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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Potatoe Chip Reaction!
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28 posts in this topic

Interesting thread. I have been unable to eat potatoes for nearly 6 years now. I get reactions to them and all other nightshades (tomatoes, peppers, eggplant, kava kava, etc) that are similar to my reaction to gluten - constipated, not diahrrea. Feels like my stomach and intestines are inflamed and hurt like they are very sunburned. Takes a couple of days to go away. Also migraines.

I was glutened recently and I couldn't tell if it was gluten or nigthshade ingestion at first. But then reviewed better what I ate and figured it out.

The only connection I have found is in the list on the Entero Lab web site - aparantly nightshade foods stimulate the immune reaction, and since gluten stimulates the auto-immune reaction, I wonder if there's a common ground here for more people. It's hard to find info about nightshade reactions though so I can't really explain why it happens, as I can a gluten reaction. Suffice to say it is not fun and makes me very ill.

Anyway, so it's possible it is the potato in the chips. I eat Terra chips now - the mixed veggie kind and the sweet potato kind, as sweet potato is not related to regular potato.

Stephanie

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Thanks for all your responses. I wish I could say that I felt better..........but I just don't. Between the fatigue, muscle pain, racing heart and of course the gut pain I don't know what to do to feel better.

I went to Columbia Presbyterian yesterday and saw Ann Lee and Dr Susie Lee. Both very knowledgable. I felt I was in good hands. A lot was discussed and we are going to do an endoscopy this friday morning at the hospital.

At first Dr Lee wanted me to do a Gluten challenge but I told her that I don't want to eat gluten for 2 weeks knowing how sick I could get. We decided to take a look inside even though I have been attempting gluten-free for about 4 months. I know this problem has been going on for a long time so maybe she will be abel to see something. At first I didn't want to do it because I fear them finding nothing and then appearing like a lunatic. Then I rationalized with myself. I feel better when I don't eat gluten. So regardless of what the biopsy shows I will not be going back to it. The dr also said that if I was not celiac it could be that being gluten-free just helped as it does so many other things like Crohn's....

So far being gluten-free has not been the cure all I dreamed of. So many other things bother me and it has been so hard to figure out. I've discovered that potatoes do me in ...sweet potatoes too! I used to always blamed it on something else that I had with the meal but then tried just eating a sweet potatoe and nothing else. Well 20 minutes later I was sooooooo sick. It happened a few times in one week and I was convinced! I no longer eat potatoes and have actually been avoiding all grains.

Ann Lee is the nutrionist and was more convinced than dr Lee that I had celiac. she immediately gave me info and tried to help with my diet. Today was an awful day....I took a Garlic supplement that I checked out and thought was safe. I took it on mon and seemed fine. Well today it did me in. my gut has been raw and burning all day....and not to be graphinc but something must have inflamed my nerve endings because after a BM the burning intensified and got worse all day. I feel like someone poured battery acid on me!

Needless to say...my appetite is always good and i had a nice dinner. Now I am so bloated and still suffering.

let's see what happens fri.

thanks,

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mela14 -- I also had a total hysterectomy about 10 years ago at a very young age (30's) I took hormone replacement through a little patch I wore on my fanny or tummy. I also had many gyno surgeries and suffered my entire life with endometriosis too. My Gyno doc by accident gave me a double dose of patches I wore for about a month prior to >>> I peeled off the patch at the same time I came down with my very first violent attack of celiac sprue 4-year ago and at the same time was under the most unbelieveable stress a human being can endure.

I have done some research that women who are post total hysterectomy have a higher rate of thyroid problem then any other illness. My gyno doc (a lady) said it's my thyroid making me ill giving me sprue. My throid doc (a lady) doesn't agree. It can all be confusing. We have to some how tune in and listen to our bodies I guess?

Have you had your thyroid levels checked? What are your other symptons? I felt like a motor was running when I was horizontal, hot or cold hyper or slow at times...

I can't do Garlic supplement it sets me over the edge too. If you would like I will share with you some of my symtons too. Just let me know.

Sending you well wishes!

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    • I don't see any gluten   
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    • I have checked statistics and over 80% of those tested for celiac come out negative, so it is a difficult thing to prove to begin with.   My test came out negative too, but I know I have dermatitis herpetiformis, my doctor diagnosed me even without an official test.   After I cut out gluten I felt like a totally new person, so to me that is proof enough.     I just went with my instinct and cut it out anyway even tho nothing was 100% proven, and I feel So much better!
    • Has the sister with thyroid issues been tested? Celiac and hypo or hashi's tend to go hand in hand. And for that matter you should be tested too. Celiac is a genetic issue. good luck!
    • Since you have to wait 2-4 weeks for the  endoscopy and you have to be having gluten for it, I'd go enjoy the July trip and then go gluten free after. If you're currently on a meat, potato, and veggies diet then relax because this is gonna be easy. If not you might want to switch to a meat, veggies, and potatoes diet at least for a while.   So here's what I found out regarding food:
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          Canyon bakehouse white bread makes fantastic toast. It has a very slight
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          Udis makes a good thin and crispy crust.
          Etalia makes a great New York crust. Pasta:
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          RP has a frozen pasta that I'm going to try next. Flour:
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