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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tsh 3rd Generation?
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16 posts in this topic

My Mom had the Celiac blood panel. Or so I thought. When looking at her results, the only thing on the piece of paper is:

TSH 3rd Generation 11305

Diagnoses: 1 degree - 244.9 degrees = Hypothyroidism

.... That's it.

Now, I did do a search within this forum and on Google, however I am wondering if doctors use different terminology and just lump it under one name?

Or did the doctor forget half the tests?

Any advice would be greatly appreciated, as usual :)

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Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

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Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

LOL!!!!!!!!! I thought it didn't look right :)

Oh happy days! The doctor wrote on a piece of paper, check thyroid in 3 months. <---- that was it.

Great, I'm going to have a field day trying to get my Mom to have the right tests. The one "Celiac" blood test cost her $197.50.. I just say this because she makes a big hooplah about how much it cost.. She was wondering, being that her insurance doesn't cover the blood tests, are there any suggestions for her not having to pay "an arm and a leg" for the additional tests?

Any suggestions would be greatly appreciated :D

Thank you!

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Trying the diet without testing is free.

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Trying the diet without testing is free.

Good point. I have a feeling it will be even harder to convince her to do that. She doesn't have the classic symptoms, therefore she sees no reason to investigate this whole "Celiac" business. She does her best to support me, but doesn't want to incur the expense to find out if she has it. My Dad is the same way. She swears he gave it to me and he swears that he didn't. I don't really care who "gave" it to me, I just want to make sure they are as healthy as possible. Based off of some of their symptoms (classic or not), I think they should at least check.. if anything, just to prove me wrong. :/

But they're adults and can fend for themselves.

I have to give my Mom credit though. She did try. It's not her fault the doctor forgot the other tests.

:P

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It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

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It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

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Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

It's definitely too much... even without insurance, it should cost about $50 to check your TSH.

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Thank you for the information. :)

I will definitely look into this with my Mom. If there is a discrepancy with the amount she paid, then I would hope they would be willing to give her the right tests equal to the cost of what she has already paid for.

There's still hope yet!

Just to clarify, I don't want her or my Dad just to get tested for the fun of it. She has a lot of peripheral neuropathy issues, intermittent C (which she swears is just because she eats too much dairy), arthritis and now she has developed some sort of rash on her cheeks. I don't necessarily think the rash is DH, but I have noticed that it shows up more depending on what she is eating.

Dad, on the other hand, has (I'm just gonna list his, lol):

Acid reflux

D

C

Gas/bloating

Arthritis

Thrombocythemia - he takes medication for this

Prostate Cancer - surgery

Basil Cell Carcinoma - surgery

Hernia - surgery

Scoliosis - surgery

Hemorrhoids

Diverticulitis - dx back in the early 90's

Those are just the things I can remember off the top of my head. His sister also has gluten-intolerance and is a self-diagnosed Celiac.

Anyway, they both support me, but don't want to spend the big bucks to get tested. They have a PPO and it has a high deductible, hence all this hesitation to pursue further testing. This is great information about the test being cheaper than what my Mom paid, hopefully this will be an incentive to have her get the right tests - insurance permitting (and cooperating).

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I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

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I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Well, she had the tests done about 5 months ago.. So, I'm hoping they would have all come back. We put a call in to the doctor to find out if maybe she forgot to send all of the test results. At the time of the Celiac panel she also had her cholesterol checked and a couple other routine blood tests. She said that they filled 6 viles of blood. I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Thank you again, all this is really helping :)

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I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

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I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

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Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

It is quite possible that I had everything under the sun tested.. So, maybe she actually had the right amount. I'll have to find the results for my panel.. now I'm curious :)

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I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

The doctor mailed her a piece of paper that said:

"slightly low thyroid level, check in three months"

That was it. No other follow-up or further information was provided.

Yeah, I would say anything over 10 viles and you just sort of stop caring.. haha :P

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Egads, she needs to follow up on the thryoid stuff. Its not something that should just be followed. I'm sure she feels HORRID.

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