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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need Help...eating And Feeding Evaluation Form From School
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4 posts in this topic

they know she has celiac disease at school. she was just diagnosed this summer.

school has been in for 4 days, tomorrow is day 5.

so far i am just sending her lunch, and she has permission to get fruit and drink and ice cream and veggies from school if there is something she wants and can have.

so far she has bought tangerines and a drink, but thats it.

today the school nurse called, and has sent home a paper to have filled out and signed by the doc just to help educate and make everyone aware and everything official.

(she is planning to come to my support group meeting i am having monday night)

so i need help as to what to put on this form.

it says:

list any dietary restrictions or special diet

list any allergies or food intolerances to avoid

list foods to be substituted

list any special equipment or utensils that are needed

indicate any other comments about the childs eating or feeding patterns

there is also a food allergy action plan, but i dont think that one needs anything as it deals with epipens, etc

also, a note from the nurse that the cafeteria manager sent me a copy of the menu for the whole month and wants me to know that if there is nothing she can eat on a certain day to let her know and she will be glad to fix whatever she needs.

thanks in advance for all your help

i am still new to this, and am learning..............

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there  are  gluten free  bread you can buy  or make with gluten free cookbooks  sold in book stores, online.  my first 

 

this  is  a list of what to avoid http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

 

 

incase you need a safe list too

http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

 

my mom made me a book  out of the avoid and the safe list in a folder  when I first got celiac spru.

 

 

 

if you need to find some ingredients  like xanthan gum or any other gluten-free flour or baking ingredients in the gluten free cook books

you can go to a health food store or you can shop online.

 

 

sites  I shopped on

http://www.celiac.com/glutenfreemall/

 

http://www.swansonvitamins.com/?SourceCode=INTL097&mkwid=s7ZovTK9m&pcrid=12134209807&gclid=CND9ocDK87YCFelAMgodb3QA8A

 

http://www.vitacost.com/

 

on the last 2 sites you need to read the products and make sure they say gluten free cause they don't sell some stuff that isn't.

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there  are  gluten free  bread you can buy  or make with gluten free cookbooks  sold in book stores, online.  my first 

 

this  is  a list of what to avoid http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

 

 

incase you need a safe list too

http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

 

my mom made me a book  out of the avoid and the safe list in a folder  when I first got celiac spru.

 

 

 

if you need to find some ingredients  like xanthan gum or any other gluten-free flour or baking ingredients in the gluten free cook books

you can go to a health food store or you can shop online.

 

 

sites  I shopped on

http://www.celiac.com/glutenfreemall/

 

http://www.swansonvitamins.com/?SourceCode=INTL097&mkwid=s7ZovTK9m&pcrid=12134209807&gclid=CND9ocDK87YCFelAMgodb3QA8A

 

http://www.vitacost.com/

 

on the last 2 sites you need to read the products and make sure they say gluten free cause they don't sell some stuff that isn't.

Please note you are responding to a 5 year old thread.

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If you google celiac 504 you should get some pretty good examples of answers for these questions. Also, try any of the websites of the celiac centers like Childrens Hospital Boston for advice about school.

 

http://www.childrenshospital.org/clinicalservices/Site2166/mainpageS2166P12.html

 

this page has a school packet that is really helpful.

 

http://www.childrenshospital.org/clinicalservices/Site2166/mainpageS2166P110.html

 

this is what usually I put.

 

list any dietary restrictions or special diet

Celiac - No gluten (any foods containing wheat,rye,barley, or oats) - barley may be listed on labels as malt
list any allergies or food intolerances to avoid
list foods to be substituted

Can eat fruit, vegetables, milk (chocolate and regular) [fill in]
list any special equipment or utensils that are needed

Avoid cross contimination with any breads or cereals. Food should be prepared on clean surface. Wash any pots. Only use clean metal utensils (etc.)

 

indicate any other comments about the childs eating or feeding patterns

there is also a food allergy action plan, but i dont think that one needs anything as it deals with epipens, etc

No epi pen is needed

also, a note from the nurse that the cafeteria manager sent me a copy of the menu for the whole month and wants me to know that if there is nothing she can eat on a certain day to let her know and she will be glad to fix whatever she needs.
thanks in advance for all your help
i am still new to this, and am learning..............

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    • Hi Michael and welcome The celiac diagnosis process can be a little confusing. Some time ago I tried to put together some info and links that may be of help:    The key point would be to stay on gluten until you and your doctors are satisfied that celiac has been excluded. In your case that may include another test with a more complete panel as CyclingLady says above. If you go gluten free independently during this time you risk invalidating the results and adding to uncertainty. The second suggestion would be that should you succeed in eliminating celiac as a diagnosis then you have nothing to lose from trying the gluten free diet. I tested negative on blood and endoscopy, but removing gluten resolved or greatly improved a whole load of symptoms including anxiety, depression and that feeling of not being right that you outline above.  I say greatly improved because I can still suffer from anxiety or depression, as anyone can, but if I do, they're nowhere near as severe as they were when I was consuming gluten.  In the meantime, one thing you could do is to keep a food journal to see if you can track any relation between what you eat and how you feel. It's good practice for if you later try the gluten free diet and you never know what you may learn.  This is a good site full of friendly help and advice. I hope you get the help you need  
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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
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