• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
shawna67

Biopsies, Inflammation In The Stomach Antrum & Celiac?

Rate this topic

Recommended Posts

Hi,

I had a colonoscopy, endoscopy, and series of small intestine biopsies yesterday at Beth Israel Deaconness Medical Center in Boston; besides the fact that the doctor doing the procedure was a total jerk with a rotten bedside manner and a very abrasive personality, the procedure went well; I did feel it though; I thought I'd be more knocked out than I was but I was awake through most of it; anyhow, I've been having symptoms of celiac disease for many years - very low iron stores (like 3.4), anemia, GERD, abdominal pain and bloating, weakness, fatigue, hair loss, etc... I went on a gluten-free diet for almost a year recently and noticed a remarkable improvement; I was instructed to go back on a regular wheat diet for about 6 weeks and then have these tests done including a biopsy; well, I went back on the wheat for about 4 weeks & had these tests done yesterday; i don't think 4 weeks is long enough to show any damage to my small intestine but the doctor insisted that it would show damage; anyhow, after the procedures yesterday he said he saw no evidence of celiac and doubts I have it; this is despite the fact that the biopsies take 2 weeks to process; he did find some polyps and an inflammation of the lining of the stomach antrum, which is the part of the stomach where food collects prior to passage into the small intestine; does anyone know whether celiac disease can cause inflammation of the antrum? it just seems coincidental to me that that area is inflamed & its right next to the small intestine. Also, what is it with these a**hole GI doctors who think they can treat patients like such crap? I've absolutely had it with such unsympathetic, arrogant, emotionally cold doctors. Any one else have terrible experiences with so-called specialists who are supposed to help you but instead treat you like its all in your head? Sorry for the rant but I'm just pissed off.

Shawn

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Oh boy could I rant along with you about doctors, as can most of us here. :(

Inflammation is common with celiac and can really appear just about anywhere in the body. Your doctor really can't tell you with any certainty until he gets the pathologists report back. Do make sure you get an actual copy of the report, some doctors just don't recognize celiac changes that are not total villi destruction but scalloping, an increase in Tcells and other findings can indicate that it is a likely diagnosis if the symptoms fit. Often the path will state that at the end of the report.

How did you do on the diet? Did it help the issues you were having? That is really the most important test when the diet is done strictly.

Share this post


Link to post
Share on other sites

Hi,

Thanks for your reply. I agree that inflammation from celiac can appear anywhere in the body; in fact, I read in a scientific journal recently that many celiac patients experience inflammation of the antrum, which is the same part of the stomach that is inflammed on me. I really think my doctor did the biopsy too prematurely. I was on a gluten-free diet for nearly a year and then only went back on the gluten for about 3 1/2 weeks before getting the biopsy done; frankly, I don't think he was interested in helping me & seemed biased against me; I'm afraid his bias might lead him to subjectively interpret the biopsy results as no celiac when it may be present; all I know is that I have all the symptoms of celiac disease; I've even had brain lesions, hair loss, and excessively low iron stores (currently they're 3.4). I was doing a lot better on the gluten-free diet; my stomach & sleep have been terrible since going back on the gluten.

Shawna

Oh boy could I rant along with you about doctors, as can most of us here. :(

Inflammation is common with celiac and can really appear just about anywhere in the body. Your doctor really can't tell you with any certainty until he gets the pathologists report back. Do make sure you get an actual copy of the report, some doctors just don't recognize celiac changes that are not total villi destruction but scalloping, an increase in Tcells and other findings can indicate that it is a likely diagnosis if the symptoms fit. Often the path will state that at the end of the report.

How did you do on the diet? Did it help the issues you were having? That is really the most important test when the diet is done strictly.

Share this post


Link to post
Share on other sites

I'm sorry to hear that your mother died at a young age of celiac related cancer & that you lost a brother; and that you went undiagnosed with celiac for so many years; I really wish doctors were better educated on celiac disease; it seems that most doctors know very little about the disease. They're so ignorant; its unbelievable.

Oh boy could I rant along with you about doctors, as can most of us here. :(

Inflammation is common with celiac and can really appear just about anywhere in the body. Your doctor really can't tell you with any certainty until he gets the pathologists report back. Do make sure you get an actual copy of the report, some doctors just don't recognize celiac changes that are not total villi destruction but scalloping, an increase in Tcells and other findings can indicate that it is a likely diagnosis if the symptoms fit. Often the path will state that at the end of the report.

How did you do on the diet? Did it help the issues you were having? That is really the most important test when the diet is done strictly.

Share this post


Link to post
Share on other sites

No matter what the doctor says you seem to know the answer. Hopefully you are now back on the diet and back on the path to healing. I know this sounds jaded but sometimes I think doctors will do anything to try and 'prove' that we don't need the diet but do need lots of pills. My 'favorite' doctor response after biopsy is 'well there are some changes that could be celiac but your villi are still intact so I don't think that is it. Why don't you continue to eat gluten and come back in a year. We will rebiopsy then and see. Oh and here is a script for your 'ulcer' pain and inflammation and just take immodium when ever you need to. Multiple daily doses won't hurt.' How much you want to bet you hear something similar when you go back to get the results.

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0