• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sore Legs And Buttocks...
0

7 posts in this topic

I am investigating the possibility that I may have Celiac disease. I have many similar symptoms and have been very ill for four months. (fatigue, numbness/tingling, blood blisters in my mouth). I have seen every type of specialist there is and have had many MRI's, CT's, blood testing and some Autoimmune testing as well - without a diagnosis.

I have had extremely sore legs and buttocks (muscle soreness) amongst other symptoms that match this disease. I am curious as to what type of soreness in legs and buttocks others have experienced to see if it is similar? My muscle strength is fine in short bursts, but my legs and buttocks feel very sore - the feel like I have just finished a long marathon and are very achy. Is this what others have experienced as well?

Thanks for reading! :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I would get muscle/joint aches as well. My son would have terrible leg cramps.

0

Share this post


Link to post
Share on other sites

I had the wierdest ache in my hands/wrists that went away shortly after going gluten-free. My legs also felt tired and heavy.

0

Share this post


Link to post
Share on other sites
I am investigating the possibility that I may have Celiac disease. I have many similar symptoms and have been very ill for four months. (fatigue, numbness/tingling, blood blisters in my mouth). I have seen every type of specialist there is and have had many MRI's, CT's, blood testing and some Autoimmune testing as well - without a diagnosis.

I have had extremely sore legs and buttocks (muscle soreness) amongst other symptoms that match this disease. I am curious as to what type of soreness in legs and buttocks others have experienced to see if it is similar? My muscle strength is fine in short bursts, but my legs and buttocks feel very sore - the feel like I have just finished a long marathon and are very achy. Is this what others have experienced as well?

Thanks for reading! :)

My butt and my legs are ALWAYS sore! I feel like I'm always riding horses even though i've never ridden a horse in my life! :lol:

But i also experience two different types of soreness/pain in my legs.

Do you have numbness/tingling in your legs?

The pain I feel from my leg numbness/tingling is a lot different from regular, running, sore, but it's a pain that is somewhat similar.

Also, my back gets sore. :huh:

I am not a diagnosed Celiac, but I share the symptoms you listed.

I wish you good luck in the longer diagnosis process ahead!

0

Share this post


Link to post
Share on other sites
My butt and my legs are ALWAYS sore! I feel like I'm always riding horses even though i've never ridden a horse in my life! :lol:

But i also experience two different types of soreness/pain in my legs.

Do you have numbness/tingling in your legs?

The pain I feel from my leg numbness/tingling is a lot different from regular, running, sore, but it's a pain that is somewhat similar.

Also, my back gets sore. :huh:

I am not a diagnosed Celiac, but I share the symptoms you listed.

I wish you good luck in the longer diagnosis process ahead!

Riding horses is a great analogy. ;-) My legs are very sore but not numb or tingling. I had major burning sensations in my arms and my face feels numb and tingly for the most part all my symptoms are very "neurological" - thankfully I have been cleared of any neurological issues after massive investigations. I was also getting waves of extreme weakness, best described as a low blood sugar feeling (but of course my blood tests were fine). All very bizarre to me as up until 4 months ago I was as healthy as a horse (sticking with the theme). What are you dealing with and have you come up with any conclusions?

Have you check out Myasthenia Gravis and Lyme's disease?

0

Share this post


Link to post
Share on other sites
Ads by Google:


Riding horses is a great analogy. ;-) My legs are very sore but not numb or tingling. I had major burning sensations in my arms and my face feels numb and tingly for the most part all my symptoms are very "neurological" - thankfully I have been cleared of any neurological issues after massive investigations. I was also getting waves of extreme weakness, best described as a low blood sugar feeling (but of course my blood tests were fine). All very bizarre to me as up until 4 months ago I was as healthy as a horse (sticking with the theme). What are you dealing with and have you come up with any conclusions?

Have you check out Myasthenia Gravis and Lyme's disease?

Haha, Horses are good for a lot of things. :D

I've never heard of Myasthenia Gravis before, so I just checked it out.

It doesn't sound like anything I am feeling/experiencing, except the drooping eye.

