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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need Reassurance
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9 posts in this topic

I just need some reassurance that the anxieties related with wheat/gluten will go away in time. I've had a rough week and just need some good vibes!

Bambam

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Hang in there. Are you having anxiety just from not being sure of what to eat?? Do you have stress somewhere else in your life right now? I guess I am not sure what you mean by anxiety.....

My great grandma always says "this too shall pass". Keep your chin up.

-Jessica :rolleyes:

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I should have been a little clearer - but I guess I am just having anxieties related to always having to check everything I eat and people not understanding and stuff like that. Thanks for asking.

Bambam

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Well I can't say that you will ever have to stop reading labels. I also can't say that people will ALWAYS get it. But you will become more accustom to reading labels and more used to putting up with "stupid" people!! ha :lol:

Here soon you will learn to rattle off a speech to them so that they can become educated on Celiac. You won't even think twice when they don't get it. Just HELP them "get it". I find that easier than expecting them to do it on their own.

Label reading is tricky. I find it best to call the companies myself. That way I am for sure if a product is safe for me. Someone on the board may say that they called and it is safe. I will then go ahead and call on my own just to verify for my own info. I feel safer that way. (maybe obsessive, but hey it's my health ;) )

It gets easier with time.

-Jessica :rolleyes:

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Hang in there. Are you having anxiety just from not being sure of what to eat?? Do you have stress somewhere else in your life right now? I guess I am not sure what you mean by anxiety.....

My great grandma always says "this too shall pass". Keep your chin up.

-Jessica :rolleyes:

My mom always says that to me, too! :lol: "This too shall pass."

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As far as dealing with idiots there just isn't much we can do. You can lead people to knowledge but you can't make them learn anything. :lol: You just have to hold your ground, it is YOUR body and it is YOUR responsibility to take care of it. If they don't like it then that is THEIR problem NOT YOUR problem.

How long have you been gluten-free? You didn't say in your posting.

In time learning what you can and cannot eat just becomes a habit. As your body heals you will feel better and you will readily embrace the gluten-free lifestyle. I have lost so much and basically wasted the first 36 years of my life because of this disease. To dwell on the past just isn't going to make this go away. My life is so much better now and there is so much to look forward to because I am finally healthy.

It does get better and remember we are only a few mouse clicks away.

Ianm

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We all need reassurance. That's one of the good things about this board. We've all gone through our own hell and we can all relate.

Hang in there. Things will get better. We just have to learn exactly what our bodies can tolerate. If people don't get it...it's their problem. I just got off the phone with my brother and he said "your number one priority is to yourself". He said to "do whatever you need to get better and don't worry about explaining to others". I guess that's it in a nutshell. It seems so simple when others put it into words...... and yet we get all bent out of shape if we have to explain ourselves to anyone!

Take care of yourself,

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I felt really good tonight, I walked into my favorite Denny's restaurant and I realized that most of the waitresses recognized me as having a gluten intolerance. They don't quite remember the term gluten or celiac but my server teased me and said "when you walk in the door we know that we have to clean the grill and get out the clean utensils." As she took my order she asked if I wanted toast and immediately slapped herself in the face and said she was sorry because she realized what she had done. This really made me feel much better because people are starting to get it, even if it is one small step at a time. My sister-in-law is starting to understand and even thinks that she wants to get tested because she has a lot of the symptoms and she read an article about osteoporosis and recommendations that people with this disease should be screened for celiac. My grown children are listening and asking questions because they know how sick I was and seemed to be impressed with the progress I have made. My son said he didn't realize that we could go in a restaurant and tell them how to prepare our food. Denny's have bent over backwards for me, they read labels and let me know

what ingredients they have. Please don't get discouraged, things will get better for us. Just think of yourself as a pioneer helping others to "map out a workable plan "

for others to follow. I figure that there is a reason why I have this and I try to focus on the positives!

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I have to travel a lot for work and every Denny's I have eaten at has made an effort to accomodate me. They at least allow me to substitute any bread with something else. Have never had a problem with anything I've eaten at Denny's.

Ianm

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