do things to help alleviate the pain from bloating and keep my anti-spasms on me in case of a colon-spasm attack, which sometimes happens. Also, crappy movies and warm blankets help. It's really about waiting out the storm. 

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I was diagnosed with celiac disease in 2010 I am normally way more careful.I used the wrong chicken bullion on Wednesday 1/11/17 and I have been sick ever since it is now Monday 1/16/17 and I am absolutely miserable.  I am barely eating, The abdominal cramps have not subsided. I have tried tea, Pepto, ginger, digestive enzymes, and of corse lots of water. I don't know what else to do. 

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58 minutes ago, Shanti said:

I was diagnosed with celiac disease in 2010 I am normally way more careful.I used the wrong chicken bullion on Wednesday 1/11/17 and I have been sick ever since it is now Monday 1/16/17 and I am absolutely miserable.  I am barely eating, The abdominal cramps have not subsided. I have tried tea, Pepto, ginger, digestive enzymes, and of corse lots of water. I don't know what else to do. 

So sorry to hear that you were glutened.  It happens to the best of us!  

 I cope by eating well-cooked, easy-to-digest foods (think crockpot) like soups and stews.  While I am feeding my family gluten-free, I am eating my mushy food!  I am fine as long as I don't eat, but I have to eat.  I also found (have been glutened twice as measured by follow-up antibodies tests) that I become temporarily lactose intolerant.  My glutenings seem to last for a long time.  I hope you recover much faster!  

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Hi Shanti,

You could try  some Milk of Magnesia to help move things out.  I think eating more rather than less is helpful.  If you have lots of gluten free food in your gut it can kind of thin-out the gluteney stuff in theory.  The last thing you want is to not eat and have all that gluten hanging out in your gut.  Pepto can help coat the gut and hopefully reduce irritation.  But it is something you would have to take every few hours to feel and effect.  Pepto has aspirin in it so don't exceed the recommended dosage.

Peppermint tea may help too.

 

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    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
    • In many cases no.....I consume heavy magnesium foods like pumpkin seeds, cocoa nibs etc....and still need 2-3x the dose of magnesium recommendations. Going on more of what poster boy said. You dose magnesium to tolerance with citrate like Natural Vitality Calm you start off small partial doses and slow ramp up....it can hit you hard causing gas and D if you go to quick into it. You dose citrate to tolerance meaning you slowly up your dose til you get loose stools...then back down a bit. You should have vivid dreams with a good dosing....also if it becomes to harsh or you can not handle citrate there is Doctors Best Glycinate...it does not have the gut effects at all...but the dreams and how much it makes you relax is more more felt.   ...with this disease you can have a food intolerance or allergy crop up out of the blue....like no where. You have a autoimmune disease....celiac it effects your immune system and can make it really wonky. Like it seems to always be on guard like a sleep deprived sentry on stim packs...jumps at everything and shoots it. If you get sick, eat something odd or harsh you system might red flag it as a issue for awhile and go bonkers....keep a food diary and try a food rotation in the mean time...OH as a example to this, I was fine with chia seeds last week...I got a cold over the weekend....same bag, same brand same way....withing 30mins I now puke if I eat them...new intolerance.....I also am finding jalapenos/paprika making it sleepy tired....so I am removing them both for a few months from my diet and changing to other sources for fats/fiber and vitamin A/C til I get over that issue.....these things just happen. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Hi Isabel, Your body needs nutrients to grow.  Nutrients not absorbed well when we have celiac disease damage in our guts.   But, if you do a good job of avoiding gluten, the gut damage should heal and you will be able to absorb nutrients again. The thing to remember is celiac disease is an immune system reaction.  Immune reactions are very sensitive and just a tiny amount of gluten can get them going.   And they can last for months.  So it;s very important to avoid all gluten all the time, to keep the immune reaction down.  Keeping the immune reaction down keeps the damage down, and the healing can keep up. You may start to grow more if you can absorb nutrients better.  Some extra vitamin pills might be a good idea.  Your doctor should know.  
    • Thank you Gail for your response. Of course one should be mindful of the possibility of food allergies but I don't think that's the case with my current situations. Save for gluten containing product, everything I eat now I used to eat before with no reaction whatsoever. I think my issue is more likely to be deficiency in minerals and such.
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