But my therapist believes i am suffering from peripheral neuropathy; like you, my face feels numb and tingly, and i have burning sensations in hands and feet, which has a huge connection with Celiac Disease. I am still waiting for my insurance to send me my referrals to see a neurologist and a gastroenterologist to begin my testing, though.

I was diagnosed with hypoglycemia when I was younger, so I already watch my blood sugar level.

I started another thread a week ago on this forum about the connections between Celiac and "Complex Migraine Syndrome", where i said some of the more bothersome symptoms i am suffering from.

But I am wondering---what caused you to narrow your focus into celiac disease? And have you tried going on a gluten-free diet?

0

Share this post


Link to post
Share on other sites
Haha, Horses are good for a lot of things. :D

I've never heard of Myasthenia Gravis before, so I just checked it out.

It doesn't sound like anything I am feeling/experiencing, except the drooping eye.

But my therapist believes i am suffering from peripheral neuropathy; like you, my face feels numb and tingly, and i have burning sensations in hands and feet, which has a huge connection with Celiac Disease. I am still waiting for my insurance to send me my referrals to see a neurologist and a gastroenterologist to begin my testing, though.

I was diagnosed with hypoglycemia when I was younger, so I already watch my blood sugar level.

I started another thread a week ago on this forum about the connections between Celiac and "Complex Migraine Syndrome", where i said some of the more bothersome symptoms i am suffering from.

But I am wondering---what caused you to narrow your focus into celiac disease? And have you tried going on a gluten-free diet?

I am sure the insurance delays must be frustrating. It is scary being ill and not knowing what the cause is - I am with you on that one!

I am in Canada, but our medicare system is so over burdened that there are long waits here. I did a combination of public and private (pay) care to advance my testing. What ever it takes I suppose. :angry:

I just read your other thread and saw that you are only 16! You seem very mature for your age - I suppose all this illness makes you grow up fast. I hope you get some answers soon and good on you for seeking help through forums like this. I think they are great.

Reason for thinking Celiac...

I have seen two Neurologists, two internal medicine specialists and a Rheumatologist. Since they have not been able to find a diagnosis I have been doing a lot of research myself. The other week I had three blood blisters on the inside of my cheek and after investigating on the net, came across Celiac disease. I never thought it possible that it could cause such neurological symptoms and it is my only lead at this point. I will be seeing my GP on Monday to ask for some blood tests. But I understand they are not always very accurate - but worth a try. I plan on starting a gluten free diet soon to see if it brings relief.

I have found some relief in Chinese medicine/acupuncture and am also trying a new homeopathic approach where they determine remedies based on live blood analysis. I will let you know if that pans out/helps.

Take care!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,464
    • Total Posts
      930,717
  • Member Statistics

