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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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ArtGirl

Nasonex Not Gluten-free

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Yesterday I was given a sample of Nasonex from the doctor for treating a sinus infection. Nothing in the ingredients list looked bad to me. So, I used it.

Bad choice. Am sick this morning and it feels a lot like a glutening.

So, (hindsight being so much better than foresight) I did a search on this forum for Nasonex. Found a 2007 thread and, sure enough, it is NOT GLUTEN FREE!

Here's the link if you want to read what they said...

http://www.glutenfreeforum.com/index.php?showtopic=36053

The manufacturer, when asked, said that they do use gluten ingredients in the formulation. I'm not going to call them because my gut reaction - pun intended :D - is enough to confirm this.

The poster did say that Nasacort AQ is gluten-free (at least, at the time of the post). I think I'll check with them first if the doctor switches me to that.

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I took Nasacort AQ up until about a month ago, and it was fine. I'm now on the generac for Flonase, which also seems to be ok.

I called Roxane Labs (the makers of the generic Flonase) and they refused to give me any ingredient information. My pharmacist also called and they wouldn't give it to her either--telling her to refer to the ingredient list on the package insert. The ingredient list matches Flonase exactly, so I gave it a try and have been fine with it.

I would like to tell Roxane where they can stick it, but my insurance company has a terrible prescription program and I'd have to pay full price for a brand name. <_< I have ETD, so I need the spray.

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Thank you for posting this. DS takes it for his allergies. He seems to think it helps but he doesn't sound like it helps enough. I wonder if it is wheat or barley that is the source of gluten. Ds reacted to wheat. I didn't even think to check on it because it's a nasal spray! I did check on the tablets he was prescribed. I'm going to call them, that way I can say that I verified it myself when we go in for the next check up with the allergist.

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Glad to be of help. That's why I started the thread, since the other one was no longer active being a year old.

When you do contact Schering about the Nasonex, would you post their reply in this thread. Thanks.

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Just talked with them and they gave the same resonse that everyone got. CYA . The operator has his statement to read and that's all he knows or can find out(not to knock him-that's all the company gives him). When I asked about if it was due to potential CC or gluten ingredients or sources of ingedients changing(ie. switching from corn to wheat) he said all of the above. I did ask if the gluten was potentially from wheat or barley and he couldn't say. It's interesting listening to the ingredient list, it makes you wonder if you really want to be putting that stuff in your body! Along with the starch(corn), there was another ingredient that is sometimes derived from plant seeds and when questioed about whether those could be gluten containing seeds the response was a CYA "yeah".

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It's my guess that the cellulose and citric acid would be a corn source, but could be from other grains. I suspect that they use whatever's the cheaper source at any given time, hense the "changing formula" statement that someone got from them last year.

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I have been using this all summer because I looked and it was on the gluten free meds website.(www.glutenfreemeds.com) Why would it be on the list? Does whoever creates that list even verify it before putting a list like that together. I have relied on it alot for medicines. Now I guess I know better! Very frustrating! Jodie

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I find it almost astonishing that any company would put top allergens in a product aimed at relieving allergies :o:huh:<_<:rolleyes: But when you see all the junk they put in meds, it gets sorta expected after awhile. Then they tell people not to trust herbal remedies!

A Google search for herbal antihistamines turns up tons of stuff.

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I have been using this all summer because I looked and it was on the gluten free meds website.(www.glutenfreemeds.com) Why would it be on the list? Does whoever creates that list even verify it before putting a list like that together. I have relied on it alot for medicines. Now I guess I know better! Very frustrating! Jodie

That's a sort of "portal" site, most likely because someone acquired the domain name, but didn't pay their bill. If a site like that gets enough hits, the registrar keeps it active with more-or-less generic stuff, just to take advantage of the traffic. I'd have to guess the content is generated automatically. It really isn't maintained by anyone. Nobody checks or verifies anything on it.

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I find it almost astonishing that any company would put top allergens in a product aimed at relieving allergies :o:huh:<_<:rolleyes:

I heartily agree! Boggles the mind!

As far as the drug lists are concerned, I never use them myself. I call and verify one way or the other. I've found things on the lists to be outdated, and I only have checked on a couple of things.

Lists of any sort are subject to change.

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Along with making my own inquiries, I also rely on others' experiences as relayed in this forum. (Just wish I had checked here first before using the spray!)

