This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Lol!!! Well what the heck. I'm not entirely sure how the message boards figure out the algorithm sometimes.
however, the Advice was totally informative and I appreciate it!
I am a bit nervous about taking iron so I was thinking I would take a safe dose maybe every other day or so for a little while and ask my doctor To rerun the panel. a friend of mine is a PA and she told me thE amount I can safely take. I just hope my doc will be receptive to Re-running it because he told me the labs were within normal range Because the cutoff for ferritin was 13 and mine was 20. I have no idea why they ran it a year-and-a-half ago because I didn't ask and I wasn't feeling crummy but during the first gluten challenge they did an iron panel and that's when it was in the 70s. so I figure adding a bit more iron to my Already decent diet isn't going to hurt too much.
I did ask my primary care if it would be typical for somebody with a completely normal hemoglobin and red blood cell count to go anemic with an 18 hours of fasting. it was mild anemia wasn't severe obviously. I had a procedure done while I was in the hospital and you can watch my red blood cell count and hemoglobin drop while I was fasting. because they seem to Draw a CBC Like every 5 minutes in the hospital.
I was told after having a colonoscopy that Crohn's was ruled out. Of course I was told a lot of things!
I admire how active you are. I would love to be able to get up to a half marathon. I gave up exercising for 6 months last year to see if anything would help but it didn't so I just got back into it probably sometime in February. There are days when I really don't feel well and I'm not able to but there are days where I feel pretty good.
Your post has literally changed my attitude over my morning coffee today In a matter of minutes.
You have done a wonderful job summing up the experience of not only myself, and you as well, but my guess is probably a lot of people who come to this board.
I know from having some email conversations with researchers that even those in the gluten Community do not see eye-to-eye on all of this. So we certainly do have a long way to go.
As for the three months you're absolutely right, as I had already tried a strict diet for 2 or 3 months and still had a lot of symptoms. I think the doctor just wants to meet after 3 months to see if there's any Improvement, the test. But I'll give it a good 6 to 12 as you suggest. There is that lingering fear that nothing will get better and I'll continue to go undiagnosed with something sinister. it is hard not to think that way in my case. however, again, your post is giving me some hope. And even if that hope is not realistic at the very least it's a distraction for a little while which I need. And hey, it may just be the answer!
I am often on the fence about whether or not I should be bitching about my doctors. in reality, two of the things in life I would never want to be would be a doctor or a landlord. people really do look to doctors as if they are God. a friend of mine is a physician and told me that it's quite frustrating for doctors when they can't figure out what's wrong with the patient and they get burnt out. so I have a lot of respect for the Physicians who keep trying to find what's wrong and do so while being polite and courteous to the patient even though they may inside be feeling frustrated. I have absolutely no respect for the ones who fail to notice that there are recalls out on their models of the God complex.