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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm Expecting!
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19 posts in this topic

Hi all, just found out that we are expecting our 3rd child. I did not know I was Celiac with the first two. I was sick as heck with both pregnancies throwing up a few times a day. Here's my question, has anyone not known they were Celiac with one pregnancy then been gluten-free with another? I am just wondering if being gluten-free will help with my nausea and vomiting.

Also, how have you guys handled cravings for unsafe foods? I am dreading a Kripsy Creme craving........... :rolleyes:

Cheers!

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CONGRATS!!!!!!! Maybe you will crave things like.... fresh veggies and fruits :P

I do hope you have a wonderful healthy pregnancy!!! :D

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Awwwww! Congratulations on the new little one! Good luck with the pregnancy! I am sure you will do well with cravings!

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Congrats! I too didn't know I had celiac when pregnant. I think every pregnancy is different, at least that is the gist of things I get from most mom friends I have with 2+ kids.

I would doubt it was celiac making you sick throughout your first two preg's, unless you were like that non-preg too, yk? My preg was pretty smooth, in fact I felt better than I normally did (barring that first trimester exhaustion), and wasn't too nauseus and never got sick.

Hoping this preg goes smoothly for you :)

Merika

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I'm pregnant with my third also and by far this has been the easiest pregnancy. I'm not sure whether it is b/c this is my first gluten-free pregnancy or if it is b/c I took progesterone supplements during the first two, or because I did acupuncture for a little nausea I had early on, but I've felt good, yet tired.

I'll be so curious to see how breastfeeding goes with this one. I had horrible experiences with colicky kids the first two times. Both kids have fallen off the charts (by 9 mo and 6 mo. respectively). It will be interesting to see if this is a happy kid that gains weight with me not on gluten. Both my husband and I are gluten sensitive and carry DQ2/DQ1.

When are you due? I'm due Oct. 9.

Congratulations!

Elaine

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Woah, both you and your husband are glutensensitive and carry those genes? No isn't THAT something. So much for it to be rare. Did you read the article about the superceliac? That was something about the same thing. Both parents had the DQ2 and in that case DQ8. Can't recall, where I read it though. Are your other two kids celiac, too?

My husband and I will probably wait a little longer now, before we try it. Because his two years "not-being-deployed" are over now. And he thinks they'll send him to Irak soon. And I don't want to be pregnant and giving birth while he's gone. So that's why. Maybe he can come home for vacation sometimes in the middle of his "deployed" year, so we can try it then :rolleyes: . Oh, it's so exciting. I can keep you guys posted.

Hugs, Stef

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Hey all! Elaine, I am due Oct 14th our due dates are pretty close! I actually feel pretty good so far also.....meat makes me gag though, like I need one less food to be able to eat! Stef...my hubby is military also and we have been lucky enough to avoid any lengthy deployments around our last two due dates, so lets hope all goes well for this one!

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Hm, how is that anyway? Are the soldiers allowed to come home, when there is a due date with a pregnancy?

Oh, all that talking about cravings made me hungry for chocolate with hazelnuts. Oh!!!

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I dunno how it works for the soldiers, my hubby is AWACS (flies on the E-3) and as far as i know if he asked they would just have someone take his place if his deployment was during my due date. His deployment window is from May until August. Of course we STILL don't know where he'd be going!! Thats the worst part!

<_<

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Oh and so far no Krispy Kreme cravings!!! Just PINEAPPLE!! although onion rings with vinegar also sound really good right now! ugh....... :P

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Congratulations to both of you!!! You can compare notes since both of you are so close in due dates...

I have never been able to gain weight above my "normal"..... When I asked my GI why my body gained sooo much weight for my pregnancies even though I was on gluten for all of them (first pregnancy - over 70 lbs, second pregnancy 48 lbs, third pregnancy (twin pregnancy) 50 lbs (they were nine weeks early.....), my GI, who is a professor who specialized in celiac, stated that in his experience, for some reason Celiac seems to be really kind to a pregnant woman.....

Happy craving, folks!!!!!

Karen

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Congrats guys! I'm due Oct. 16! I gotta tell you, the nausea hasn't been easier this pregnancy (my 4th), but I'm also on prometrium, so, that might explain that. And yes, I am craving all the gluten-filled goodies! :( And being a tad bit more emotional than usual (!) doesn't help. We bought pizza and subs for the kids and my hubby this weekend and I actually cried while they ate it! :huh: I laugh now, but it's really hard when all you want to eat is hamburgers, fried chicken, and pizza. And my taste buds are REALLY PICKY right now. gluten-free food is not my craving if you catch my drift. I had to disquise my gluten-free waffles by dipping them into scrambled egg and sprinkling with cinnamon sugar (don't dip too long though, they fall apart) then cooking them like french toast. I can't even tell it's a waffle, or that it's gluten-free when I do that. Maybe the egg-i-ness does that, but it's VERY good! And meat? <_< Ew! I have to disquise that too! I have to fry my fish and douse with tartar sauce. Today I'm making chuck wagon stew which is so spicy, you can barely taste the beef. Tomorrow I'm making american chop suey which ought to disquise the rice pasta and hamburg enough for me, and chicken stew I cook so long that the meat isn't quite as gamey and takes on some of the spices' flavors too. Every week I make something different (so far). Oh, and for snacks, we always used to make microwave popcorn, but lately? Ug! I can't stand the taste of the butter OR the smell! So....we're making it from scratch. I never cooked much, and when I'm pregnant I hate it even more, but being gluten-free has meant cooking MOST of the day! Like I'm not tired enough!

