• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hand And Food On One Side 'drawing Up'
0

13 posts in this topic

I have been having episodes lately where my second and third toes will draw up like they are cramping. It is uncomfortable but not as painful as it looks like it would be. It tends to happen to my foot after I lay down at night. I have just been getting up and walking the foot off then yesterday it started to happen to the third and fourth fingers hand on the same side. It eventually frees up after I shake the hand for a bit. While it is not unknown for me to have my hands spasm if I am holding something this out of the blue thing is getting annoying. I won't be able to continue my search for a doctor until the weather clears a bit, I have been looking for one for a couple years now, so if there is anything you guys know of that might help please let me know.

I don't think this is gluten related as I have none of my 'glutened' symptoms.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I did used to get something like what you describe. One or two toes would just be drawn sideways or upwards, and the best I found for immediate relief was to apply pressure to the top of the effected foot with the heel of the other foot. But not against a surface. In other words, using the ankle joint to push that foot upward against something - I used the heel of my other foot.

While I can't offer anything specific, if it was me I'd be thinking along the lines of mineral (or vitamin) deficiencies, toxic levels of something like artificial flavors/colors, or naturally occurring substances which aren't well tolerated. I do know that the toxic alkaloids in nightshades effect motor nerve function. A quick Google suggests deficiencies in magnesium, potassium, and calcium.

Thankfully, it has not happened in a while, which I attribute to the supplements I take.

Here's a link which may help:

http://www.transitionalhealing.com/Article...nd_cramping.htm

0

Share this post


Link to post
Share on other sites

Thanks for the reply. I knew about the magniesium and thought I was taking a supplement that had it. Turns out the amount is 1% of the daily value so I think I'll pick up a supplement as well as googling high mag foods. Do you know if I should supplement that above the daily value for a while? Thanks for the link, these are spasms more than cramps by their definition. I've been eating a lot of potatoes lately, my favorite cold weather comfort food so perhaps I'll cut down on those also just to be on the safe side.

0

Share this post


Link to post
Share on other sites

Hi Ravenwood,

I get the toe thing you described--the middle toes on my left foot will sometimes draw up/back painlessly for no reason. With my hands, if I grab something tightly sometimes they seem to lock into that position and then slowly release.

I was just on another thread the other day (restless legs) and a couple of us were talking about muscle cramping and tightness. Another thing that happens to me, as I said over there, is if I stretch my legs out in bed, my calf muscles frequently sieze up, as well as the arch in my foot.

One thing I notice is that when I make sure I drink plenty of water, it's not as frequent. Magnesium is another good thought, but I'm leery of taking that myself since I'm so prone to D.

0

Share this post


Link to post
Share on other sites

I think the B-vitamins and vitamin D also play a role in neuro issues, and DH (a PhhD chemist) says that multivitamin supplements contain the RDA which according to him is a bare minimum, not an optimum amount.

I would also wonder if something else is going on to cause either a malabsorption issue or if something is bonding to the vitamins (in supplement form or in food) that you are consuming?

I know I was told that thyroid hormone supplements, for example, should not be taken within 5 hours of vitamins as they bind to the vitamins.

Is it possible that a virus could cause this sort of thing if it attacks in the brain? Or could this even be a kind of mini-stroke?

I remember seeing both hands and feet draw up in a friend who was in a coma. The PT put her hands and feet in splints to prevent locking and atrophy.

SOrry I have no definitive answers to help. :(

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for the reply. I knew about the magniesium and thought I was taking a supplement that had it. Turns out the amount is 1% of the daily value so I think I'll pick up a supplement as well as googling high mag foods. Do you know if I should supplement that above the daily value for a while? Thanks for the link, these are spasms more than cramps by their definition. I've been eating a lot of potatoes lately, my favorite cold weather comfort food so perhaps I'll cut down on those also just to be on the safe side.

