• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Synthroid Versus Levothyroxin
0

12 posts in this topic

After reading the post about the name brand synthroid not being positive that it is gluten free, I spoke to my doctor about trying the generic version. Of course, I got the generic that wasn't listed on glutenfreedrugs.com. I did e-mail Mylan and got a phone call back saying that they don't put gluten in any of their medications. They said that the use corn and rice for the fillers. My doctor did tell me when some of his patients changed to the generic they needed to take an extra pill a week. I do absorb medication in strange ways, so we will see.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I too am on Synthroid. Not everyone can take the generic Levothyroxine and have to take name brand. The name brand Synthroid from Abbott laboratories is gluten free. Hope this helps.

0

Share this post


Link to post
Share on other sites

If you look on glutenfreedrugs.com, Abbott can no longer guarantee that all strengths of synthroid are gluten free. I did call them and was told they survey their suppliers and the suppliers say their isn't gluten, yet Abbott will not say yes there is gluten or no there is not. All I know since the last time I filled my synthroid, I feel like I am getting glutened from somewhere. At first I thought that it was the holidays, but it is still going on. Others on this site have called Abbott also. I know that Abbott seems to be doing the CYA, but I just feel I need to be told yes or no, not figure it out for yourself.

0

Share this post


Link to post
Share on other sites

Did I miss something? You have one company (Abbott) that says their suppliers say there is no gluten but they won't make a guarantee. You have another company (Mylan) that says they don't put gluten in their generic product.

We all have to make our choices on these but I don't see either of these are any more likely or less likely to be an issue. If anything, the fact that Abbott routinely surveys their suppliers instead of just saying "WE don't add any" makes me slightly more trusting of them.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I take the generic Synthriod, Mylan's Levothyroxin, and was started on samples of the name brand, I've noticed no difference between the two, personally. I know everyone's different, and some have issues, but as long as you're feeling well, stay with the same dose. Likewise, if you start slowing down again, have your PCP up your dose, or draw bloods for comparison. FYI- I'm not the celiac, DH is, so if the Mylan's brand is glutened, I wouldn't know.

0

Share this post


Link to post
Share on other sites

I take Levothyroxine. Not sure what brand or whatever. But I've never had a problem with it.

0

Share this post


Link to post
Share on other sites

I had my thyroid removed in February 2009, and I have just had a personal experience with using Synthroid. After taking the 112 mcg dosage for 2 weeks, I started having progressively worsening intestinal cramping. At first, I thought it was a virus, but since it lasted much longer and I had no other virus-type symptoms, I narrowed the problem down to being the last thing I changed in my diet---that is, when I began taking Synthroid PINK-colored 112 tablets! My husband and I did some research and found out that these 112 mcg tablets contain Red Dye No. 27 Lake, which is not gluten-free. This is what the manufacturer uses to color their tablets PINK. Although we have no chemical proof of our findings, the intestinal cramping stopped immediately when I stopped using the Synthroid brand. I switched to using Levoxyl's 112 mcg pill, which Monarch industries guarantees IS gluten-free. My husband spoke directly to an Abbott representative, and they STILL WILL NOT guarantee that their Synthroid brand of 112 mcg tablets is gluten-free. A couple of days later, an Abbott representative called my husband back and asked if he would be willing to give them details of my adverse reaction to using their Synthroid product so that they would have an official report for the company. Perhaps this is a requirement of the FDA whenever someone has a reaction. My advice for any Celiac with a very sensitive and reactive colon is to NOT use Synthroid brand of PINK 112 mcg tablets. (Note: Other dosages they manufacturer do not contain any red dye so they might be okay.) Hope this information helps others.

0

Share this post


Link to post
Share on other sites

Good note about the dye :(

I take the yellow 100mcg Synthroid tablets. I started with generic levothyroxine, but I finally saw an endocrinologist and he wanted me to switch to the name brand (to ensure a more accurate dose from batch to batch). Personally, I haven't noticed much of a difference... I wouldn't hesitate to go back on the generic if I couldn't afford the name brand.

0

Share this post


Link to post
Share on other sites

I have taken both. I have taken the generic far more and longer than the brand name. I don't have any problems with it either. I only have to pay $10.00 for a three month supply if I get the generic. I have not tried to ask for the brand name one. I suspect the ins. would not pay as well. I had an endocrinologist once tell me the same thing about switching to synthroid to ensure more consistency between batches because most of his patients were on that. I was on the generic at the time and he said well then it should not matter as long as you are taking the same brand of generic the dose should be consistent from batch to batch.

0

Share this post


Link to post
Share on other sites

Wow.

I take Levoxyl 137 mcg - and I still have my thyroid!

I spent several years asking to get my thyroid checked because I was rashy, exhausted and gaining weight regardless. NOBODY would run any kind of test - they (several doctors, OB/GYN, GP) just told me I had "elbow disease" - which is a euphemism for overeating. If anything, I've always eaten about half what other people eat and most people comment on the small amounts I eat. So, I finally went to one of those "mall health fairs" and spent $35.00 to get a blood test, which showed, lo and behold! My TSH was roughly 3.5. I then found an endo, who immediately said, basically, "Of course you need to be on meds, and we need to get a sonogram," etc., which made me feel better - until the jerk decided the other reason why I felt bad was because I was "depressed" and gave me samples and a 'scrip for Effexor. Which I refused to take until I did some research and then I REALLY refused to take it. C'mon - something that usually requires liquid Prozac to wean you off of it? NO THANKS!

