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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Where To Get Tested?
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2 posts in this topic

I am a celiac and finally was able to convince my sister to get tested after a year of nagging. She went to her doctor for the blood test, and all they would give her was a cholesterol test. She tried to explain that she needed the antibody panel, and they won't budge. Does anyone know where she can go outside of her doctor to get tested?

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    • First have you been tested for celiac? A blood test is needed to test for it. You can splurge on gluten or just have a half slice a bread a day but you have to keep eating it for the testing. 12 weeks for the blood test. 2 weeks for the endoscope where they will check your intestines for damage and take biopsies. Make sure you get the FULL celiac panel. I suffered from what seemed like minor symptoms since child hood that I never even linked to it....constipation, randomly vomiting after some meals I thought was normal, slowly degrading mental capacity, all kinds of little mental issues. degrading health (very slow). Bunch of random flags now that I think back on it.  But it did not go full blown huge symptoms til my 20s, sorta did something stupid and gave a shock to my immune system and kicked in the full on gene I guess. But it quickly went to MAJOR mental and nerve damage effects, basically I lost feelings in my hands sorta would randomly go turn into Mr. Hyde and start yelling screaming and punching things, I was constipated for 10+ days at a time, always gassy and bloated and randomly bed ridden with gut wrenching pains. We are all different in symptoms as it is a AI disease. But yes it can seem to ramp up from minor symptoms to much much worse and pronounced ones. If you do indeed have celiac then it is slowly damaging your insides every time your exposed, destroying the insides of your intestines. In my case it also causes my immune system to go after the nervous and brain, thus causing brain damage, confusion, and extreme irritability.
    • It took me 20 years or more Barry so I wouldn't claim any great insight on this  I had a 'eureka' moment, up until then I was walking around with multiple symptoms and not connecting any dots whatsoever. It is very, very difficult to diagnose and that's something that's reflected in so many of the experiences detailed here.  A food diary may help in your case. It helped me to connect the gaps between eating and onset. It could help you to track any gluten sources should you go gluten free. It is possible for your reactions to change over time. As to whether its celiac, that's something you could explore with your doctor, stay on gluten if you choose to go that way. best of luck! Matt
    • I took Zoloft once. Loved it until it triggered microscopic colitis (colonoscopy diagnosed it). Lexapro did the same. However, I have a family member who is fiagnosed celiac and tolerates Celexa well. 
    • Thanks for the update and welcome to the club you never wanted to join!  😊  
    • Jmg, I am glad you were able to come to the realisation that the culprit was in fact gluten. For me its not so simple. IBS runs in the family, as do several food intolerances. Its just in the last while that I can finally reach the conclusion that for me its gluten. The fact that it is a delayed effect-several hours after, made it harder.  Friday I had some KFC, felt great. Saturday evening felt sleepy, Sunday felt awful and my belly was huge.  I think I have gone from mildly sensitive to full blown celiac over the course of five years-if that possible. Thanks for all your help.
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