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Recent Activity
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- brittanyf replied to brittanyf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Lots of celiac symptoms but negative blood test? Need advice!
Sorry! Yes, that was typed confusing/weird…I was eating my normal gluten containing diet up to the blood work, got the results on 3/30, started the next day of changing my diet pretty drastically- 3/31-4/12. Then fell off the rails over this past weekend thinking I was feeling better and had a friend’s birthday, etc. At first, the individual foods didn’t b... -
- gameboy68 replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Partial Positive Biopsy/Negative Serology - is celiac still possible?
Thank you for your insight @plumbago @trents ! I am taking supplements for B12 and D3 now, but after retest, I am still low. I am hoping to be approved for B12 shots soon. My Neurologist mentioned that the B12 deficiency could be due to malabsorption and thought that the supplements would not work because of it; she said that is a common issue with Celiac... -
- Celiac16 replied to GardeningForHealth's topic in Coping with Celiac Disease11
10 years later, my celiac is progressing
This may not be a welcome comment but I found cutting out sugars altogether helped me a lot. Ketosis is extremely therapeutic and ant inflammatory. I tried the specific carbohydrate diet and GAPS and found under 20 g carbs from green veges with high fat and moderate protein is the best diet for me. i was strict gluten and diary free for years without much... -
- plumbago replied to brittanyf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Lots of celiac symptoms but negative blood test? Need advice!
Just to understand the timeline here. You say you cut out the wheat, dairy, and high FODMAP foods for two weeks, but you "just" got your lab results back? So you were not eating the aforementioned foods at the time of the blood draw? It's confusing because you also say that after the negative tests you stopped eating those foods. Let's first clarify the timeline... -
- Celiac16 replied to lydialoo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
Almost in remission!!!
I second this!! I was diagnosed with POTS too and thiamine was a lifesaver along with going low carb (carbs and sugars deplete b1, and diabetics are ubiquitously deficient). It helped my vertigo, nausea, shortness of breath, and tachycardia that had me in and out of the hospital with mild acidosis. I was strict gluten and dairy free for years but continued...
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