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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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callctr2000

Sore Legs And Buttocks...

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I am investigating the possibility that I may have Celiac disease. I have many similar symptoms and have been very ill for four months. (fatigue, numbness/tingling, blood blisters in my mouth). I have seen every type of specialist there is and have had many MRI's, CT's, blood testing and some Autoimmune testing as well - without a diagnosis.

I have had extremely sore legs and buttocks (muscle soreness) amongst other symptoms that match this disease. I am curious as to what type of soreness in legs and buttocks others have experienced to see if it is similar? My muscle strength is fine in short bursts, but my legs and buttocks feel very sore - the feel like I have just finished a long marathon and are very achy. Is this what others have experienced as well?

Thanks for reading! :)

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I would get muscle/joint aches as well. My son would have terrible leg cramps.

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I had the wierdest ache in my hands/wrists that went away shortly after going gluten-free. My legs also felt tired and heavy.

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I am investigating the possibility that I may have Celiac disease. I have many similar symptoms and have been very ill for four months. (fatigue, numbness/tingling, blood blisters in my mouth). I have seen every type of specialist there is and have had many MRI's, CT's, blood testing and some Autoimmune testing as well - without a diagnosis.

I have had extremely sore legs and buttocks (muscle soreness) amongst other symptoms that match this disease. I am curious as to what type of soreness in legs and buttocks others have experienced to see if it is similar? My muscle strength is fine in short bursts, but my legs and buttocks feel very sore - the feel like I have just finished a long marathon and are very achy. Is this what others have experienced as well?

Thanks for reading! :)

My butt and my legs are ALWAYS sore! I feel like I'm always riding horses even though i've never ridden a horse in my life! :lol:

But i also experience two different types of soreness/pain in my legs.

Do you have numbness/tingling in your legs?

The pain I feel from my leg numbness/tingling is a lot different from regular, running, sore, but it's a pain that is somewhat similar.

Also, my back gets sore. :huh:

I am not a diagnosed Celiac, but I share the symptoms you listed.

I wish you good luck in the longer diagnosis process ahead!

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My butt and my legs are ALWAYS sore! I feel like I'm always riding horses even though i've never ridden a horse in my life! :lol:

But i also experience two different types of soreness/pain in my legs.

Do you have numbness/tingling in your legs?

The pain I feel from my leg numbness/tingling is a lot different from regular, running, sore, but it's a pain that is somewhat similar.

Also, my back gets sore. :huh:

I am not a diagnosed Celiac, but I share the symptoms you listed.

I wish you good luck in the longer diagnosis process ahead!

Riding horses is a great analogy. ;-) My legs are very sore but not numb or tingling. I had major burning sensations in my arms and my face feels numb and tingly for the most part all my symptoms are very "neurological" - thankfully I have been cleared of any neurological issues after massive investigations. I was also getting waves of extreme weakness, best described as a low blood sugar feeling (but of course my blood tests were fine). All very bizarre to me as up until 4 months ago I was as healthy as a horse (sticking with the theme). What are you dealing with and have you come up with any conclusions?

Have you check out Myasthenia Gravis and Lyme's disease?

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Riding horses is a great analogy. ;-) My legs are very sore but not numb or tingling. I had major burning sensations in my arms and my face feels numb and tingly for the most part all my symptoms are very "neurological" - thankfully I have been cleared of any neurological issues after massive investigations. I was also getting waves of extreme weakness, best described as a low blood sugar feeling (but of course my blood tests were fine). All very bizarre to me as up until 4 months ago I was as healthy as a horse (sticking with the theme). What are you dealing with and have you come up with any conclusions?

Have you check out Myasthenia Gravis and Lyme's disease?

Haha, Horses are good for a lot of things. :D

I've never heard of Myasthenia Gravis before, so I just checked it out.

It doesn't sound like anything I am feeling/experiencing, except the drooping eye.

But my therapist believes i am suffering from peripheral neuropathy; like you, my face feels numb and tingly, and i have burning sensations in hands and feet, which has a huge connection with Celiac Disease. I am still waiting for my insurance to send me my referrals to see a neurologist and a gastroenterologist to begin my testing, though.

I was diagnosed with hypoglycemia when I was younger, so I already watch my blood sugar level.

I started another thread a week ago on this forum about the connections between Celiac and "Complex Migraine Syndrome", where i said some of the more bothersome symptoms i am suffering from.

But I am wondering---what caused you to narrow your focus into celiac disease? And have you tried going on a gluten-free diet?

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Haha, Horses are good for a lot of things. :D

I've never heard of Myasthenia Gravis before, so I just checked it out.

It doesn't sound like anything I am feeling/experiencing, except the drooping eye.

But my therapist believes i am suffering from peripheral neuropathy; like you, my face feels numb and tingly, and i have burning sensations in hands and feet, which has a huge connection with Celiac Disease. I am still waiting for my insurance to send me my referrals to see a neurologist and a gastroenterologist to begin my testing, though.

I was diagnosed with hypoglycemia when I was younger, so I already watch my blood sugar level.

I started another thread a week ago on this forum about the connections between Celiac and "Complex Migraine Syndrome", where i said some of the more bothersome symptoms i am suffering from.

But I am wondering---what caused you to narrow your focus into celiac disease? And have you tried going on a gluten-free diet?

I am sure the insurance delays must be frustrating. It is scary being ill and not knowing what the cause is - I am with you on that one!

I am in Canada, but our medicare system is so over burdened that there are long waits here. I did a combination of public and private (pay) care to advance my testing. What ever it takes I suppose. :angry:

I just read your other thread and saw that you are only 16! You seem very mature for your age - I suppose all this illness makes you grow up fast. I hope you get some answers soon and good on you for seeking help through forums like this. I think they are great.

Reason for thinking Celiac...

I have seen two Neurologists, two internal medicine specialists and a Rheumatologist. Since they have not been able to find a diagnosis I have been doing a lot of research myself. The other week I had three blood blisters on the inside of my cheek and after investigating on the net, came across Celiac disease. I never thought it possible that it could cause such neurological symptoms and it is my only lead at this point. I will be seeing my GP on Monday to ask for some blood tests. But I understand they are not always very accurate - but worth a try. I plan on starting a gluten free diet soon to see if it brings relief.

I have found some relief in Chinese medicine/acupuncture and am also trying a new homeopathic approach where they determine remedies based on live blood analysis. I will let you know if that pans out/helps.

Take care!

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