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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Panic Attacks & Gluten
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Woohoo! I hope y'all are correct in saying that it may go away over time. I have panic attacks and anxiety, ADD, and a short-term memory deficiency that is really frustrating, as I'm an intelligent person, and therefore have a hard time when I feel like I'm acting "stupid." Brain fog is a great way to express it. Curious to see if after 6 months I can see a significant difference.

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For those of you who feel that your panic attacks/anxiety has gotten better on the gluten free diet, how long did it take to see an improvement. I have been on the gluten free diet about three weeks and haven't notice much change in my anxiety (maybe a little but not much). My doctor said "mental" issues can take months to see improvement in - things such as brain fog, headaches, anxiety/depression, etc. I had tests for celiac that were negative, but this doctor thinks with all my symptoms that I still could have an allergy and feels that I should give it a try.

She said give a few months and I might notice changes - I also have bowel issues (lymphocytic colitis and IBS). She said after a couple months if I have gluten I will know because I will probably have a "reaction" to it.

My panic/anxiety keeps me housebound and I have suffered for over 20 years so if this is the answer I would be so grateful!!! Thanks everyone.

Blessings,

Leah

Hi Leah,

I have suffered as much (if not more) mental, CNS, and neurological symptoms as GI. Panic attacks, anxiety, insomnia, fatigue, muscle twitching (Fasciculations), myoclonus (large muscle spasms), peripheral neuropathy (tingling and numbness in the extremities).

My panic attacks, anxiety, and insomnia began to improve almost immediately (within weeks) of being gluten free. They got better for a while, then took a downturn which I found was due to soy. Once I totally eliminated the soy too, they improved dramatically. I haven't had a panic attack since except when glutened or 'soyed'.

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For those of you who feel that your panic attacks/anxiety has gotten better on the gluten free diet, how long did it take to see an improvement.

I never had another panic attack after going gluten-free 4 years ago, but it was a good 18 months-2 years before the anxiety completely let up. I will still get anxious when accidentally glutened, but nothing like the way it was before.

Truthfully, I didn't even realize how bad it was until it was gone--I had lived with it for so long.

Give it time--the emotional/nero issues take longer generally than the physical ones.

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The panic attacks I've experienced were related to allergic reaction to chemicals, and certain food.

Daily yoga sequences helped me overcome the ADHD/OCD and addictive behavior. There is a sequence to help reduce the severity of brain fog. Since I am a spiritual person, my yoga practice nourishes my body, mind and spirit.

Once the panic attacks and brain fog subsided, I was able to do hours of research to determine the cause of my physical ailments. The doctors finally told me that whatever I am doing, keep doing it because it is working.

I still experience the occasional gluten attack, but those are less severe as my digestive tract heals.

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This is so interesting to me. I've had SEVERE anxiety and depression for 14 years. SEVERE ezcema type stuff on my ears since I was a child. With each pregnancy-I got worse. (I've had 5) I've also had really bad tooth decay. Just recently I tried to go gluten free for 2 weeks, but failed miserably, which led to more depression. I'm so overweight and my body hurts like I have the Flu daily, and has been for the past 3 years. After reading this thread, I'm willing to give it another shot, I'm so skeptical though.

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Yes, I had panic attacks during the years of being gluten ill before diagnosis. I had mood swings and an extreme frustration response too. Most of that was gone about three months into the gluten free diet but it took about three years to not feel like I had what I could only describe as battle fatigue as eventually the myriad of weird neurological symptoms faded away. It was a very helpless feeling at the time.

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I have had panic attacks since high school. Whether or not they are related to celiac I am not sure. I have only been gluten free for a week and a half so I guess I will figure that one out eventually. Almost everytime I have a panic attack though, it is over nothing. I bawl my eyes out and can't breath and feel like all the walls are closing in on me, oh it is just...horrible. The worst feeling ever. It got a lot worse when I was pregnant, and since then I have had panic attacks even more often. I am hoping that they are being caused by celiac...and that I'm not just going crazy! lol. I also suffer from very bad claustrophobia but it is on and off so I'm going to guess that its possible that could be related as well..

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I'm twenty four and I was I've been suffering from panic attacks for three years. Now it is interesting that I have also been suffering from Celiac's for THREE YEARS. In fact, if it weren't for my panic attacks, I would have never known that I had celiac's.

I remember calling my mom, in tears, telling her that I was losing my mind and she was like, "Uh, oh yeah, you might not be able to eat bread. I used to get terrible panic attacks and then I stopped eating wheat..."

Now, anxiety may still flair up even after not eating gluten, but I find it much easier to control when I'm not eating wheat products. I'm not trying to be a bad influence, but smoking moderate amounts of weed also helps, you just gotta say no to pizza when you get the munchies.

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I had a very similar experience. I was in college doing fine, and then I started suffering from crippling panic attacks. I would be walking to class and my toes would begin to feel tingly. Things would start to looks surreal and then BAM! I'd be death-fully frightened and no idea why. Then I'd start getting afraid that I'd start getting afraid again and my life was a big mess.

