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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Teen Vogue
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I was flipping through an article in the girl's magazine Teen Vogue written about Emmy Rossum. At one point in the interview they said,

"At tea, as Emmy guts a series of elegant little sandwiches (she eats only the insides since she's allergic to the gluten in the toast point), she . . ."

For those who don't know she is the young woman who played Christine in the movie version of "Phantom of the Opera" that came out this year. Sounds like she might have Celiac to me. I couldn't find a mention of it anywhere else but . . .

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Oh my gosh! She ate the insides! After it touched the bread??!!? That would make me so sick she should have just ate the whole thing.

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My thought exactly! If she really is a Celiac she must not be a very careful one.

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Wow that's pretty careless...If she really is a celiac I agree with you all she is a pretty careless one.

I'd be sick for about a week if I did that.

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This kind of thing ticks me off. It misrepresents the practical reality of eating gluten free and makes those who adhere to the zero tolerance rule seem like picky paranoid crackpots. If it was as simple as peeling the skin off fried chicken or flicking the croutons off the salad, then half the sections in this forum would be unnecessary.

Sarah

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So. . .we're the cool kids?

Lol, I think so.

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Maybe they wrote it so strange that everybody should think, that she herself took the "insides" out of the sandwiches. Maybe they didn't even touch the sandwiches and were already separated?...

Stef

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I don't know what's up with this, of course, but I find it upsetting that celiac is portrayed in such an inaccurate way--it's teaching people the wrong ideas about celiac and it might make it harder for people to believe you, since they've read an article about another "celiac" who can just pick the toppings out--I agree strongly with phakephur

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"At tea, as Emmy guts a series of elegant little sandwiches (she eats only the insides since she's allergic to the gluten in the toast point), she . . ."

That is so wrong!

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Although, I guess one positive--sort of positive--is that celiac isn't mentioned directly, even though "gluten allergy" makes me think that's what they might be refering to. So if someone questioned your policies about gluten, having read the article, you could say that this person has an "allergy" -- of course, allergies can range in severity and with some, you can still eat something in small amounts, but only react if you have a great amount of it.

Celiac is different....every crumb matters. That's how you could explain it, I guess, even though she might actually have celiac.

P.S. Not belittling allergies :) , but just saying that they CAN range and some aren't very severe.

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Not everyone is as sensitive as some people report on this board. From my personal experience, small, occasional amounts of gluten cause me no reaction. I know someone who can tolerate a slice of bread. It's entirely possible for some people to pick out crutons or tolerate use of a gluten toaster or cook in a gluten pot. It's unfortunate for the very sensitive, but not out of the realm of reason.

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But any crumbs would be enough to cause intestinal damage--whether or not they caused symptoms.

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Whether or not you react to it is not the issue. Some people don't get symptoms. That person who can tolerate a whole piece of bread may not feel anything but he/she intestine is paying for it and will not get better with having that gluten. It's not a matter of how sensitive you are if it is not gluten free it WILL cause damage...even crumbs

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Hey guys,

I made a 4 our search on anything about Emmy Rossum and came up with absolutely nothing. Maybe she thinks, she's cool, if she acts like that and that's all. Or they just try to keep it a secret.

But instead of Emmy Rossum and celiac I came up with this from other famous people:

Joey C.: http://us.imdb.com/name/nm0127361/bio that was the guy who toured with Kid Rock

Keith Olbermann: http://us.imdb.com/name/nm0646021/bio

Sarah Vowell: http://us.imdb.com/name/nm1102970/bio

You can find these actors, when you search for them on that homepage, that pops up, when you click on the links above. I'm still looking for other actors or so. So maybe I can come up with more.

Stef

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We talk a lot about people being asymptomatic. And I know something about it because I'm one of them. That's not what I'm talking about. There has been research posted on this site that offers proof via biopsy that test subjects have consumed as much as 300 mg/day of gluten with no ill effects. I believe it is possible for some of us to pick the meat off the bread and eat it without causing damage. Everybody, obviously, cannot do this.

Many posters speak on this subject with absolutes, when there is proof to the contrary.

I agree that press like this doesn't entirely help us, but it may just be accurate for some celiacs. I've picked rolls or toast off my plate and ate my meal with no reaction. Perhaps for some celiacs, no reaction to minute quantities is no damage.

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How long has it been however for this people (and you probably) between eating "a very little" amount of gluten and "very little damage" and having the next following biopsy? Maybe they had a little bit of damage for one or two days and until the next biopsy the damage was already gone?

Hugs, Stef

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I read this article also, but I thought maybe she has a wheat intolerance. There are a lot of people with wheat intolerance but they do not have celiac disease. They can eat other grains just not wheat. As far as allergies... that is life threating immedialtly! I myself can not eat fish or peanuts, or I will go into anaphalactic shock. A person with an actual ALERGY can not eat any small amounts or they will die. A person with an intolerance can eat small amounts of the item with hardly any problems. I am lactose intolerant and I can eat small amounts or take a pill like lactate when I eat dairy.

