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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Celiac(s) From Canada
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134 posts in this topic

The list keeps growing.

I am originally from Moncton, now living in Halifax. To be more precise Cole Harbour (Sid Crosbyville). I was diagnosed 2 years ago. I am a silent Celiac, which means I don't get any symptoms. That is why I spend much time exploring this forum. I don't know if I am making mistakes unless I hear it from others.

Cheers,

DougE

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Hello from Northern BC.

Self diagnosed gluten , yeast, dairy, and sugar intolerant with multiple allergies, later confirmed by naturopath.

Allergic to grass and tree pollen for many years, and recently diagnosed by specialist with multiple connective tissue disease, and arthritis.

A vegetarian most of my life with return to meat eating for protein. 10 years ago noticed sensitivity to most items. I decided to do multiple elimination diets to pin point problem, eventually determined that I am most sensitive to gluten.

I will see allergist in Jan '10 for first time in 20 years to confirm what I already suspect.

I'm on a gluten free, dairy, yeast and sugar free diet by choice later encouraged by naturopath.

Feeling healthy and definitely wiser, and looking forward to a productive and prosperous new year and wish the same to everyone at Celiac.com.

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Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

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Hi curious george,

I live in Hamilton Ontario , my test was covered , the secret is to get it done at a hospital lab, the insurance did not cover the test from the lab at my doctor's office , make a few calls , it must be the same in Toronto. Good luck!

Miche

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Hi all, I'm new to the gluten free life and live in beautiful BC.

I haven't been officially tested for celiac disease or gluten allergy/sensitivity, but got tipped off to the gluten-free diet when a friend was diagnosed.

I've had multiple autoimmune issues since I was 9 (and more suspected since I've started to look at connections), and had a range of severe pain symptoms over the last year, some attributed to internal scar tissue, some to injury of the ureter.

Ultimately the Dr suggested my bloating and cramping was due to adhesions wrapped around the intestines, but merely days after avoiding gluten I've had pretty much zero bloating and pain after eating.

I don't know that I'll go for full testing at this point, everything I've read online suggest that I can still be healthy as long as I get enough grains and protiens.

I just wanted to say hi because I intend to follow the diet someone who has celiac's would and may go for testing in the future. I am confident this is the answerr for me, my brain is clearer, I'm WAY more calm and rational, I have no more digestional problems after eating, and my skin is no longer so itchy I cuould claw it off. I have noticed a bit of acne which is abnormal for me, but I'm hoping it's just any toxins leaving my body.

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Hi I'm Jen, I live in Qualicum Beach (Vancouver Island). I suffered for years with major stomach problems and was finally diagnosed as celiac about a year or two ago. Since I have been gluten free my life has changed completely. I was so sick and so toxic that I lost 25lbs in a month and was completely emaciated. Since going gluten free, I no longer suffer from flare ups and am very strict about what I put into my body. I am still learning and am always researching new recipes and trying to learn everything I can on how to keep myself safe.

Just wondering if anyone here attends Celiac support groups and if so, what are their thoughts on it??

Thanks,

Jen

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Hi, I am Toby, from Northern B.C. new here, just registered today.

Diagnosed as celiac as a small child. Re-diagnosed as celiac by biopsy in 1992, after three years of misdiagnosis by several doctors. In 1992 there were few choices available ( up here anyway ) for gluten free foods in the stores. Today, the selection and availability is nothing short of awesome. gluten-free beer, pizza, pasta, breads and mixes, life is good! One thing I have found that has not changed over the years is that most 'normal' people do not know what gluten is or whre it is present, and unfortunately this includes most people who work in restaurants. It has become second nature to decide what foods and ingredients are safe (not always right though!) but the issue of cross contamination is the most difficult thing we have to deal with. Bye for now.

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Vancouver Island, Chemainus, BC

Gluten free for 1 mnth. false/positive blood test last month. Doc said I could go back on wheat for 2 wks to do test all over again. I feel so much better, eating lots of fruit and veg, lots of energy. Eating breakfast, never did before because I always felt sick. I eat about 5x a day, small snacks and my reg. meals. I find it easy to not eat wheat because of how I feel if I do. find some people feel "sorry" for me because I can't have the regular bread and goodies, but have found really great products out there. Best way I can explain it is I have found that the wheat/gluten is POISON to me.

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QUEBEC MONTREAL OVER HERE ! :)

ive had celiac for 1 and a half years and still adjusting to the whole forever thing :(

anyone else from montreal or quebec for that fact send me a message i would love to talk :D

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I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

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Hi Krista,

I am from Toronto and diagnosed last fall. It is a challenge to say the least. I am finding some really good products though.

Last weekend I tried a new bread that my sister in law found for me to try. It is the closest thing that I have found to regular bread. I have found the website and you can order directly from them. The company is O'Doughs. I tried the Flax Bread and it is soft and fluffy and a decent enough size.

Some of the mixes are really good from Bob's Red Mill. They deliver to Canada and are really good. I have found Gluten Free Oatmeal from Cream Hill Estates out of Quebec. I can tolerate Oatmeal and it is good to bake with. I have also bought Pamela's All Purpose Baking flour and pancake mix. I did buy it in the States though. A big bag was about 18 dollars US and is enough for alot of products.

I am slowly finding out that I can substitute the gluten-free flour mix for regular flour in recipes. If you can find a cooking class for gluten-free cooking that is a good way to get started.

I have found that corn pasta is better then the rice pasta. I bought Mrs. Peepers corn pasta and it stays together and is not slimey like rice pasta nor does it become mush when you cook it.