OFF TOPIC.... I just noticed RiceGuy's signature statement

A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies

LOL :D:D:lol::D:P

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That's a sort of "portal" site, most likely because someone acquired the domain name, but didn't pay their bill. If a site like that gets enough hits, the registrar keeps it active with more-or-less generic stuff, just to take advantage of the traffic. I'd have to guess the content is generated automatically. It really isn't maintained by anyone. Nobody checks or verifies anything on it.

At least as of recently that site was maintained by a pharmacist named Steve Plogsted. So where did you get your information about nobody checked anything?

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At least as of recently that site was maintained by a pharmacist named Steve Plogsted. So where did you get your information about nobody checked anything?

It's pretty simple to tell such a site. For one, just look at where all the links refer to:

searchportal.information.com

Then, each link has an absolutely huge query in it, so it's basically going to another site to searching for stuff. So it in itself doesn't have any verifiable info. Only predefined search links, probably based on the domain name or whatever the site was intended to be when it was "real".

Additionally, all the lists of links - left, top, and main body of the page, are basically the same things.

Finally, the lower set of searches are just "popular" searches, and not even related to gluten-free anything.

There are a lot of sites like this, which as I said, tends to happen when a site goes under financially.

Looking it up, I found that the site is kept online by maltuzi.com, which is a domain name holding company. The blurb on their home page basically says it all.

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I was unaware that Plogsted has stopped taking care of it.

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Oops, I wasn't paying close attention. I was talking about glutenfreedrugs.com, not glutenfreemeds.com. Yes, glutenfreemeds obviously is not actually being taken care of by anybody. However, Nasonex is listed as gluten-free at glutenfreedrugs as well.

richard

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I am sorry. It is www.glutenfreedrugs.com that I have the list for medications and such. And yes Nasonex is on there. Jodie

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Oops, I wasn't paying close attention. I was talking about glutenfreedrugs.com, not glutenfreemeds.com. Yes, glutenfreemeds obviously is not actually being taken care of by anybody. However, Nasonex is listed as gluten-free at glutenfreedrugs as well.

richard

OK. That can explain a lot. If enough people mistakenly type in the wrong address, the site gets enough hits, and that's all they care about. There are domain names which are purposely misspelled to take advantage of typos too.

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I am sorry. It is www.glutenfreedrugs.com that I have the list for medications and such. And yes Nasonex is on there. Jodie

The pharmacist who maintains the page has his contact info on there. Contact him with what you have learned.

Its hard to keep up with it - it may have been gluten free when he verified it.

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I spoke with someone from Nasonex today. What they told me is that they don't add any gluten and the ingredients they use don't contain gluten. That being said.... the ingredients come from other places and they have no guarantee of cross contamination from those sources. So they won't state that their products are gluten free. Most likely you won't get a reaction, however, I've had a reaction from a product that was manufactured on equipment that processed wheat.

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Most likely you won't get a reaction....

However, I did get a reaction. Apparently the incidence of cross contamination is real and probable with this product.

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Right there with you. We won't be using it in our house anymore. I'm getting so tired of playing Russian Roulette with food and meds. Try to be so carefu, but....

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This makes me so mad!!! I just posted about Provigil having gluten too. what can we do to either get drug companies to stop using allergens or at least disclose that they contain gluten so you don't take it. If foods have to be labeled with allergens, why not drugs ESPECIALLY?

If anyone has any ideas about this, let me know.

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. I'm getting so tired of playing Russian Roulette with food and meds. Try to be so carefu, but....

That's why I've come to rely more and more on this forum. Some are really good with research and post their findings. Others find out the hard way (like me with this product) and also post their results.

I don't know how celiacs managed before the internet and these kind of resources. Made a LOT of phone calls, I expect.

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When I called last month they said that the polysorbate 80 is made with wheat, and though they claim there is "no detectable amount of gluten in their product" they do not claim that nasacort aq is gluten free.

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When I called last month they said that the polysorbate 80 is made with wheat, and though they claim there is "no detectable amount of gluten in their product" they do not claim that nasacort aq is gluten free.

Makes perfect sense to me <_< Maybe a year or so (?) before I went gluten-free, my doctor at the time prescribed Nasonex for me and it caused pain under my ribs. At the time, I thought how odd that a nasal spray should cause that type of side effect. :unsure::rolleyes:

I even told my doctor about it, of course she had no idea why this would happen :blink: , but switched me to something else.

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