Because I am a stubborn thick headed male, I tried to "brave" the symptoms without speaking a word of it to anybody. Until one day it became so ridiculously unbearable that I called my Mom in tears. Without giving it much thought she told me that It's probably gluten and how she used to have the same problem.

Long story short. I stopped eating gluten and my symptoms went away. It took a pretty long time for the panic attacks to go away, and yes, they occasionally spike up, but they definitely WILL go away.

In the meantime, stay busy and try to distract yourself from yourself.

Here are some things that I have found to help with my anxiety. I'm not saying that they will work for everybody, but they definitely help me.

1) Taking walks.

2) Listening to music

3) Smoking marijuana (in moderation of course)

4) Listening to music and smoking marijuana

5) Thinking about people who care about you ( I don't know why but it works)

6) Writing

7) Exercise in general

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:unsure: It is interesting to see this post. I have been going through similar issues with panic attacks now that I am gluten free. It started with attacks in grocery stores where I did not know what to buy to attacks when I noticed I ate something wrong. Now, more recently, I noticed my bad nerves are taking over in my daily lifestyle. It seems I am always fussing over something. Not sure if it is celiac related or not, but my doctor seems to think so. My friend on here suggested trying fish oil pills daily. I just started on Friday so I am not sure how it will work out for me! Hopefully well. :unsure:
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Hi Everyone

So since March the doctors are saying you do have celiac disease, wait you don't have celiac disease. It's so annoying. I had an EGD and a Colonoscopy , and both times biopsies were taken and they were negative, but before that I had a positive blood test for the TTG, but the other part of the panel was negative. THey told me the next thing to do is get genetic testing to see if I have the DQ2 or DQ8 gene. It's now September almost October and finally just got the genetic testing done last week, still waiting for the results. I thought I was going crazy about two weeks ago, I started getting symptoms of a panic attack, rapid heart rate, feeling like I can't breathe, tingling feet, and sweating. I feel this way everyday, I can sleep perfectly fine. The other day I went to the ER because my pulse got to 160 and I just felt like I was going to pass out, they told me I was fine and gave me Xanax and sent me on my way. I'm not big into medicaitons. I tried it and it just made me feel out of it. THe next day I felt the same way again. People tell me I need to talk to someone and I probably have a lot of stress, but after reading these blogs I feel so much better that other people are feeling this way with gluten intolerance. I have so many symptoms of Celiac disease, and I just want to be diagnosed 100%, because I don't want to feel like this anymore. I love these forums, and they help so much.

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Hi Everyone

So since March the doctors are saying you do have celiac disease, wait you don't have celiac disease. It's so annoying. I had an EGD and a Colonoscopy , and both times biopsies were taken and they were negative, but before that I had a positive blood test for the TTG, but the other part of the panel was negative. THey told me the next thing to do is get genetic testing to see if I have the DQ2 or DQ8 gene. It's now September almost October and finally just got the genetic testing done last week, still waiting for the results. I thought I was going crazy about two weeks ago, I started getting symptoms of a panic attack, rapid heart rate, feeling like I can't breathe, tingling feet, and sweating. I feel this way everyday, I can sleep perfectly fine. The other day I went to the ER because my pulse got to 160 and I just felt like I was going to pass out, they told me I was fine and gave me Xanax and sent me on my way. I'm not big into medicaitons. I tried it and it just made me feel out of it. THe next day I felt the same way again. People tell me I need to talk to someone and I probably have a lot of stress, but after reading these blogs I feel so much better that other people are feeling this way with gluten intolerance. I have so many symptoms of Celiac disease, and I just want to be diagnosed 100%, because I don't want to feel like this anymore. I love these forums, and they help so much.

If you have had blood testing and biopsy, there is nothing preventing you from going on the gluten free diet to see if it works for you. And I mean a strict trial of the diet, not just not eating bread or pasta. I mean ferreting out all the hidden gluten in scrips and OTC meds, in personal care products. I mean not using cookware that is contaminated with gluten, not sharing containers of butter and jams and PB - all gluten. You will probably feel tons better and that will be diagnostic in and of itself. You have tried the doctors' tests; now try the true test - whether it makes you feel better. That is, after all, what counts. Be well :)

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Hello,

First of all, I just have to say that I love being a part of this forum and learning SO many things about Celiac Disease that I never knew before (even though I've had it my whole life). All of your posts have been an inspiration to me in expanding my knowledge about my own tolerances, diet, etc. Thank you so much.

But now I would like to start a topic. I know many members on this forum get more symptoms along the lines of GI, but I'm actually asymptomatic (on surface, anyway) in that area. What I AM very sensitive to is cognitive/mental ability...if I'm glutened, one of the symptoms I know I've been suffering along steadily is panic attacks. Sometimes they're minor and I can easily control them, but other times I just can't it...they take control of me instead.

I just eliminated something from my diet which it turns out I cannot have, but thought I originally could (I had no idea that mainstream cereals contained malt or malt flavoring in them!). It's been 3 days and I'm already feeling more alert and focused than I have in a very long time, but I still had a bad panic attack today. And yesterday, I was supposed to be somewhere for school but couldn't go b/c I had a BAD panic attack right before I got in the door. My body was shaking, I couldn't see straight, I was still paniky...my friend had to drive me back to campus!

