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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Imodium (sp?)

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Guest jhmom

Hi all :)

I just wanted to know if any of you use Imodium on a daily basis in addition to the gluten-free diet to help control your diarrhea? If so, does it help at all?

The reason I ask is because despite being gluten-free since Sept 2003 I continue to struggle with diarrhea every morning and sudden BM urges (cannot hold it at all).

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Hi Stacie,

Boy, have I been down that road....

Immodium, Lomotil (which I found out had gluten in it), everything under the sun the dr. gave me didn't work. I had permanent diarrhea for almost a decade! Sometimes 10 - 12 time a day. I also was not able to keep it in. I always had to stay close to the bathroom....

After years of this, my celiac dr. finally referred me to a professor at St. Michael's Hospital. He did a colonoscopy and sent several biopsies for testing. He suspected I had collagenous colitis, also known as microscopic colitis. Sure enough, the pathologist report said that is exactly what I had. If you google it, you will probably find what you read very familiar. The first treatment was a high dose of bismuth. 8 Pepto Bismol pills a day for eight weeks. That treatment apparently works for 35% of collagenous colitis patients. It didn't work for me. I am now on Budesonide and it has worked miracles for me. I almost took a picture of my first solid bm, I was so happy!!!

The next time you see your dr., perhaps ask him about collagenous colitis, it might be the reason your diarrhea is not going away....

Have a great day!


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