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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Malnourished
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3 posts in this topic

Hi guys,

I went to a new dr yesterday. She's an MD but practices Naturopathy and Homeopathy. We had a 2 hour consult and I told her how I have been feeling. She said that I am suffering from malnutrition which is why I have the rapid heart rate, fatigue and muscle pain. She feels that it can be a magnesium deficiency. She put me on some vitamins but I have to tell you that my gut is soooooooo irritated today from them. She also suggested that I eat some nuts as protein and although walnuts and pecans were NOT one of the allergy foods on my YORK food allergy test....I reacted to them yesterday and today! I immediately felt sick from them. I also made bread today.....successfully for the first time!! Yeah! but after eating some of it I started to get bloated and feel ill as well. So, I pulled out my YORK allergy testing again and found that potatoes are one of the allergy foods. Last week I had a sweet potatoe and was sick all day from it. One of the ingredients of the bread mix was potatoe starch....hhmmmmmmm.

The dr told me that I am reacting to a lot of foods but with time as my gut heals I will be able to eat more foods. Has anyone out there had this experience. She also said that I am probably her worst celiac case with all my other intolerances and health problems.

This weekend I felt sooooooooo hungry and ate continuously but never felt nourished! I haven't been able to sleep because the rapid heart rate is keeping me up and the muscle pain is just so debilitating. I feel exhausted and although I am pushing and trying to be well I keep hitting roadblocks with my diet and the foods that I attempt to eat. I think it is just too soon to add new foods.

I started vitamins last night but after taking them again this morning my gut just started to feel irritated again. I know that I need supplements but my gut is so raw now that I am not sure it is a good idea to continue. I am seeing my GI tomorrow and telling him what has been going on. I only saw him once and he seemed OK...he's the one who referred me to another celiac pt for help with diet. Thurdsay I am seeing my old dr in NY and will probably have her put me back on vitamin infusions just until I get stronger. Any thoughts? anyone else getting vitamin infusions? has anyone had problems with feeling malnourished and getting palpatations and fatigue? Would love to know how you handled it.

Thanks for all your help,

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I started getting sick several months ago and have been gluten-free now for 4 weeks.

I couldn't take vitamins without it tearing my stomach up. But I now that I need the extra nutrients because of my weight loss. So I tried a smaller one - I found Schiff Vegetarian Multiple that is gluten-free to be ok. I would need to take two of them daily, but I only take one right now. I also do some liquid B vitamins. I couldn't take calcuim either - which I know I need. So I tried Coral Cacium, and it is easier on my stomach. So much bothers my stomach right now that I get really confused on what to eat. I can't eat soy, eggs, potatoes, meat, sugar, dairy and gluten. That leaves a lot of veggies - cooked and raw. Starchy foods like potatoes really bother me. I have to be careful not to eat too much rice and corn. I still have stomach trouble at times. Try soaking the nuts in water for several hours before you eat them. Sometimes that helps. There are times that I'm like you - feel soooo hungry. But other times I feel so full, bloated and constipated that I can't eat anything. I've lost a lot of weight and everyone comments on how thin I am. But what do I eat? I'm getting better each day, but it's a struggle. Anyone else have some suggestions?

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Are you taking any sort of probiotics or good bacteria to help your gut heal?

I never had the real difficulty eating (except for a short while) but I definitely had the agonzing muscle pain. I'm not sure your stomach would handle Advil but that's what I took.

richard

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    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
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    • after going gluten-free I felt great! but lately I have been feeling bad. the gluten symptoms are still gone, but now I am weak, foggy,  any ideas? doc did a full blood work up, all came back normal
    • Estes, I want to respond to your question might it be Pellagra instead? It might be but it will be hard to prove by testing. See my response to this question from an earlier thread. The in International Journal of Celiac disease noticed this connection in 58% of Celiac's. Here is the link http://pubs.sciepub.com/ijcd/3/1/6/ quoting  (My words Pellagra is) "Considered now as a vitamin deficiency state, pellagra has been linked to a chronic lack of niacin (vitamin B3 or nicotinic acid), an important constituent of coenzyme I and coenzyme II. Its clinical map is believed to include the classic 3 Ds: Dermatitis, Dementia and Diarrhea. The order of appearance and severity of these three sub-syndromes varies and some may not show at all."  and their note  that "Unfortunately, the patient was not diagnosed biochemically as pellagra and died before gluten free diet was initiated." and also notice this research as first pointed out by Knitty Kitty https://www.ncbi.nlm.nih.gov/pubmed/2084620 People who had pellagra and esophagitis showed improvemnt in their condition in only a week of supplementation. But they stopped too soon. The ajcn link quoted in an earlier response noted clinical remission after 3 weeks of 3/day supplementation with Niacinamide plus a B-complex and a high quality niacin containing food regimen for 3 more months to ensure complete remission. Here is the link again. http://ajcn.nutrition.org/content/85/1/218.full the problem most people have today most people wont take a vitamin that long (3 months) or that frequent (2 to 3 daily) to completely recover. but we know even if you take a  b-complex with as little as 100mg Niacinamide 3/day for a month many of our GI problems will improve because it is the clinical response to the vitamin that confirms the diagnosis. I think of a 3 month cycle as more cautious to avoid someone relapsing back into sub-clinical pellagra but if that is too aggressive in your mind then take it (Niacinamide) for only a month 2 to 3/daily to see if it doesn't help is worth a try  I think. My experience with B-vitamins tells me 3 months is ideal because that repletes our storage sites in the liver.  You should probably take this/is (Niacinamide) with a B-complex so as too keep your other B vitamins in balance as well. ****** this is not medical advice but I hope it helps you the way it did me. good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,  
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