• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could I Have Celiac Disease?
0

3 posts in this topic

I've always had stomach problems, but over the last two years they have escalated. After a horrible breakup with a boyfriend, I lost twenty pounds. I started getting horrible stomach problems, terrible gas, reflux, burning sensations. My diet had changed, but it was actually a more healthy diet full of fruits and veggies and grains. It's two years later, and while I'm emotionally healed, my body is still troubled. I have constant gas and bloating and burning. I haven't gained an ounce, have actually lost weight even though I've been eating a ton. I've noticed changes in my teeth and nails, and sometimes I have strange sensations in my legs and feet...like tingling. They often fall asleep when I sleep. I've also been lactose intolerant on and off since I was a baby. My regular doctor suspected gluten intolerance and sent me to a specialist who laughed at me and told me I wasn't sick unless I was vomitting. He did do an endoscopy which turned out fine. He basically told me it's just my body and to deal with it, suggesting it's just IBS. Could I have this disease? Should I pursue testing?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


You may very well be gluten intolerant, but without the intestinal damage severe enough to back up the diagnosis, they won't call it celiac disease.

Your best bet would be to check out the testing at Enterolab . The tests there are senstitive enough to pick up gluten intolerance (or gluten sensitivity) in it's early stages before the intestines are very damaged.

I've been where you are at, as have many other on this board. I've been laughed at by doctors and treated like a hypochondriac. But I am gluten intolerant and I am now on my way to better health. Thank God for Enterolab!

God bless,

Mariann :)

0

Share this post


Link to post
Share on other sites

A visual inspection with an endoscope may not always reveal Celiac. While there is normally some inflamation present, it is not always the case. Furthermore, any inflamation that may have been present could easily have been attributed to some other cause.

You did not mention if biopsy samples were taken during the endoscopy. This is still the only sure fire method of verifying a Celiac diagnosis. The vilous atrophy associated with Celiac disease is not detectable via the endoscope. Several biopsies must be taken for external microscopic examination.

You also did not mention if you had the Celiac panel blood test. I would recommend you convince your G.I. doctor to at least have that done, and if it comes back positive, you may need to either get a second opinion of the biopsy slides, of if none were taken, to have the endoscopy procedure repeated. If your G.I. is unwilling to cooperate, I suggest finding a new one.

Best wishes,

Dewey

Marion, IA

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,773
    • Total Posts
      932,327
  • Member Statistics

    • Total Members
      64,245
    • Most Online
      3,093

    Newest Member
    Jessica Morgan
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm getting married soon (8 days) so we've been thinking about future and children and such. Is there anything I can do to prevent my child from getting celiac? I have it and I'm very sensitive. I was diagnosed at 9 after my dad was. Is there any way for me to keep my children from going through that? 
    • I must say I am very thankfull for all the positive reinforcement I am finding here. It has been a struggle to finally hit the gluten nail on the head.  So many other culprits exist that have similarities to gluten sensitivity. It took over five years, but I finally exhausted all the possibilities.  In a way it is actually a relief. Thank God my wife is very patient. She also has a friend with full blown celiac too, I get advice from her by way of the wife. Also, some of the FB groups I have joined are not  overly friendly to people that are looking for help. But they sure are good places to swap recipes! Too bad I can't cook. 
    • Thanks Pocah. You mentioned an intestinal ulcer. I thought I had developed gastritis, or possibly an ulcer myself. This happened after a very 'beery' weekend a year ago, and the pain never left.But now that I have committed to going gluten free for several weeks, its thankfully going away! 
    • Are you sure he didn't eat pizza or a cookie?  If you weren't there.....  just a thought.  And, is this his usual reaction to gluten?  Do you really know that it is from gluten..... I mean...positive he got some gluten and this happens?  For example - I realized after I ate something that it wasn't what I thought it was.... so I know my reaction from gluten for certain.   The thing is, it just seems extreme for a teeny amount of gluten.  I just don't want you to miss something because you blame it on gluten.  It's a natural thing to blame everything on gluten. I feel this is his reaction to gluten, he needs to learn to recognize that it is irrational and learn to manage it.  If that means he stays in his room with soft music and a punching bag.... no matter what the cause of this episode - you definitely need to talk about it.  Maybe several times.  I know with my boys, you might have to explain what concerns you and maybe a brief why it concerns you ( tho this behavior probably needs no " why "it worries you).   They may need to think about it for a while or give you a partial answer today and discuss more in depth tomorrow.
    • Potato chips are usually gluten-free. If there is a concern, it is in an added flavor. I haven't seen a problem except for some BBQ flavors, and even then rarely. Wheat must be declared on the label in Canada and the USA. Rye and Barley do not need to be declared in the US, but in practice they are not hidden. That leaves dextrose which is a pure sugar and is gluten-free no matter where from what it was derived. Potato chips are very high in salt. The potatoes themselves provide a lot of sugar through carbohydrates. Just saying...
  • Upcoming Events