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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Probable Cd? Many Questions
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3 posts in this topic

Hello, This is my first post. I'm glad to find this place, although I am not yet officially diagnosed.

My doctor recently sent me for a number of blood tests, some of which related to celiac disease. I picked up the results at the lab, but don't have a follow up with doc for several weeks.

After looking at the results, I gleaned that I might have celiac disease and so have started looking around the web for more info.

Here are the test results that I'm wondering about:

Gliadin AB IGG - 11 (ref: 0-19)

Gliadin AB IGA - 98 (ref: 0-19)

Am I correct in assuming that the positive IGA means I likely have celiac disease?

I really don't have obvious GI symptoms....but I do have another autoimmune disorder (Hashimoto's thyroiditis) as well as osteoporosis and probably fibromyalgia.

Is it always necessary to have to have a biopsy? If I'm correctly understanding what I've read, it seems that the positive IGA is a pretty big clue. I'm perfectly willing to proceed with gluten-free lifestyle without a biopsy....but perhaps there are compelling reasons to have one anyway.....Can anyone clarify that for me?

Also, should I continue eating as always till I get a chance to discuss with my doc and/or have biopsy? If I'm likely to have celiac disease, I am inclined to jump right in and begin eating gluten-free to get on the road to healing. But (back to the biopsy question) maybe getting started now would mess up possible future tests.

Out of curiousity, I dipped my toe in the gluten-free lifestyle for the past two days, and am a bit concerned to find that I feel worse, if anything. Very achy!

Well, those are my questions for the moment! I'm grateful for any insight any seasoned readers might offer! Best, Geri

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Hi Geri,

The Gliadin AB tests are not totally specific to celiac disease. This means that although the high IgA reading could point to celiac disease, it doesn't necessarily. You should stay on a normal diet though, since the biopsy is the next step. Do not let the doctor tell you that going gluten free before the biopsy will not mess up your test results, it WILL mess up the results. So if a biopsy is going to be scheduled stay on gluten until after the biopsy is done.

That said, I would like to welcome you to this board. There is a lot of support here, and we are always glad to welcome new members.

As for the little bit of gluten free you have tried, it often takes weeks and sometimes months to start feeling real relief from symptoms, so a few days does not really give you a good idea of how you will respond to the diet.

God bless,

Mariann :)

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Hi Mariann, Thank you for the reply and the kind welcome! I'm just getting my hands around how big a topic this is and how much I have to learn. Aren't we lucky to live in a time when so much info is available! Best, Geri

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    • I do have a referral to another GI at one of the top hospitals in North Carolina. I'm just waiting on the call to schedule an appointment. 
    • OK, that's good news, not the milk in the cabinet, that you've not cut gluten! Stick with it and wait for the test results. If they're positive then it will be another endoscopy, but this time with the biopsies. If negative, don't despair. Your GP may still refer you but if not you can try the gluten free diet for yourself. Keep a food diary and follow all the instructions here in the newbie thread and establish for yourself if it's the problem. If it is, don't stress overmuch about a diagnosis. I tested negative but gluten is a big problem for me and many others. The good news is the diet worked for me and it may still for you. In the meantime, try and eat as well as possible and take a good quality B vitamin and multi vitamin to try and boost those levels. Good luck!
    • No I havent cut out any gluten. I cut out stuff I knew hurt me. Like watermelon. Which sucks because I LOVE watermelon.  There are days that I cant even get words out. I can think a sentence and just cant get it out. I constantly stumble and feel drunk in my head. I'm hoping these daily shots of B12 I'm getting will start to help some.  Yesterday I put the milk in the cabinet    
    • Hello and welcome Its good that your doctor has ordered the celiac test, not sure why your GI didn't, as you say perhaps he was presupposing IBS... You mention cutting out food, you haven't tried cutting gluten yet have you? That can throw the results of any testing. You are best to stay on it for now at least, once testing is done it would be worth trying the gluten-free diet regardless of results. Dont lose heart, be persistent, get those answers and best of luck!
    • Hey Kez and a belated welcome to the forum  Sorry your post didn't get an answer, sometimes one slips through.  Re your results. The number prefixed with the H is the level of antibodies detected. The second figure should be the range beyond which the test is considered positive. Usually that's in the form of a range like this: So for the quoted test above a figure more than > 10 would be positive. I just can't tell from your post what the range is.  I suspect less than 7 was negative so you've either scored a weak or a full positive depending on the scale. Have you posted all the info that was on the test?  Here is a little more detail about what each test is looking for if you want to know the science: http://glutendoctors.blogspot.co.uk/2009/01/interpreting-lab-work-gluten-sensitive.html Coeliac can certainly play havoc with your skin. In my case I found dairy was a big offender as well. Best advice I can give you is to stay eating gluten till your endoscopy. Ask your health provider if its possible to call asking for cancellations if you want an appointment sooner. But stay eating gluten so you get an accurate result. If its negative, try changing your diet regardless. 6 months without gluten and dairy may sound scary but if it cures your health issues you'll never look back. Best of luck!
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