This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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You can order your own blood tests at walkinlab.com. LabCorp does the actual testing. The full celiac panel is I believe $298. You get results in a few days. It's recommended that people use a doctor but if you feel that route would be too expensive this is a thought. But you have to be eating gluten for several weeks for the test to tell you anything useful. The full celiac test includes TTG IGA and IGG, DGP IGA and IGG, IGA, EMA.
You can always send the report to your doctor.
I was wondering if anyone had any advice to help get rid of low back pain caused by inflammation, I never had back pain until I went to a physical therapist for my tingling in my legs, they told me it was from a lower back issue, however I now realized the tingling was from the celiac.
Not on Dapsone, but have found that OTC corticosteroid cream helps lesions clear more quickly and helps with the pigmentation a bit. You don't want to overdo it with the cream as it thins your skin, so only apply to affected areas for a short period of time. Coconut oil (the kind you eat) applied to your skin helps with the dryness and seems to help healing a bit.
I would recommend Squirmingitch's advice - go with the Fasano diet. At the very least, avoid eating foods prepared by anyone but you at all costs and try to stay away from open flour/baking. Many celiacs claim to get away with doing these things (and maybe they truly do), but when your reaction manifests externally, it's difficult to pretend that risky behaviours are going below your immune system's radar.
The Rash and various other symptoms are strong signs of Celiac, multiple people in your family also have it. I see several of your symptoms as very familiar to me myself, and I know that supplementation will help resolve the rest of your issues with a gluten-free diet. While we do suggest getting tested for confirmation if your limited as you say with insurance, and money then doing what is best for your health should be your focus right now. Go ahead and remove the gluten from your diet if you wish and go gluten free. If something happens later you MIGHT be able to put up with a gluten challenge and get tested at a later time.
I feel for you and see the issues, I have Medicaid myself and my severe gluten reactions and allergies got me on disability for a good while. Testing was a pain in the ass for me as finding a doctor that takes Medicaid is bloody near impossible where I live.
I do suggest supplementing Magnesium, Iron, Vitamin D, and B vitamins primarily right now. Others you might be low in are folate, E,C,A and various others. The nerve issues are strongly related to various b vitamins, magnesium, and D. I will share a link of what I take for a example.
BTW have you checked out the newbie 101 thread? And if you need help finding gluten-free foods I have a huge list that I have complied for people although we normally suggest a whole foods diet only for the first month or so. Might want to drop dairy and oats for a bit, by the sound of your deficiency issues I would say it would be a huge help doing so.