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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Canker Sores And Finger Blisters
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17 posts in this topic

Hello,

Does anyone else get severe canker sores (covers inside of cheeks, tongue, roof of mouth, etc.), blisters on their lips and blisters on their fingers? I get an outbreak like this once every 3 or 4 months, and I'm down for 3-4 weeks each time. I have been led to believe tht I have an allergy to caffeine, so i avoid it like the plague. But, after reading more about Celiacs, and looking at other symotoms in my life, I think I may need to go gluten free. Anyone else have a silimar experience? Thank you.

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Canker sores are one of the documented symptoms of Celiac. I get them all the time. I am currently being investigated for Celiac (biopsy on wednesday) and I am also undergoing testing for primary immune deficiency disease, because of my chronic infections (ears, sinuses, throat, etc).

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I always had canker sores on and off--and for about the last 6 months before I was diagnosed I had odd "blisters" on my fingers and the inside of my forearm. They were not painful, but very itchy-- a lot like a chicken pox type blister.

Both have disappeared since going gluten-free.

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I had blisters on my fingers and palms of hands. They ate half of my hand. They got so bad I could only use my index finger and thumb. I had to use steriod cream at that point to heal them. It was awful. I stopped eating wheat and they went away. I rarely get them now and if I do it is very minor.

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Thank you everyone for your feedback. This is very interesting. I visited my family doctor today, and had a series of blood tests done, including the one for Celiac. I will get my results next week, and will hopefully learn the cause of my sores! Thanks again!

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Canker sores are one of the documented symptoms of Celiac. I get them all the time. I am currently being investigated for Celiac (biopsy on wednesday) and I am also undergoing testing for primary immune deficiency disease, because of my chronic infections (ears, sinuses, throat, etc).

Good Luck tomorrow LIS_Guy. :)

I get my blood results back next Tuesday.

After the pain and hell of these breakouts, I am hoping I have finally found my answer.

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I had blisters on my fingers and palms of hands. They ate half of my hand. They got so bad I could only use my index finger and thumb. I had to use steriod cream at that point to heal them. It was awful. I stopped eating wheat and they went away. I rarely get them now and if I do it is very minor.

Fedora,

Were the blisters on your hands filled with a clear liquid, and start out looking like little bubble? I am anxiously awaiting my blood tests. Still have a week to wait. I have 19 finger blisters at the moment, and just want to itch my hand off!!! Thank you for sharing your info. Angie

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Canker sores and especially finger blisters are among the symptoms that went away when I stopped eating gluten and come back when I get glutened.

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I also had a real problem with canker sores which has mostly gone away since going gluten free. I pretty much tried every product on the market to help with them. Here are some recommendations if you're still suffering:

Canker Cover -- this is a patch that goes in your mouth and slowly dissolves in about 8 hours. I recommend using this only at night as it makes it a little difficult to speak and eat.

Canker Rid (from Durham's Bee Farm) -- This is a bit messy and hard to apply, but it definitely works. Just a warning that it's painful when first applied, but the pain goes away quickly.

Orabase Soothe N Seal -- This is basically glue that dries over the sore and protects it. This is fairly easy to apply and it works, but it doesn't seem to last for too long.

I don't recommend any of the pain-numbing gels as they only work for a few minutes and irritate the sore when they're being applied.

Regards,

Ted

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I also had a real problem with canker sores which has mostly gone away since going gluten free. I pretty much tried every product on the market to help with them. Here are some recommendations if you're still suffering:

Canker Cover -- this is a patch that goes in your mouth and slowly dissolves in about 8 hours. I recommend using this only at night as it makes it a little difficult to speak and eat.

Canker Rid (from Durham's Bee Farm) -- This is a bit messy and hard to apply, but it definitely works. Just a warning that it's painful when first applied, but the pain goes away quickly.

Orabase Soothe N Seal -- This is basically glue that dries over the sore and protects it. This is fairly easy to apply and it works, but it doesn't seem to last for too long.

I don't recommend any of the pain-numbing gels as they only work for a few minutes and irritate the sore when they're being applied.

Regards,

Ted

Hi Ted,

Thank you for your recommendations. I tried that Canker Cover last week, and I think it would be great for individualized sores. My entire mouth, and lips are covered in ulcers, so i'd need a Canker Blanket! I did however put 6 of those patches in one spot, and it did help there. But, I cant imagine a whole mouth of those things! (They puff up, and get jelly-like).

I may try some of your other topical ideas.

Thanks again,

Angie

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I grew up with canker sores always in my mouth. ALWAYS! My mom would bug the dentist about things to help. I was six, eight, ten, etc. and hardly had a brake from the things. Once I went gluten free, they were gone and stayed gone. I now get them if I get glutened sometimes and I also get ones that are random and far apart like normal people. It was definitely one of my symptoms.

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I grew up with canker sores always in my mouth. ALWAYS! My mom would bug the dentist about things to help. I was six, eight, ten, etc. and hardly had a brake from the things. Once I went gluten free, they were gone and stayed gone. I now get them if I get glutened sometimes and I also get ones that are random and far apart like normal people. It was definitely one of my symptoms.

SeMeCl,

Wow, thank you for sharing your experiences. I am at my witts end with these darn things. And just today I was told by a nurse, "Oh those aren't one of the symptoms of Celaics." I wish she could see this forum!!

Thank you.

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I had plenty of canker sores when I was young. Not so much anymore. No blisters, but I have had a big problem with the skin on the end of my fingers cracking, usually when it is cold. My GI does not think it's related, but since going gluten-free, I rarely get them, and when I do they are not as severe.

Walt

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Yes!!

I know when I've been glutened because I get really painful canker sores. It's the tell-tale sign for me.

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Hello,

Does anyone else get severe canker sores (covers inside of cheeks, tongue, roof of mouth, etc.), blisters on their lips and blisters on their fingers? I get an outbreak like this once every 3 or 4 months, and I'm down for 3-4 weeks each time. I have been led to believe tht I have an allergy to caffeine, so i avoid it like the plague. But, after reading more about Celiacs, and looking at other symotoms in my life, I think I may need to go gluten free. Anyone else have a silimar experience? Thank you.

I almost forgot about the finger blisters my hubby used to get (he's been dx with celiac disease 4 yrs now).....not DH, but huge angry red eruptions on his fingers that wouldn't heal, that would get infected/ulcerated ...cause the infection to track up his arm :rolleyes:always required hefty antibiotics and dressings.

There are many, many weird symptoms of celiac disease (or a body under attack)......most of them docs DON'T think are related....but we know different ;)

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I almost forgot about the finger blisters my hubby used to get (he's been dx with celiac disease 4 yrs now).....not DH, but huge angry red eruptions on his fingers that wouldn't heal, that would get infected/ulcerated ...cause the infection to track up his arm :rolleyes:always required hefty antibiotics and dressings.

There are many, many weird symptoms of celiac disease (or a body under attack)......most of them docs DON'T think are related....but we know different ;)

Hi Everyone,

I just wanted to leave a quick update, since I started this thread. Yesterday a dermatologist diagnosed me with Erythema Multiforme as the cause of my mouth sores and finger blisters. Finally, and answer after 8 years. And, just today my doctor called to tell me some of my blood work was in, and I am Vitamin D and B12 deficient. I will will get my Celiac results on Tuesday. I'm a "healthy" eating vegetarian, so i am shocked that I am low in any vitamins. I wonder if I have had Celiac's for a long time, and the "aftermath" is just now showing it's ugly head. Come on test results.... Angie

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