• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Celiac(s) From Canada
0

134 posts in this topic

Recommended Posts

Hi fellow Canadians

Im excited to see other from Hamilton Ontario!!!!!!! Definitely going to check out the food places recommended. I've only been diagnosed for 1 week.

My brother took me to the whole foods in Hamilton and I was in heaven.lol Some of the items I buy locally were a couple bucks cheaper (and when it is my son's school snacks that helps a lot) they had a sale and I stocked up! lol wish we had one here.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Annaatje    1

Hello there!

I live in Ottawa, Ontario. Moved here from Holland 6 years ago.

I'm new to the forum, my oldest DS just got diagnosed and the rest of us are now getting tested.

I'm so grateful for all the resources out there! And also the amount of gluten-free food available. We took my DS off wheat for about 1.5 years a couple of years ago and even in that short amount of time the gluten-free options have improved! I usually shop at Food Basics and they now have a gluten-free line of the Irresistible brand, their gluten-free breadcrumbs are a whole lot cheaper than other brands I've seen :D

Share this post


Link to post
Share on other sites
DougE    3

hi i am from nova scotia

i am a 42 years old and i went for testing yesterday for celiac

i am trying to go gluten free but its just in so many foods that i did not even think when i bought these sauages for a gluten-free meal, that one of the ingredients is toasted wheat crumbs and i got sick after the meal, im still learning

Hi collgwg,

Sorry to hear about your ordeal with the sausages. I do have some good news. Sweet Williams sausages made right here in Nova Scotia are all gluten-free. They sell them at some of the farmers markets.

Share this post


Link to post
Share on other sites
collgwg    7

thanks doug i found that james lamm has all gluten free sauages and have made some great dishes with it

now just to stay away from soy gluten and lactose ill be good

Share this post


Link to post
Share on other sites

thanks doug i found that james lamm has all gluten free sauages and have made some great dishes with it

now just to stay away from soy gluten and lactose ill be good

Such fun! So many of us from all the provinces and territories. I am north of Toronto, off Lake Simcoe. Originally from Belleville Ontario.

I took my diagnosis as the dream come true that it was to me. Finally a reason, a definable, medical reason, that others could understand. No more pain, no more embarrassment, no more bloating up and looking pregnant randomly, rashes from my job...I was a Baker :-)No more 2-3 times a year hospital visits, with an exhausted husband asleep by my bedside while I cried silently in frustration that I was back here AGAIN.

I already knew how to bake and cook, though for a week or two I felt a bit overwhelmed and just ate salad and chicken lol. Then my appetite and creativity kicked in. I have always been the daughter that cooked for my family since I was 9, it was a passion! SO now, when we visit my mother, or sister or M-in law, I still make everything, but its all gluten free now. X-mas dinner was a mescalin greens salad with lobster in a lemon and butter vinagrette, followed by orange roasted root vegetables, mashed potatoes and Leg of Lamb. Pavlova with fresh whipped cream and berries for dessert. Anyone who says they don't know what to eat...give it time, you will find your way. It just takes time.

Without my husbands support, before and after diagnosis..well I don't even want to think about that.

To anyone trying to find certain items at a local store but coming up short, I would say, check out a recipe and have a go at it yourself. Making your own food is very satisfying and somethings that you may have thoughts were complicated are not. Things like beef jerky, or yogurt/sour cream, or even your own potato chips. All super simple things. If you need any recipes, PM myself, or check out the recipes section.

I am super excited to see so many Canadians on this forum, lets keep this thread rolling!!

Share this post


Link to post
Share on other sites
Reba32    41

I live in Whitby, ON. I've been gluten free since December 2009, and moved to Whitby May 2010.

I know there's a gluten free bakery here, but I also stay away from refined sugars and high carb options, so not too many baked goods (or manufactured gluten-free foods) unless I make them myself with nut flours and xylitol or eryrithritol or stevia.

I like the sausages that I get at FreshCo, gluten free and preservative free. I'm also loving the new Schneider's Natural meats! The hot dogs are awesome :)

  • Upvote 1

Share this post


Link to post
Share on other sites
love2travel    396

I live in Alberta, three hours from the nearest safe restaurant and absolutely no gluten-free bakeries to my knowledge (except perhaps Calgary which is about 6-7 hours away). However, I scratch cook and bake anyway so rarely want/need that other stuff. I was diagnosed with celiac in February and have been strictly gluten-free ever since. Not feeling any different at all but then I did not have obvious glutening symptoms prior to my diagnosis. A couple of small changes - smooth fingernails and skin.

As a big time foodie sometimes I find it difficult not being able to participate in food fairs and so on but am definitely used to the new lifestyle!

Share this post


Link to post
Share on other sites
rainer83    3

I'm from Mississauga!

Was diagnosed by a Naturopath, after finding out testing isn't covered here, and I didn't have the money. She put me on a gluten free diet 2 years ago after trying other diets (Dairy free, soy free, etc) which none worked, except for the gluten free diet.

BTW - if anyone travels to Niagara Falls, there's a great gluten free bakery in Vineland, ON called Old Oak Country Market. They have the best selection of cookies, cereals, breads, muffins... even pasta and chicken pot pie, and it's all at a reasonable price.

Share this post


Link to post
Share on other sites
sora    18

Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

I am very new here and from Ottawa, Ontario.

The Celiac test is covered by OHIP if you have it done at a hospital blood clinic. Check first because some hospitals won't take outside patients.

