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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lymph Nodes
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3 posts in this topic

Reading about lymph system in GI tract, but we're not there yet with knowing.

Very concerning to see dd has had lymph node in each arm swollen and painful over the last 2-3 months.

She never told me, but she's had one swollen near her groin.

My worry is b/c of the occurrence of lymphoma with Celiac's.

Could it be something adrenal related? How would a doctor know?

Sorry for a similar post in one of my first posts in another thread. I wanted to separate this one symptom from the rest and see how familiar it is to anyone.

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If lymph nodes stay swollen for more than a week, you should go to see a doctor. It could just be an infection. They can test for that. And if not an infection, they can do a needle biopsy to find out. Please do not let fear keep you from acting. You always want to catch things as early as possible. Likely it is nothing, but you need to find out.

A friend of mine just took her daughter to the doctor a few weeks ago because she had 3 swollen lymph nodes on her neck. They ran tons of blood work and everything came back fine. They scheduled a biopsy, but before that date came, two had gone away and the other was shrinking. Turns out to have been nothing. But they were going to do the right thing.

You need to talk to a doctor.

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I agree, absolutely.

To justify a bit, I am dealing with an inadequate military health system that has failed me in this process for over 3 years- going on 4 with a diagnosis. We ran treating allergies here, mental health over at psychiatry, GI many times for no real outcome except for "wait and see", no one listened. I don't trust them. I'm not being overly whiny- they really have blown me off- her off, really.

Once the dx process is stable and we have a better idea of what we're looking at, hopefully the scope is enough (upper and lower), I am switching to Johns Hopkins Health, which is an option. It gets no better than that. If I switched my daughter now, the waiting game continues and I push this back further.

It's being brought up at the pre op on Wednesday this week.

I asked here because I've come to trust those who've had to go through it more than I do the incompetent doctors we've suffered through. Having a general idea when you walk in their door helps, knowing how things might be interconnected helps you do validate why you're asking them to investigate further. I've noticed I've needed to arm myself this way with them.

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