• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Falling Levels Of Platelets
0

4 posts in this topic

In the last five months I've had a CBC done three times. Most of my numbers are looking really GOOD. My liver enzymes are back to normal, I'm no longer borderline anemic, my red and white blood cell counts are within normal ranges (including the different kinds of white cells)... I'm getting pretty good at reading these things ;)

The one thing I'm wondering about is my platelet count, which has been dropping.

July: 279,000

October: 233,000

December: 208,000

This is still well within the normal limits and far from the danger zone (below 30,000 you can have spontaneous bleeding... very scary). Has anyone else experienced this? I've read that ITP can be a cause... an autoimmune disorder where your body starts destroying platelets too quickly. I'm just wondering if there's anything else.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm really glad you posted this topic. I have seen the same thing happen with me: slowly falling platelet count over the last 2-3 years. I was Dx with Celiac disease about 5 years ago. With the exception of total protein/albumin which is chronically a little low, my CBC/CMP values are normal. The platelets are now in the 180,000's, like you not yet out of the normal range but the tendency is what bothers me. I am 57 years old. I don't think any doctor will show much concern unless they drop out of the normal range but it still worries me. Like you I suspect there is some autoimmune destruction going on. As you know, people with one autoimmune disease will often develop others in time. Seems like once the immune system starts to go haywire it just gets worse with time. Sometimes I think I'd like to go on prednisone for a bit as an experiement to see if the platelet count would rebound. If it did, that would tell you something, woldn't it?

I take a low dose asprine daily and two fish oil caps daily but you wouldn't think that would have much effect on platelet count. I think they both just make the platelets less sticky. Even so, with the counts tending toward the low end of normal maybe I should cease taking them to maintain a safe clotting factor.

Steve

0

Share this post


Link to post
Share on other sites

Hey y'all.

I'm 17 years old & was diagnosed with Celiac Disease 4 years ago.

Just for anyone reading this who does not know what platelets do:

Platelets are what make your blood clot. For most scales, a count of 90,000+ is the safest zone, meaning your blood will clot when it needs to.

First of all, if you do not already have a hematologist, I recommend finding one in your area.

At the beginning of last year, my platelet level kept falling until it was dangerously low. It got as low as 3,000.

I was diagnosed with something called Idiopathic Thrombocytopenic Purpura (ITP). This can be associated with autoimmune disorders - I'm not too sure of the exact connection though. Some of the symptoms were tiny red dots on my skin that almost resembled rashes... usually on my legs or arms... and I bruised EXTREMELY easily (purpura)- for absolutely no reason, I would have bruises all over.

My doctor tried many different methods of treatment for the ITP-

1) steroids (prednisone) were taken daily. they caused horrible aches, but they did increase my platelet count. but as soon as i got off of them, my count fell again.

2) a stronger steroid was taken once a week. it had the same effect as the prednisone.

3) every 2-3 weeks i would go in to the hospital for an IVIG, which was a treatment given to me through an IV that pumped more platelets into me so my body would not attack the ones I already had. this lastest 2-3 weeks, but they fell soon after.

4) the last thing my doctor resorted to to cure my ITP was a spleenectomy (removal of the spleen). I had the surgery in June, and my spleen was over twice the size of a normal spleen. This was why my body kept attacking my platelets. As soon as my spleen was removed, my platelet count increased within the hour. It is now at a strong 245,000 (last blood test i had). The only downside to this is that the spleen helps fight off other things- therefore, I am now on daily antibiotics for at least a year, and I have a poor immune system.

Before he figured out it was ITP, other diseases he tested me for includes Leukemia and Lupus.

I hope this helps!

Best wishes,

Shelly

0

Share this post


Link to post
Share on other sites

Check out the web site for ITP. It is very informative.

I friend of mine developed it suddenly. It is an auto-immune disease. Diet changes are required.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,417
    • Total Posts
      930,443
  • Member Statistics

    • Total Members
      63,842
    • Most Online
      3,093

    Newest Member
    rachelliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • So, here goes...my visit with the GI specialist  is on Monday.  I had tested positive for the IGG antibody and all other bloodwork was negative.  I had numerous trips to emerg with stomach pain, lower back pain, tingly tummy, and diarrhea with alternating "c" (I had the word constipation).    One diagnosis of diverticulitis, another of IBS, and symptoms continued to get worse....Low B12 for 7 years and abnormal liver (something like hepatocellular disease with cirrhosis).  I only have a glass of wine on the weekends...I had been diagnosed in my early 30s with IBS and imodium helped.  I also had a rash on my elbows and back and that is when my new GP said maybe it is celiac and she sent me for bloodwork and 3 months later finally get to see the GI specialist.  I went gluten free and at first it was hard.  It is much easier now...I think at time I give myself contamination because I get some bouts of pain on occasion and I take buscopan and immodium and then I am fine....I am 100% convinced I have celiac but I guess I really do not understand how the rest of the panel would be negative... The rash, the GI symptoms, the B12, and the liver issue all paint a compelling picture...I never thought I would say this but I hope it is truly diagnosed because then I can move forward with a plan.  I am down 22 pounds and back at the gym very hard and feeling almost normal for the first time in many years....I also find is so strange that my "gluten" attack usuallys starts with a pins and needs tingly sensation in my back and tummy...I have written a full history and have copies of all my test results so the GI specialist takes me seriously...I read his reviews and they are not good....I understand I will have to do gluten before the endoscopy but that fine...just looking forward to this being partly over...Have a great day!  
    • http://www.cureceliacdisease.org/faqs/ You can also find lots of information on celiac at the University of Chicago celiac site.  One test they suggest is the anti EMA antibodies.  I don't see that one listed in her results.  Probably because it is more expensive to do.  So they may have skipped it.  The other test they usually do is the total serum IGA levels, which is used to prove that the person's immune system actually makes IgA antibodies.  Some people don't make IgA antibodies, so the IgA tests are useless in them. It looks to me like she makes IgA though, if this is the serum IgA result. IgA 133 mg/dl Reference range 33-200 There are also gene tests they can do.  The genes indicate the possibility of developing celiac disease, not the automatic presence of celiac disease.  About 30% of people in the USA have one of the genes for celiac disease, but only about 1% develop celiac disease. Some of the celiac genes are associated with other autoimmune conditions besides celiac disease.  So there are lists of AI associated conditions with celiac disease.  Sometimes called related conditions. http://www.drschaer-institute.com/us/celiac-disease/associated-conditions-1051.html
    • Blood was drawn this afternoon... they said I could get results tomorrow or even the next day! I also have a GI appt scheduled for June 9th. I am so glad I will have at least some kind of answer pretty soon. I'll let you all know. Thanks again for being so helpful!
    • Thank you so much for those links, I will check into it. Her pediatrician told me this afternoon she is wanting to repeat the bloodwork since that one test was elevated. I'm relieved that her pediatrician didn't dismiss it like the other dr in the practice did.
    • http://www.houstonceliacs.org/ https://www.csaceliacs.org/csa_chapter_25.jsp You can check with these groups to see if they recommend any doctors in Houston.
  • Upcoming Events