BUT, I've always been on Mylan - when the company that makes it is in West Virginia, and you LIVE in West Virginia, that's what you get :)

0

Share this post


Link to post
Share on other sites

I've been gluten free for over a year and suddenly I have been so ill for almost two weeks. I know I am not eating anything with gluten. The only thing I have done is started a new thyroid prescription (levothyroxine/synthroid). Upon closer inspection I realize that I am taking Abbott's name brand pills now rather than my usual generic. I am stopping the new script immediately and ordering more medication...back to the generic!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,681
  • Member Statistics

    • Total Members
      63,885
    • Most Online
      3,093

    Newest Member
    Mato Sapa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Vegetarian here too, celiac really makes it tough as all the Quorn meat replacement products bar the odd one or two are out Then there's all the scare sites saying only paleo type diets will repair your insides but guess what they're all heavily meat / fish based. @Ennis_TX has some good ideas for meals
    • Wow guys just read all the replies Thankyou all so much!!! There are so many things you've all said that has triggered a light bulb in my little head!  The glasses may not be clean!!  I will put this to a test. One night I'll stick to bottles of cider (double checked are gluten-free)  another I'll try the Gin or William chase vodka if I can find it! And see the effects. if I loose many days due to these not working I'll see a practitioner and see what the deal is!  Before I was diagnosed at Coeliac... I went to a herbalist who did a test and said corn is funny on my body!!! But then 18months later (when I became incontinant and lost a lot of weight) my bloods came back positive (after begging the docs and telling them it wasn't IBS)  i don't tend to snack at bars on food but I must admit I never thought it could be the way it's served!!  The humour and information has made me feel so much better  thanks all  xxx
    • Hey Matt  thanks for your reply fellow Brit! I this is very interesting... I am very sensitive to cross contamination... e.g. A sieve wasn't washed properly when I lived at my mums so when I had drained my gluten-free pasta .. I hadn't even eaten the dish before I started to pass out and go dizzy and hot .. calling for my bf and mum ( they had a great team going when I would have an episode) it's horrendous!  The fatigue is something I imagine every coeliac suffers with! I have to nap a lot.  Ok so the booze I drink most of is -processo -amaretto -vodka, wine, cider (very rarely)  when I drink at home I'm fine!!!  I wonder if it's cross contamination from the bar or the level of alcohol?!  I also had a jäger bomb shot on Friday (looked it up and a lot of people say it's gluten-free)  it's a hard live but someone's got to do it!!  Thanks for the reply!  When you get poorly from gluten (and the other evil candidates) are you so bad you can't function and feel your body is about to snap?  Kind regards  steph 
    • Hi Steph and welcome I'm yet another Brit, funny how the alcohol threads flush us out I don't drink now but after a big night I used to get truly savage all day hangovers, much worse than those of my friends. They could include splitting headaches, vomiting, nausea, a 'fuzziness' in my head, sweats etc.  After I put the pieces together and went gluten free I had a 'big night' on cider only and the next day was a revelation. What I'd thought was a 'normal' hangover was, for me at least, anything but. With gluten out of the equation hangovers were a breeze! The difference was mind blowing and just one more example of how gluten had been messing with me over the years. So when I read your post my first thought was that there was some trace gluten contamination going on. However: Obviously you've been at the diet for some considerable time now and know the score. I know Coeliac UK are firmly of the opinion that all spirits are safe but some (note some this a contentious one :D) members here will tell you they react to gluten based grain spirits for instance which distillation should render safe.  Then there's the dangers of shared lines if you're drinking say Strongbow in a pub as alluded to above. Lastly it its wine, there's the often cited but maybe apocryphal these days 'flour to seal the casks' possibility. Finally there's bar snacks, maybe a brand of nuts etc that you snack on that may have changed their production process? I'm sure you've thought of these already, but it may be useful if you post your alcoholic drink choices / bar snack of choice up here maybe someone will have some input?.   The second thing which leapt out was: Would you class yourself as super sensitive to cross contamination etc? Firstly that would make the cross contamination theory more compelling. You could test that out by having a drink at home under controlled circumstances to see whether the same issue arises? That could also answer the quantity question. Does one safe drink trigger it, two, three etc? Finally, and this is one that I find difficult, knowing you have the gluten issue may lead you to assume it's that when it could be something else. I tend to attribute EVERYTHING in the world to gluten these days due to it being able to affect me in so many different ways. Crisis in Korea? Gluten. Russian tanks massing on the Ukrainian border? Check their wheat intake. Global warming? etc. So it may make sense to pursue some other ideas at the same time. Try:  http://goaskalice.columbia.edu/answered-questions/suddenly-drinking-alcohol-makes-me-sick http://www.steadyhealth.com/topics/very-abnormal-hangovers-thinking-it-could-be-allergy-to-alcohol and a doctor's answer: http://www.steadyhealth.com/medical-answers/abnormal-reactions-to-alcohol Cheers Sorry, best of luck! Matt  
    • Similarly, I've been vegetarian for 25+ years.  A 2015 Nature study connecting emulsifiers with microbiome changes has me wondering about the processed foods that I ate in the past, and I wonder about the wisdom of eating as much seitan as I did.  I mostly prefer my post-diagnosis diet since it forces me to consider every ingredient and to cook from scratch more.
  • Upcoming Events