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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Seizure Like Attacks
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3 posts in this topic

Hi all.

I know that I am gluten and dairy intolerant due to Enterolab and I have one of the genes. I also have had indigestion, gas,pain bloating etc for as long as I can remember. I have been gluten and dairy free since October.

My problem is that I get these attacks once a month. They feel like a seizure .The last time happened after being at a Mexican restaurant with a friend on Saturday. I had shrimp fajitas with corn tortillas. A short time later my legs started shaking. Then my upper body started. I had diarrhea and then I started vomiting uncontrollably. Then I got palpitations and shortness of breath with anxiety. I was told that I have panic attacks but even when I take anti anxiety meds during an attack they last for at least 3 hours. I also have anti vomiting meds and that doesn't stop it either. I had to stay over my friends house since I live 45 minutes away and I was in no shape to drive home. I have had these attacks for ten years now. (I'm 48) They occur about once every month or so.

My Mom has had this since she was 20. She's now 80. She has osteoporosis and has had pancreatitis, bowel absceses, gall bladder surgery and diverticulitis.

Has anyone experienced this and had relief after a while on the diet? I'm guessing there was something wrong with the meal on Saturday. I really don't want to have a biopsy and I'm afraid to eat anywhere but at home at this point. It has been frustrating dealing with MDs. By the way I'm an RN. I can't figure out what else it could be but severe food intolerances.

Thanks for listening.

Sincerely,

June

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Hi June, I am so sorry! I have never heard of a reaction like that :o it must have been terrible! The only thing I could think of is a possible cross contamination issue. I am like you I do not eat out at all and if I do I bring it home. I learned my lesson after eating what I thought was a safe meal from Chick-fil-a while going out of town for the Christmas holidays. To make a long and gross story short, a trip that should have taken us 2 hours took 4 1/2!!!!!! ;)

I would stick to foods you know for certain are gluten-free for a month and see if it happens again.

Hang in there :)

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I get the anxiety part with the shortness of breath whenever I am glutened. They always told me to breathe into a paper bag because the shortness of breath leads to my anxiety starting because I can't breath right. Anyways I have never had a reaction like that. Have you talked with your doctor about it? When you get a gluten reaction do you normally vomit? You could have had a reaction to the food. I have heard of people shaking when they don't feel well but I'm not sure if it is to the degree you are talking about with your upper body starting to shake to. I would definately consult with a doctor just to get an opinion on it. Hope it gets better :D

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