:lol: Geez, I didn't realize how negative this post is! Don't mean to make you worry more, but look at it this way, if you end up like me, maybe you can adopt some of these ideas!

I do hope you have a nausea-free and gluten-craving-free pregnancy! Remember it's only 9 months (it's only 9 months.....it's only 9 months.....it's only 9 months......) :lol: Mark your calendar every now and then for landmarks. I'm on 9 1/2 weeks (wasn't that a movie? don't think it was about pregnancy though :unsure: )

Blessings!

-donna

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Yeah, don't know where they are going is really bad. I sometimes sit here thinking: "...don't let it be Irak...don't let it be Irak...".

I didn't know how many women in here were pregnant. Wow! I hope, when I'm pregnant, there will be some other "fellow-celiacs" pregnant in here, too. So we also can compare. But well... Congratulations to you all and keep us posted about how you're doing :)

Hugs, Stef

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Hi all...I am also a pregnant celiac. I am due Oct 18th...it sounds like Oct is going to be a big baby month!! I was pretty sick for the first few weeks but things seem to be settling down now and except for always being tired I have been feeling pretty good.

This is my first pregnacy so I was excited to find a site where there are other celiacs having babies. The fact that most of you have already had one or two others is really comforting. I was worried that even though I have been gluten-free for 5 years now that if I was accidentally exposed to even a small amount of gluten the baby would suffer from developmental problems. Knowing that you have manged multiple births, both on and off gluten-free diets, has made me much more confidant that my baby will also be fine...THNAK YOU!!

I was suprised to find that I am also having trouble stomaching meats, especially hamburger. Usually hamburger is a staple in my diet, it is safe to eat out and versitale to cook with at home, but even before I knew I was pregnant the taste, smell, even the sitght of hamburger has made my stomach turn. Conversly, I find myself craving fruit, something I usually don't eat that much of. At this point, as long as I have apples, applesauce, and grapes I am fine. I just hope it stays this way, I dread waking up dying for a brownie and knowing there is no way of getting one...I guess we all just have to keep our fingers crossed and hope we don't find ourselves wanting all the forbiden gluten filled delicaies!!

I am really looking forward to "checkin-in" on this site and being able to compare my experiences with those of you who are due right around the same time. Any advice or intresting tidbits you want to share will be greatly appriciated!!!

Congrats again to all the pregnant mommies!!

Megan

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Ladies,

It's so wonderful to find a community of other pregnant celiacs! I am due slightly before most of you (Sept 30) with my first one. There are dozens of miscarriages and complicated pregnancies in my family so my husband and I always assumed we'd end up adopting. We'd just begun looking into those options when I got pregnant! I have made it into my second trimester and am starting to feel more confident that everything is going to be okay. We have our diagnostic ultrasound on May 10. I can't wait to find out that everything is okay and know what sex the baby is. I get so sick of calling it the baby! I have heard that babies can be diagnosed from birth through cord blood. Does anyone have any experience with that?

I had some serious food aversion in my first trimester but now have little appetite at all. I make myself eat to make sure baby is getting everything it needs but haven't suffered from cravings too much so far.... I recently found a Thai restaurant near my house that has been very helpful with the gluten-free diet. Their chicken satay (with gluten-free peanut sauce) is quickly becoming a staple! Yummy - protein I don't have to cook!

I have been SO TIRED! And everytime I try to cook I end up with ingredients all over my belly or with a burn from my belly hitting our cheap oven. I'm not so graceful as my belly grows... THis gets better, right?

Thanks for letting me know there are a bunch of us out there!

Megan

Oceanside, CA (but fortunate not to have a spouse in the military like most of my neighbors...)

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My first grandbaby is due Oct 28, does that count for anything?!? It looks like we will have a fantastic baby-time this fall! Keep us all posted on how things are going for you all!

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Hi, not expecting yet, but in the process sometime soon. I asked my nutritionist about it (she works at a celiac center) told me to take regular adult multivitamin, vit b complex (which contains 400mcg of folic acid - all you need) and 1500 mg of calcium a day (works out to 500mg three times a day). If you need extra iron by tests, they can always add it.

I get them all at whole foods- their "365" brand. they all say gluten free on the label.

Just some other thoughts besides the typical prenatal

Congrats and good luck!

Linda

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I just found out I am expecting my 3rd as well. I was diagnosed last September so my first two were also not gluten-free (although I have never had symptoms). I threw up quite a bit with my first two but it didnt start till 7 weeks so I am just waiting to see what happens! I got all my blood work done and my antibodies were negative and all my iron, b12 etc were normal so I feel better about things. I am due in Febuary.

I am so hungry and NOTHING sounds good. I have to force myself to eat right now (oh why couldnt I feel that way before I was pregnant). I usually am a huge sweets person but I can't even look at it right now.

My first two pregnancies were pretty normal till the last 4 weeks when I got a horrible rash (mainly on my stomach and chest). They said it was a hormonal thing that some pregnant women get but I have to wonder now if it was actually DH. Should be interesting to see if I get it again. I so hope not, I would scratch till I was black and blue and bleeding. Yikes, you forget that stuff once you have the baby!

Hope everyone is feeling good!

Stephanie

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    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
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