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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hi there! My name is Nicole and I have 4 little girls. My second daughter who is 5 has celiac disease. She has Down syndrome too, and was diagnosed w/celiac disease about 2 years ago. She's a doll and handles her allergies like a champ! She'll ask, "Mom eat?" and if I say it has gluten she'll say "BLAH!". Too cute! Occasionally she'll try to get what her sisters have but most of the time she really understands and monitors her food herself. When we have had accidents the gluten is obviously really toxic.

She was asymptomatic and routinely tested because it is more common in kids w/DS.

Anway I came here to post recently to find out if anyone had used Juice Plus products for the kids who have celiac disease. They say it's gluten-free but they use fiber from barley and oats. So I wanted to search more before I give them to her. The company says they test the product and it shows 0 gluten, that the husk they use does not have gluten. Hmmmm? Anyone?

Thanks! Nicole~ mom to Darrah, 6 years, Tarenne 5 years w/celiac disease and Down syndrome, Marley, 2 1/2 years and Emery, almost 1! :)

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Nicole,

I was reading your post and although I don't have an answer for you about the Juice Plus I do have a question.

I also am new to this board. I have a son who was just diagnosed with celiac. He was also asymtimatic just a little short for his age. Anyway, no stomach problems whatsoever. You mentioned that your daughter was also asymtimatic but now when you have accidental slip-ups you can tell how bad it is for her. What did you mean by that? Are you saying that while eating gluten before she was gluten-free she got no stomach aches and now when she does eat it by accident she gets stomach aches or other symptoms?

This is something I am really worried about and have heard conficting things about whether or not this happens.

Thanks,

Roo

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I use Juice Plus with no problems... I was also told that it is gluten-free. My daughter, who does NOT have celiac (adopted) has improved 100% taking the vitamins. Every winter she is very sick and has a lot of chest congestion problems, etc. This year, after 9 months on Juice Plus, she has not been sick at all. Yeah!! Time will tell whether it is the JP or whether she is just able to fight it off better or had a good year. We'll see!!

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Roo, before diagnosis Tarenne for all intents and purposes had no symptoms of the disease. Now looking back I realize she was refusing some foods, and had loose, frothy stools, etc. But much of the signs can also be associated w/her extra chromosome. For instance a distended abdomen is also part of her having low tone. And many people with DS have digestion issues as well that don't have anything to do w/celiac disease.

Now when she gets gluten she has horrible diarrhea and it has almost a chemical smell, she even has vomitted before after ingestion, she'll say "Mom stomach ache, shot". So funny she equates shots with being well just from wellness visits.

I have read that once the body is cleansed of gluten it's reaction to introduction of gluten is more severe. I hope that helps! Nicole

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Kimberly, Thank you SO much! You don't know how much I appreciate your feedback. I'm going to give it to her and watch for signs. I'll let you know if she seems to be intolerant. HUGS to you! You made my day. Nicole

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You are MORE than welcome... I always feel like I take more from this site than I give.... feels nice when I can help. :)

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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