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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Introduction & Hello
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7 posts in this topic

Hi, My name is Wendy. I have a 9 year old daughter, Grace, who was diagnosed in September last year with Celiac Disease after bloods and biopsy both returned strong positive with alot of intestinal damage.

We live in New Zealand, and I am looking forward to learning from other parents of celiac kids. All our family have been tested and So far Grace is the only Celiac out of 5 of us. She is coping well with the change in diet and thriving wonderfully. gone from 25% in height to 50% + in 6 months.

Look forward to getting to know you all.

Wendy

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Hi Wendy welcome to the board :) There are alot of great people here!

My 8 year-old daughter and I are both Celiac's and have been gluten-free since Sept 03. At first my daughter struggled with gluten-free diet and would cheat while at school but the last time she did it hit her pretty hard, she woke up the next morning with a fever, diarrhea, nausea and abdominal pain, it was awful! I sat her down and explained this disease to her and she has not cheated since :D

Again welcome to the board!

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Hi Wendy,

My daughter (age 7) and I have been gluten-free for 3 years. Our biggest news lately is that one of my daughter's classmates was diagnosed with celiac - two celiac kids in a class of 11!

Celiac.com has just posted the summary of a new UK study that found celiac prevelance to be 1% in 7 year children in the UK. I know think that having celiac budies for our children is possible for all of us! Ironically, my daughter's friend had virtually no symptoms (just mild tummy aches), and his mom pressed for a celiac blood test just because she knew we had it and was, like so many of us, just very worried about her child. When will doctors realize that everyone should be tested, regardless of symptoms? sigh.

Laurie

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I was diagnosed with celiac disease when I was 20 months and last week was my Diagnosis day of 12 years :) because I was so little I don't remember what gluten tastes like, which is a plus for me :) my Celiac friends say. 12 years ago the way to diagnosis it was biopsy showing intestional damage and then rebiopsy 1 year later to show improvment and the a challenge biopsy(eat wheat for 2 months and then another biopsy to show more damage) my parents refused to do the 3rd biopsy challenge. They didn't want to make me so sick again just to tell them that they were right. If anyone needs help with helping their children with the diet I can help...

MOlly

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What a great post Molly, Thankyou.

We have decided that Grace wont have another biopsy for quiet sometime as the first one was so obviously positive of Intestinal damage. She will have bloods retested in 12 months (18months after diagnosis).

I am lucky that she was so easily diagnoses and we don't need to have continual testing wtc.

I will be sure to ask you any questions Molly, it is a wonderful offer from you and so nice to have the opinion and perspective of a younger celiac.

Wendy :D

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Wendy, it sounds as though you and Grace are taking the diagnosis in a very positive way. Feeling healthy helps us feel more positive as well, I believe, so I am happy that you found this message board and are now part of our group.

Molly, I am so thrilled to see your offer of helping other Celiac youngsters with their diets! That is such a nice offer from you. My grandson (10 months) and I are the only diagnosed Celiacs in our family, but we are in the process of having other family members tested right now, so time will tell.

Best wishes to you both. Welda

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Hi Wendy. There is a good book out for Children on Celiac, which you may not be aware of:

Eating Gluten Free with Emily, by Bonnie Kruszka (actually available in the bookstore of this site, and I would imagine available in bookstores near you?) which I thought was very good for kids.

Good luck.

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