• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Probable Cd? Many Questions
0

3 posts in this topic

Hello, This is my first post. I'm glad to find this place, although I am not yet officially diagnosed.

My doctor recently sent me for a number of blood tests, some of which related to celiac disease. I picked up the results at the lab, but don't have a follow up with doc for several weeks.

After looking at the results, I gleaned that I might have celiac disease and so have started looking around the web for more info.

Here are the test results that I'm wondering about:

Gliadin AB IGG - 11 (ref: 0-19)

Gliadin AB IGA - 98 (ref: 0-19)

Am I correct in assuming that the positive IGA means I likely have celiac disease?

I really don't have obvious GI symptoms....but I do have another autoimmune disorder (Hashimoto's thyroiditis) as well as osteoporosis and probably fibromyalgia.

Is it always necessary to have to have a biopsy? If I'm correctly understanding what I've read, it seems that the positive IGA is a pretty big clue. I'm perfectly willing to proceed with gluten-free lifestyle without a biopsy....but perhaps there are compelling reasons to have one anyway.....Can anyone clarify that for me?

Also, should I continue eating as always till I get a chance to discuss with my doc and/or have biopsy? If I'm likely to have celiac disease, I am inclined to jump right in and begin eating gluten-free to get on the road to healing. But (back to the biopsy question) maybe getting started now would mess up possible future tests.

Out of curiousity, I dipped my toe in the gluten-free lifestyle for the past two days, and am a bit concerned to find that I feel worse, if anything. Very achy!

Well, those are my questions for the moment! I'm grateful for any insight any seasoned readers might offer! Best, Geri

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Geri,

The Gliadin AB tests are not totally specific to celiac disease. This means that although the high IgA reading could point to celiac disease, it doesn't necessarily. You should stay on a normal diet though, since the biopsy is the next step. Do not let the doctor tell you that going gluten free before the biopsy will not mess up your test results, it WILL mess up the results. So if a biopsy is going to be scheduled stay on gluten until after the biopsy is done.

That said, I would like to welcome you to this board. There is a lot of support here, and we are always glad to welcome new members.

As for the little bit of gluten free you have tried, it often takes weeks and sometimes months to start feeling real relief from symptoms, so a few days does not really give you a good idea of how you will respond to the diet.

God bless,

Mariann :)

0

Share this post


Link to post
Share on other sites

Hi Mariann, Thank you for the reply and the kind welcome! I'm just getting my hands around how big a topic this is and how much I have to learn. Aren't we lucky to live in a time when so much info is available! Best, Geri

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,345
    • Total Posts
      935,621
  • Member Statistics

    • Total Members
      65,026
    • Most Online
      3,093

    Newest Member
    Natasha927
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've lost 3-4 pounds.   It surprises me, as I would have expected to lose more, considering how limited my diet has been,  how sick I was since early May, and now walking 35 to 45 min. after dinner.   I think it's the increased gluten-free bread and shortbread cookies.  I've eaten more of these as they settle my stomach and are safe when I'm not sure what else will work.   I think I may also be having more sodium, so there may be a bit of water weight. I am actually doing better.   I've been on Famotidine 20 mg., 2x daily for about 9 days, and added Vit D a few days ago.   I've been able to drop one of 4-5 stacked pillows at night, and will try dropping one more tonight.   I am down to Tums (1500 mg.)  around 3-4 a.m. for mild heartburn / upset stomach, and again when I get up.   Not much else, maybe occasional simethicone.     i tried returning to a salad at dinner, just lettuce, tomato, and onions, but seemed to have more trouble overnight, so quit.  I'm mostly eating an egg with toast, well cooked sweet potatoes/mixed veggies, tuna, some salmon, hamburger, chicken, Ian's fish sticks, bone broth, Schar's breadsticks and shortbread, some soy milk or macadamia milk, and the bakery gluten-free bread.  
    • Ebetta posted this 6 years ago ... not sure she/he will respond
    • Welp, according to the lady at the gastro's office, my tests were all "fine" and I don't have cancer or celiac. I asked for a copy of the report so hopefully that will happen. I guess I will follow up with my family practice doctor and see what they think I should do next, but I am not going to go back on gluten again. My eye doctor is concerned about an inflammatory condition in my retinas, that is rapidly advancing over the last year and thinks that anything I can do to decrease inflammation should be done. So to me, that means sticking with gluten free and lots of vegetables, especially the leafy greens. Also need to figure out why my liver enzymes are elevated. This is the third time in the last 9 years according to my old labs. I've gone over all my supplements and my one medication (compounded thyroid) to make sure they are all gluten-free. My plan is to live like I have celiac disease from here on out. My only dilemma is what to give people as a reason why I can't eat the food they make for me. For now, "Gluten makes me deathly ill" is going to have to be good enough. thank you all for the help and advice! I've found a wealth of information here and am currently reading Dr. Fassano's book and a couple of different threads on this forum that are incredibly helpful.
    • Hello ebetta! Can you tell me have you found any other or even better drugs to help you with gastroparesis? 
    • That's interesting, thanks.  I will look into both - and I believe our forefathers' habit of boiling up bones was good for the joints, too.  I wonder if you could tell me, did you lose much weight through all of this? I have lost about 4-5 pounds since this began, and I don't really like losing weight when I'm not trying to. Mind you - some days I just can't eat, after lunch yesterday I couldn't face anything much at all.  
  • Upcoming Events