I haven't ever read anything that suggested taking a lot of magnesium to bring levels up faster, and I'd think there'd possibly be a laxative effect in that case. Some forms are less prone to the laxative effect, but it's really only something to expect with high doses. However, calcium tends to balance out magnesium, so you can always take calcium with it if you need to. Otherwise, it is suggested to take calcium apart from magnesium, so they don't compete for absorption. The typical recommendation I've seen is to start with 200-400mg. The citrate form is supposed to be well-absorbed.

The suggestion of B-complex and vitamin D seems like sound advice as well.

You can search foods by nutrient here.

0

Share this post


Link to post
Share on other sites

Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!

0

Share this post


Link to post
Share on other sites




I picked up a Calcium-Magnesium supplement this morning. I take a multi that is pretty high in most everything but I also take a D3 and a biotin supplement. We'll see if the additional Cal-Mag supplements help a bit. I will up my daily water intake. I never really get hungrey or thirsty and I may be consuming less than I should. If Things don't improve I guess I will have to speed up my search for a new doctor. Not an easy thing in my neck of the woods. Thanks for everything guys.

0

Share this post


Link to post
Share on other sites
Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!

I'll second this one as I get the toe creeping thing as well the arches of the foot. at one point I was on a Dr monitored very low carb, low fat diet and was supplemented with potassium daily. my cramping/creeping continued until I was on a fairly high dose supplement (liquid), apparently it's quite common when you eat lower carb.

Not sure if this applies to your situation but adding in a daily supplement might be worth trying.

0

Share this post


Link to post
Share on other sites
I picked up a Calcium-Magnesium supplement this morning. I take a multi that is pretty high in most everything but I also take a D3 and a biotin supplement. We'll see if the additional Cal-Mag supplements help a bit. I will up my daily water intake. I never really get hungrey or thirsty and I may be consuming less than I should. If Things don't improve I guess I will have to speed up my search for a new doctor. Not an easy thing in my neck of the woods. Thanks for everything guys.

I also get a non-painful spasm, but it's always been in my left hand, very rarely in my left foot. My pinky and ring finger mostly, will curl up uncontrollably. I started twitching a lot all over about six months ago, mentioned it to my health guru, and she also said to take magnesium. I take it 250 mgs every other day and not only has the all-over twitching gone away (thank god, you look really wierd when your eyelid twitches) but the left arm spasming has gone too. I can tell you also, Patti, I also have an unfortunate propensity to D at the slightest provocation, and have had zero problems with this new supplement. I get those cramps in my legs when I stretch at night too, that hasn't gone away though, so I guess that's not a magnesium thing.

0

Share this post


Link to post
Share on other sites




You know, I had occasional eyelid twitching before going gluten-free, usually when I was really tired.

It never occurred to me that I don't have it any more til you mentioned it.

If it has to do with magnesium, maybe it's because I wasn't absorbing my multivitamin?

Anyway, Raven, how are you doing? Keep us posted, okay?

0

Share this post


Link to post
Share on other sites

Thanks all for the replies. It most likely was the magnesium issue. I started taking a calcium-magnesium supplement 1000-500. I have also added a D3 to my daily supplements. It does seem to be helping as the cramping has stopped. I have never been a fan of supplements but I have been doing just a little research and some of us do have issues with absorption from food even after we have healed. Mostly of course folks like me who were undiagnosed for so long. Oh well, if I still have to live off pills at least they aren't the toxic drugs I was given for so long.

0

Share this post


Link to post
Share on other sites

I have had the same problem for several years now. I cramp in my toes, hands, and legs. my mom always said grab on to something metal thats cold and squeeze. beleive it or not it works! I tried magnesium but it didn't help. I started doing a lot of walking and that has helped with night cramps. I also take an excercise class that invloves a lot of stretching. I strech out every night before bed and every morning when I get up.

