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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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sugarsue

Dh Or Molluscum On 7 Yr Old

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Hi guys. I'm obsessed with trying to figure out what's going on so please forgive me.....

We see my dd's (age7) Peditrician on Tuesday. He's already seen the "rash" on her legs and thinks it's molluscum. I'm thinking it's DH. She's had her celiac panel but I don't know the results yet.

Her rash itches more in the morning and at night. It's on her inner thighs, behind her knees and her butt cheek on one side. The blisters look just like the molluscum pictures and the not-as-serious pictures I've seen of DH. The ones that get really bad get a HUGE pimple, very painful and then cause a purple mark that takes forever to go away. It just is not getting better with our molluscum treatment which got me on the DH thought path. She's been eating tons of gluten and I think it is affecting her mood and causing itchy'ness all over her body too.

She is not going to be happy about going gluten free. She likes the gluten-free food, just doesn't like Mom telling her what to do. <_<

I'm not sure what my question is.... Oh yeah, if her Pedi is not interested in seeing if her rash is DH, and her gluten intolerance test is negative, what type of doctor would I go to for a second oppinion? If it's DH, would her celiac panel be positive? Can Dh be diagnosed by a blood test like that or just a biopsy?

Thanks.....

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You need to see a dermatologist. If your insurance permits you to make an appointment without a referral then I would do so. Molluscum does not itch nor will it leave the purple scar that you mention. One of the most distinctive features of DH is the color of the scar that is left and you have described it quite well. The derm will biopsy the area next to an active lesion, not the lesion itself, to look for the tell tale antibodies. If the biopsy is positive for those antibodies then no furthur testing is required as that would be a celiac diagnosis. Not all people with DH will have villi damage and not all will show up as a positive on a celiac panel. Not showing positive on those tests does not mean that the rash is not celiac related.

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You need to see a dermatologist. If your insurance permits you to make an appointment without a referral then I would do so. Molluscum does not itch nor will it leave the purple scar that you mention. One of the most distinctive features of DH is the color of the scar that is left and you have described it quite well. The derm will biopsy the area next to an active lesion, not the lesion itself, to look for the tell tale antibodies. If the biopsy is positive for those antibodies then no furthur testing is required as that would be a celiac diagnosis. Not all people with DH will have villi damage and not all will show up as a positive on a celiac panel. Not showing positive on those tests does not mean that the rash is not celiac related.

Thank you for the reply! We see her pedi on Tuesday and after that I'll look for a dermatologist if our pedi can't recommend one. We are lucky that we don't need a referral. Your post has me hopeful that maybe we will find the answer and worried that you are right and she will be diagnosed celiac.

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Hi, sent you a message. I'm in your shoes right now. Totally obsessing over my daughter's situation. Sent you a PM to see if you have some tips for me. I'm desperate. :(

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