I hope that this helps.

Lisa

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Hi K Dawg,

I am here from Brampton. New to this as well. I have found a bread that is absolutely wonderful and it is produced here in Toronto. O'Doughs Flax Bread. They have a website and you can order from the factory.

It is soft and fluffy and a decent sized loaf. You could actually make a sandwich with this bread without toasting it.

I was diagnosed last fall and it is a challenge.

Good luck.

L

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Hi I'm Mike, a Brit, living in Burlington, Ontario. Just joined this forum today.

Still awaiting diagnosis but been gluten free for nearly a month and feeling a million times better.

Kinda scared that I have to eat gluten again in the coming weeks ready for my biopsy.

Really lucky that there are two great health food stores just here in town who have been really, really helpful.

I'm learning to cook and loving it!

Good to be here! :D

Hi Mike, im just curious what brought you to burlington all the way from england?! Also, what part of England are you from? Yrs ago i first heard of gluten when i was working for M&S as a student in England (milton keynes to be precise) and now here i am, diagnosed with celiac a yr ago....

cheers ;)

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Originally born in Montreal, lived in Toronto for 49 years and now I am in Dallas Texas. I understand that Ontario Pizza Hut stores have gluten-free pizza - we don't. From what I've read, Ontario has many more options for gluten-free food than we do.

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Burnaby, B.C. over here!

It's crazy to see so many people just a skytrain ride away.

I've been feeling sick for about two years ago, nauseous, stomach pain. It keeps getting worse. A year ago my fiance's best friend got a negative test for Celiac, but as his mom is a Celiac he went off gluten. He's been feeling great. It was my fiance who made the connection between our symptoms first, and now I find my mom who's been taking medication for IBS is now going gluten free after finding eliminating a lot of bread products has stopped her problems.

I had three vials of blood taken from me today, some sort of liver panel, and some sort of tissue test and a couple other things. Either way, I know the tests aren't always accurate and I plan on going gluten free.

And same with what others have said, I can't figure out sushi. I've found wheat free soy sauce brands to look for, but what about wasabi? And how would I find out what is exactly used in the preparation process that garuntees there is no gluten?

Nice to meet you all :)

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Hi,

from the east side of toronto, ON which is Oshawa (i know i know one day soon i will move from this dirty town) good to know there are alot of us from Canada.

Mia :)

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Hello from Beachville ontaio! (near london)

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Hi everyone

I live in Richmond BC, I have been gluten free since August 2006 after struggling with huge digestive problems, stunted growth as a child, depression as a teen and young adult, etc etc.

I hope I can help with Stylo and Miloandotis' sushi question. I am SUPER sensitive so keep that in mind. I have never encountered sushi rice that is a problem here, although when I was in Quebec they told me I could not eat sushi at all the restaurants I went to. It turned out the rice vinegar they use there contains barley malt. I suppose it's something that is common there and not so common here.

When I go out for sushi, I call beforehand and inform them of my allergy. When I am there an ask them to use a clean knife every time they cut my rolls and I ask about the wasabi and rice vinegar. I use Bragg's liquid aminos (pure fermented soy sauce) because it is less expensive than the wheat free soy sauce I can get here. I had a bad reaction to miso once so I don't do it. I used go to a sushi restaurant called Iki, on Broadway and MacDonald. If the owner of the restaurant is working (his name is Kyo) I feel really comfortable because he is quite knowledgeable.

I hope that helps you! Please feel free to ask anymore questions about Vancouver!

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i'm Jennifer here in the lovely fraser Valley of BC. So happy to have found an entire board just for us.

I'm not celiac but like i say in signature i'm pretty darn close. Its been a challenge especially with inlaws who refuse to understand, and am now at the point where i'm not eating at their house anymore. I'll bring my own food b/c i know whats in it. LOL

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Hi,

I'm in Vancouver, BC. I diagnosed myself a year and a half ago and have yet to meet another live person with Celiac Disease, but glad to find support here in the ether.

I haven't had any tests and my doc just said if I feel better than just stay gluten-free.

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Hi,

I'm in Vancouver, BC. I diagnosed myself a year and a half ago and have yet to meet another live person with Celiac Disease, but glad to find support here in the ether.

I haven't had any tests and my doc just said if I feel better than just stay gluten-free.

Hey, I'm in northern bc(ft nelson) there's a huge gluten free comunity in Vancouver. Just google gluten free vancouver

Cheers

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In Vancouver B.C. here...actually just on the outskirts, recently moved to Cloverdale. Nice to meet you all!!! :)

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Hi all,

New here and looking for some info.

We recently learned that we have Celiac in my family. Looking at the symptom profiles, my daughter has a cluster of issues that seem highly suggestive of Celiac. I too have had some of the more subtle symptoms. My question is, we have made an appointment with our GP, but how long can we expect the process of diagnosis to take? We are originally from the States and still somewhat unfamiliar with the process of referrals and wait times here in Canada. We are currently in Halifax. Anyone have experience? I have a gut feeling about my daughter and would like to start the diet ASAP but I know I must wait until she has been tested.

Thanks!

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I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi Gerri; I'm from North Bay Ontario Have been Biopsied Celliac Since 2005 WOW what a change in eating habits. SinceI now adherr stictley to my gluten free diet I've Gotten a big belly And can't control my weight very well So have trouble with Diabettes as well. But life goes on so have fun Live, Love&,Laugh Ron

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Hi fellow canadians! I'm from Montreal!

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