Now celiac disease is a auto-immune disease and therefore any crumb counts! I believe it is 1/188 of a peice of bread will cause damage to a celiac. I don't get any problems if I get an accidental ingestion, although I KNOW it will cause further damage and further problems.

There was also a study done SOMEWHERE, I can not rememeber the source. (I am sorry) that around 55% of diagnosed celiacs do NOT follow a strict gluten-free diet mainly due to lack of knowledge of the doctors that diagnose. I know I have had to educate my doctor with everything that I know. He didn't realize it was THAT important to follow a strict diet.

Anyway, I hope this helps as I live with all 3! 2 life threatening allergies, 1 intolerance, and Celiac Disease! :)

Sada

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Hey, Sada,

Exactly what I think. These 55% of diagnosed celiacs, who do NOT follow a strict glutenfree diet, they just piss me off and their uneducated doctors as well. Sorry for the language, but they really do actually and why should I slime. They don't know, how hard they make the life for the rest of us celiacs.

I think I already told you guys about an asian (meanwhile ex) friend of mine and her daughter and the problems of the little one? And that I suggested to her to go see a doctor with her kid and get her tested, because of all her problems? And the doctor told her not to worry, because asians never ever get celiac? Dugh!!! I mean, the doctors told this woman, that her daugther can't have wheat (and they sure don't say it for nothing), when it was a little baby. The kid never really got tested, why it can't have wheat though. Don't ask me, how they found out, she didn't tell me. She should be 6 or 7 by now. She still keeps on giving her wheat. And than she wonders, why the kids skin's itchy, it's moody and whiny and has 1000 other allergies??? I mean, how stupid can somebody be? Sorry, I still have hard to digest on that one, because the little one was so cute. It's really ashaming.

Hugs, Stef

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Stef,

:) I know! It makes me upset too! My dad is one of them! :) I wish he would follow it, and I have done everything to make him understand, but he is so set in his ways. It does make it harder for those of us that do, and I have really been to some doctors that really have NO idea celiac is even existing here in the US. Crazy! But in my Dad's case, I just think he is stubborn and wants his favorite foods. He doesn't eat bread, tries really hard until he wants his soup. The soups that do contain wheat. AHH! He says it isn't as bad as eating bread. He has been in the hospital with his colon and they keep telling him that he needs to change his diet to completely gluten free. I hope he does. He would feel so much better.

That is too bad about your friend's child. That is sad especially when it involves an innocent little child!

Sada

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Sada,

I know, I feel sorry for that child, too. And my exfriend and I started to argue about the entire thing, everytime we met and so I stopped meeting her. She wanted me to give her kid privat lessons in martial arts and gymnastics, but I really don't want that, when the kids sick. It's just a torture over short or long. I know, how bad I felt. So to avoid that I stopped seeing her. It's so sad.

With your dad, that sounds as if he still lives in denial a little bit here and there. Maybe he's just about to adjust. For how long does that go like this now? If you excuse me, that I ask.

Hugs, Stef

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Hi Stef,

That is neat you do gymnastics! WOW! I wouldn't want the child there either. Poor thing. As far as my dad, no i don't mind. He has had stomache problems all his life and when I got diagnosed he thought he should go. Which about 1 year later he finally made it to the doctor by being admitted into the hospital for pain. :) They did celiac testing and came back postitve. That has been since November of this year. So he eats gluten about 1-2 times a week. He says he feels better, but I think he would feel PERFECT if he would just be all gluten-free!

Sada

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I am fortunate that I can tolerate an accidental hit of gluten once and a while. There is probably some damage done but not much you can do about that sometimes. A lot of people don't understand food allergies because they think "Food allergy/intolerance? How can that be? Without food you will starve so it is impossible to be allergic to it." I know a few people with potentially fatal allergies to peanuts or shellfish and they have all kinds of stories about some doofus trying to force feed them a crab cake or peanut butter cookie. Or about someone who gets all irate and offended when they won't eat something because it would kill them. People either get it or they don't. I try to avoid the ones who don't get it as much as possible.

Ianm

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Some people are more sensitive than others and that is very unfortunate for them. But there is evidence derived from scientific testing that indicates small amounts can be tolerated by most people without damage. Look at Scott's news postings. This is in fact wonderful news for most of us because it means that commercial product manufacturers will be able to produce AFFORDABLE products. I believe what people don't understand is that zero anything is very difficult and extremely expensive to produce. People profess they are eating zero gluten, but in reality they are not aways. There have been tests that show inherently gluten-free products sometimes contain gluten. If the FDA doesn't allow some small gluten content for gluten-free products (i.e. < 200 parts per million) we will find many of the current gluten-free product supplies out of business and those that remain will charge us a lot more for their products.

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