So, here are my questions...

1) Does anyone on here seem to notice a correlation between panic attacks (if they have them) and getting glutened?

2) If so, then how long does it take for the panic attacks to go away? I don't expect them to go away overnight, but I would like some insight. I'm a college student with a very busy, rigid schedule, and I can't keep on getting spontaneous panic attacks that are bad enough to send me home or excuse myself. And, if the problem is gluten (which I feel that it is), than I'm not about take medication for it and mess up my system more.

Thank you to all of you once again for your support...

I get severe, pretty much all day panic attacks the second day after being glutened, along with a migraine and muscle aches; all three last for two days. The brain fog lasts for nearly a week. I'm not sure how much of the panic is a reaction to the gluten or the sudden withdrawal from it; either way, it's a sure sign that I've been glutened (as if the first day symptoms of severe stomach pain and vomiting weren't indicators enough).

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Hello,

First of all, I just have to say that I love being a part of this forum and learning SO many things about Celiac Disease that I never knew before (even though I've had it my whole life). All of your posts have been an inspiration to me in expanding my knowledge about my own tolerances, diet, etc. Thank you so much.

But now I would like to start a topic. I know many members on this forum get more symptoms along the lines of GI, but I'm actually asymptomatic (on surface, anyway) in that area. What I AM very sensitive to is cognitive/mental ability...if I'm glutened, one of the symptoms I know I've been suffering along steadily is panic attacks. Sometimes they're minor and I can easily control them, but other times I just can't it...they take control of me instead.

I just eliminated something from my diet which it turns out I cannot have, but thought I originally could (I had no idea that mainstream cereals contained malt or malt flavoring in them!). It's been 3 days and I'm already feeling more alert and focused than I have in a very long time, but I still had a bad panic attack today. And yesterday, I was supposed to be somewhere for school but couldn't go b/c I had a BAD panic attack right before I got in the door. My body was shaking, I couldn't see straight, I was still paniky...my friend had to drive me back to campus!

So, here are my questions...

1) Does anyone on here seem to notice a correlation between panic attacks (if they have them) and getting glutened?

2) If so, then how long does it take for the panic attacks to go away? I don't expect them to go away overnight, but I would like some insight. I'm a college student with a very busy, rigid schedule, and I can't keep on getting spontaneous panic attacks that are bad enough to send me home or excuse myself. And, if the problem is gluten (which I feel that it is), than I'm not about take medication for it and mess up my system more.

Thank you to all of you once again for your support...

You'll find that countless people get panic attacks because it is a major symptom. I became gluten-free 100% three months ago, but was doing a not too strict gluten free diet for years before since I thought I was only sensitive.

I used to become a different person when I was having a panic attack. I would think everyone was against me, that the whole world would crumble down on me and that everything was just wrong. I would scream at my husband and believe or do things that I would never naturally believe or do. I've not had a full-fledged episode like that ever since I went gluten free. Now I just get anxiety, and if it escalates to depression I start suspecting CC. If I ever get a panic attack again I'll know that I ate something I shouldn't have.

I also found that panic attacks aren't a long lasting symptom like anxiety.

The way you described your symptoms sound pretty much like me except that my vision remains fine and I just turn into a monster haha. So hopefully it will not come back unless you eat something that contains gluten.

I am also a uni student by the way, and if I get CC and feel poorly, I just text one of my classmates and ask them to record the lecture for me. Of course my classmate would have to ask for permission to record it (that's how it is in sweden). This method has never failed me. The only problem I have is keeping up with deadlines and producing work that matches my actual skill-level. I haven't figured out how to cope with that yet, but if you have then please let me know how you deal with deadlines ;-)

By the way, here in sweden, some students actually EAT their sandwiches in class.. they probably contaminate their desks or something. If it's the same over there make sure you wash your hands before even touching your face. I keep some wet wipes in my bag all the time in case I can't get to the toilet.

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Here are some things that I have found to help with my anxiety. I'm not saying that they will work for everybody, but they definitely help me.

1) Taking walks.

2) Listening to music

3) Smoking marijuana (in moderation of course)

4) Listening to music and smoking marijuana

5) Thinking about people who care about you ( I don't know why but it works)

6) Writing

7) Exercise in general

I wouldn't do that, ever. It's bad enough as it is to feel anxiety, so why add to it and make two problems out of one by doing something that is both illegal and harmful. This is not the way.

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I've had pretty bad panic disorder for a few years which I suspected was related to gluten but it wasn't until recently I became convinced. I've done a lot of things that help, but recently I discovered that Pepto works better than all of them. Somehow it just soothes the irritation in the stomach and helps calm the nerves that are hypersensitive from the irritation. It's fast-acting, and so far it has worked every time (crossing my fingers). I just wanted to share this in case it might help someone frustrated with frequent panic attacks caused by gluten. Before I discovered this, it used to take about a week for my anxiety to subside.

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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