    • Total Members
      63,892
    • Most Online
      3,093

    Newest Member
    Days with Grace
    Joined
  • Popular Now

  • Topics

  • Posts

    • Feeneyja, This will be a little long but I will  try to be brief as possible. See this discussion thread that talks about how Pellagra is often diagnosed as other disease's today because doctor's rarely recognize it today in a clinical setting. Pellagra's is described as the 3 D's if you don't count the 4th D of death if it goes long enough and is not diagnosed in a timely manner. Dementia (Neurological) Digestive (GI problems), Dermatitis issues (Ezcema, Psorsias, Acne etc.) According to mdguidelines website http://www.mdguidelines.com/pellagra indicates that quoting “The diagnosis of pellagra is straightforward when the classic rash is present but may be elusive if there are only gastrointestinal and/or neurological manifestations.” And why I believe in many cases Pellagra goes undiagnosed today.  Because doctor's have forgotten how it presents. A longer researcher article about the neurological presentations of pellagra mention the many ways a Niacin deficiency can present itself. Here is the link https://www.hindawi.com/journals/cggr/2012/302875/ and I will quote some of the neurological/dementia related symptom's of an undiagnosed pellagra patient. "Mental symptoms were wider than dementia, in that depression, fatigue, psychomotor retardation, mania, obsessions, and a whole range of psychoses with auditory and visual hallucinations were well described, along with personality change and sociopathic and drug and alcohol addictive behaviours. Panic disorders were seen as was a general inability to deal with physical or mental stress. Poor brain development such as hydrocephalus or cerebral palsy was also common. Acute delirium or even coma occurred, with some patients having myoclonus and other extrapyramidal signs reminiscent of the spongiform encephalopathies. The dementias of pellagra included features akin to Lewy body, Alzheimer’s, frontotemporal, vascular, and prion diseases. Parkinsonism was also common and a festinant gait was first described in pellagrins. Tremors of various descriptions, including asymmetric rest tremors, were noted and some patients had typical paralysis agitans. Pellagrins had a characteristic expressionless facies, so some signs of parkinsonism were present in most cases. Many features of pellagra closely resemble the nonmotor aspects of PD. The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." It is me again. You can see the neurological symptom's of Pellagra are severe and wide ranging. Taking Niacinamide 3/day for 6 months can alleviate many of these symptom's if your daughter has subclinical pellagra and the doctor's don't know to look for it. I had deep depression for many, many years and I shudder to think now that only a Vitamin could of helped me 30+ years ago and the doctor's didn't know to look for it. Shoot it isn't just Niacin.  All B-Vitamin's help your stress levels.  IF you have stress B-Vitamins can help your stress levels. I take Folic Acid for Blood pressure problems and it keeps my BP with in a normal range. A article on celac.com discussed this topic in detail a few months ago. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html I hope it is helpful.  Good luck on your continued journey. If you have never heard of Pellagra you are not alone. Dr. Heaney discusses why this is so in his online article Pellagra and the 4 D's. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ If you don't have time to read the whole hindawi article I also suggest this shorter but informative blog about why a Niacin deficiency can cause dementia related conditions. https://pellagradisease.wordpress.com/ Then decide for yourself and your daughter's sake to decide whether to take Niacinamide or not to see if it helps the D's symptom's she is experiencing (Digestive, Dementia etc.) The International Journal of Celiac Disease makes note of this in their research that Pellagra could be contributing to symptom's being diagnosed as Celiac disease today instead of a possible (co-morbid) Pellagra that causes the same symptom's. When they discuss how Pellagra and Celiac disease are related (Co-Morbid) in a Celiac diagnosis are surprised to find that in 58% of Celiac's -- can also be diagnosed with Pellagra. See this link http://pubs.sciepub.com/ijcd/3/1/6/ Quoting 3. Pellagra and celiac disease "The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]." If one is being diagnosed incorrectly the other co-morbid conditions can continue to cause Celiac like symptom's. But if the majority of those who have been diagnosed as Celiac could be helped by taking Niacinamide I see no you reason you shouldn't try it. Or at least research it some more. Again good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
    • Read this posted on the FDA.gov site: https://www.fda.gov/food/guidanceregulation/guidancedocumentsregulatoryinformation/allergens/ucm362880.htm
    • Color me confused.  I went to Costco yesterday and there were 2 products there that had GLUTEN FREE plastered on the box but then in the ingredients was a: May contain wheat. How is this possible?  How can they still put gluten-free on the box?  We should be able to trust gluten-free labeling no?? And second question:  How many of you would still buy that item?  I REALLY wanted to buy the Island Way Sorbet for my daughter as it is her FAVE.  But I didn't want to take the risk.  Maybe when she is healthier?  I mean it is SORBET?! LOL So frustrating!
    • JMG I have never laughed so hard! This was the best epic comment I've read! Thankyou so much!  Your all teaching me so much! Love the 'my glass to go' idea!! I will be adopting this... can't believe the mucky glasses we must be drinking from! Shocking!  Im still baffled how so many people don't understand cross contamination i.e. The crumbs on the work surface to cut the lime for your tasty beverage!  Your all amazing Thankyou x
    • Yes!  I never really had GI symptoms, but I did have palpitations and restless leg syndrome from anemia.  These went away within the first month. But myalgia and joint aches aren't better after 1 year.  Waiting to get my antibodies re-tested and see if they're negative.....
  • Upcoming Events