This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
No, my kitchen is NOT Celiac safe/friendly. Although I do maintain a gluten free diet and use only gluten free products in my cooking/backing, there is high risk for cross contamination with toaster use, other appliances, butters, sauces, etc. Same goes for the rarer occasion that I'll dine out - I eat gluten free & only from a gluten free menu, but I don't only eat at places with Celiac friendly kitchens/prep space.
From what I can remember, I'd like to say I have been woken up with issues just a few times though, and not anything significant. I won't dispute the probability I have IBS, however, I think there is more going on, too.
Thank you for your kind words & well wishes.
I run into many parents who are in quite a quandary about instituting a gluten-free diet for their child. A typical scenario is that one of the parents is gluten intolerant and is highly suspicious that their child is as well. Due to the child beingÂ 'relatively healthy'Â the non-gluten intolerant spouse suggests that the child be able toÂ 'live a little'Â and enjoy the cake and pizza that is so prevalent during children's parties and sporting events.
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I am so sorry you have been suffering so much for so long. Yes you do need to eating gluten for celiac related testing. There is a lot we have to do to be safe. While gluten free have you been using things like a seperate toaster, dedicated condiments, butters,jams etc? have you been baking with wheat flour for others? What is your diet typically like? I ask because your doctor is woefully ignorant of the diagnosis process for celiac so he may also not have told you what you need to do to be safe. The Newbie 101 thread at the top of the Coping section has a lot of info.
I hope you get some answers soon.
One more thing. Are you being woken up at night with D? That is a good sign that you don't have IBS. IBS D hits when folks are awake.
Your doctor should have told you not to stop eating gluten until after your blood work. You need to go back on it for a bit if you have been gluten free for more than a week or two you should do a couple months back on gluten before having the blood drawn.
It isn't unusual for celiac GI issues to not be a constant thing. At least in earlier stages. For many years I would get violent D only a couple times a week before the D became a daily and nightly occurance.
Symptoms can hang on for a bit even after we are gluten free. Chances are good also that you haven't been as gluten free as you think you may be. Do read the Newbie 101 thread and ask any questions you need to ask while you wait out the time until blood work can be done.
May be something different from celiac, might be accidental glutening. How long have you been gluten-free? Many of us had symptoms for weeks, months, some even over a year after we went gluten-free.
Your blood work will come back negative if you are gluten-free. You need to be eating gluten for the antibodies to show up in your blood- if you are celiac.