[

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,556
  • Member Statistics

    • Total Members
      64,996
    • Most Online
      3,093

    Newest Member
    Gfjeschef
    Joined
  • Popular Now

  • Topics

  • Posts

    • Spicely Organics lab certifies all their spices gluten-free. The turmeric and curry powder they have is safe, also Thai Kitchen Curry Paste is certified Gluten free....I like you do not trust the normal curry powders or most blends with it.
    • In 1978 Virginia Slims' magazine advertising spouted "You've Come A Long Way Baby". Well, in 2011 "WE" celiac/DH people can express those same words when talking about how far we have travelled since I was diagnosed as a brittle celiac/DH person 16 years ago. If the people with peanut allergies can become well known, so can celiac people! DID YOU KNOW: That 16 years ago gluten free foods were difficult to find, and upon finding the small frost-bitten white-gummy loaf of bread, which was even more expensive than it is today, one had to scrape it off the roof of your mouth with your tongue and chew! View the full article
    • I would be willing to bet that nothing changed in that product except the label.  A bunch of companies seemed to have decided that they need to put "May contains allergens " on the everything to be safe.  But I wouldn't buy it any longer.    
    • If you want testing for celiac you will have to go back on gluten for 2 to 3 months for the blood test. There is a chance that your biopsy will be positive but if not then a challenge is in order. It would be a good idea to have your son tested also to keep him safe in school etc. He would need to do a challenge also if his ped agrees to test. It sounds like the wooden items your father made have great sentimental value. Perhaps you could clean them very well and then give them a sanding. That might make them safe for use.  
    • I've assumed for the last 8 years that I have gluten intolerance, or NCGS as I see it's now called. I thought that I had testing done (blood tests) that indicated I did not have celiac disease, and proceeded to follow a gluten free diet, most of the time. I've had gluten different times for different reasons, mostly because I started thinking "This can't be true. I should be able to eat my delicious home made bread!" and I suffered the consequences. Mostly pain in my neck and upper back, burning between the shoulder blades, also bloating and cravings for sugar and junk food. Each time, it took longer to recover from having gluten in my diet. The last time was over the holiday season last Christmas. Now I'm having pretty persistent symptoms, with the addition of occasional severe epigastric pain. So, off to the doctor I went to get this severe pain checked out. I found myself having an EGD a few days later, and when I woke up from my propofol induced stupor, there was the nice gastroenterologist telling me that he'd done biopsies to check for h. pylori AND CELIAC. I was floored. He didn't know I'd been gluten free. He did find mild gastritis and reflux, and no sign of hiatal hernia, which is what I really thought I had. I've looked through all my test results from the last 10 years, and can find nothing about testing for gliadin antibodies, or any of the tests mentioned here for gluten issues. I did have allergy testing done that was negative for wheat but I know that's not the same thing. I'm assuming that my biopsy will be normal, but that would be meaningless because I've been mostly gluten-free. The only times I've had gluten since January is maybe five times when I've had a couple of croutons on my salad at Olive Garden, or had an egg roll or wonton soup. If it's positive, then I know I've not been as vigilant about eliminating gluten as I should be, and I will have to stop using my wooden spoons (that my Daddy made) and my wood cutting boards (that my Daddy made) and throw away my favorite plastic spatula. My wooden cooking things were in use long ago, when I was still cooking wheat pasta, etc. So I know they are contaminated. My husband is telling me that there can't be enough gluten in those utensils to make a difference, but I've always worried about it a little bit. My Daddy can't make me any more things to replace the ones I have... I think right now that maybe the best thing for me would be to actually have a formal diagnosis, because that would make it easier for me to stick to the gluten free business. Right now it's too easy to let it slide, and to let people convince me that it's OK "just this one time". But - I'm wondering if there are any drawbacks that I am not aware of, and if anyone here knows please tell me what they are! If the biopsy is negative, then is there another test that can be done to make sure I really don't have celiac? I really need to be sure because I have two children. One of them has anti thyroid antibodies (I have Hashimoto's thyroiditis) and that son also has alopecia areata and psoriasis. He is gluten free along with me.  
  • Upcoming Events