Charlotte

Share this post


Link to post
Share on other sites
red island    6

Hi everybody

I'm from PEI, since I've been diagnosed I found that there are alot of celiacs on the island so finding gluten free food has been pretty easy

Just visited my brother in Beamsville, Ont and they took me to the Farmers Market there where I got the most amazing gluten-free pita bread - I think it was from Barb's Frozen Pitas - they are also at Grimsby and will ship their products.

Share this post


Link to post
Share on other sites
DougE    3

Hello, I am newly diagnosed and I am from Nova Scotia! :)

Welcome Skittles. It is good to see a post from a fellow Nova Scotian. I am in Cole Harbour.

Share this post


Link to post
Share on other sites
andrewp    0

Hey Im Andrew, 25, and recently started gluten free! Its kind of hard but Ive definately noticed a difference in how i feel by just modifying my diet! It would be great to meet with people and see how they are doing!

Share this post


Link to post
Share on other sites
Mateto    7

Newfoundland!

We have a lot of people with gluten intolerance and coeliac, and I read that that is because most of us are of Irish/British descent.

The same would go for Nova Scotia and PEI too, wouldn't it?

But hello :P

Share this post


Link to post
Share on other sites

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi I am from st thomas ontario and have just found out I have a gluten problem ..It is a lot of work ..

Share this post


Link to post
Share on other sites
lewiss    0

Hi,

I'am from alberta, canada. Just new to celiac.com Hope to learn lots and the ride so far has been on of fatigue, hope it gets better.

sljh

Share this post


Link to post
Share on other sites
psawyer    687

I know I replied once before, but there are eight pages. I am in Canada, in the City of Markham, NE of Toronto.

Share this post


Link to post
Share on other sites
lewiss    0

I know I replied once before, but there are eight pages. I am in Canada, in the City of Markham, NE of Toronto.

Hello Peter:

Nice to see that your are from canada, the city of toronto. How long have you been gluten-free, and have you noticed any changes in your health, i would be interested to know.

Lewiss

Share this post


Link to post
Share on other sites
psawyer    687

Hello Peter:

Nice to see that your are from canada, the city of toronto. How long have you been gluten-free, and have you noticed any changes in your health, i would be interested to know.

Lewiss

I was diagnosed and went gluten-free in July of 2000, at 46, so twelve years now. I had severe damage to my villi, so my healing time ran quite a while. I am the healthiest I have ever been.

My personal journal into celiac hell began in earnest in 1995, but looking back over my life I can see things that may have been celiac disease symptoms as far back as early childhood. Eczema as a child, various gastric issues all my adult life, migraines, anemia. It took a while to recover, but all of those symptoms are gone. I do have occasional diarrhea, maybe because I accidentally pick up some gluten, but I'm more inclined to think that it just happens once in a while. It is no longer several times a day. B)

Share this post


Link to post
Share on other sites
lewiss    0

I was diagnosed and went gluten-free in July of 2000, at 46, so twelve years now. I had severe damage to my villi, so my healing time ran quite a while. I am the healthiest I have ever been.

My personal journal into celiac hell began in earnest in 1995, but looking back over my life I can see things that may have been celiac disease symptoms as far back as early childhood. Eczema as a child, various gastric issues all my adult life, migraines, anemia. It took a while to recover, but all of those symptoms are gone. I do have occasional diarrhea, maybe because I accidentally pick up some gluten, but I'm more inclined to think that it just happens once in a while. It is no longer several times a day. B)

Hi:

Do have to watch your glycemic loading of certain food, that spike your blood sugar on the gluten-free lifestyle, l would be interested to know. Also where is your energy level high low, mine is moderate to low. please comment.

Lewiss

Share this post


Link to post
Share on other sites
love2travel    396

Hello, fellow Albertans! :)

Share this post


Link to post
Share on other sites
RMQ    0

Hello! I am new too! (To the forum and to Celiac Disease!)

I am in Calgary and am recently diagnosed. I feel somewhat lucky, as my symptoms have progressed so quickly since the birth of my child 11 months ago that I haven't suffered too long before being diagnosed.

I have quickly developed symptoms of rheumatoid arthritis, am losing my thyroid functioning (auto-immune issue), and generally felt extremely foggy and fatigued. Occasionally I get gut wrenching spasms and diarrhea. For the last 15 years I've been told I had IBS and a few years ago had issues with cervical cancer which appear to be resolved. I had no idea I was systematically poisoning myself with almost everything I was eating!! Unimaginable! I had no knowledge at all about celiac. Now that I am educating myself, I can see how many people in my family seem to be suffering from symptoms. I have read that depression is a symptom of gluten intolerance, and several family members have struggled with clinical depression. No one else seems to want to get tested yet and sign up for the gluten free diet.

I have become allergic to eggs too, and hope to repair my gut before I become allergic to more foods! I am doing well following the diet but do get 'glutened' from time to time.

I want to say something to the folks on this forum and elsewhere who have celiac disease - I feel so grateful that there is already such a compassionate and trailblazing community. It is really these forums that have helped me to feel not alone and that many people really get my experience! No one in my personal circle can really understand my experience, and I was feeling pretty alone. Since discovering this forum, advice on eating out, and great cookbooks etc., I actually feel like I belong to a community. And this is indeed a positive thing. I look forward to being a part of a great community, weathering my ups and downs, and hopefully feeling really well again (or maybe for the first time in memory??)!

Anyway, sorry for the ramble, but it feels good to 'talk' about it, and to say thanks for the support. This forum has already been so valuable to me over the last months!

Rebecca

Share this post


Link to post
Share on other sites
GwenO    4

Hello from Nanaimo. My 11 year old daughter newly diagnosed.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,912
    • Total Posts
      938,647
  • Member Statistics

    • Total Members
      65,835
    • Most Online
      3,093

    Newest Member
    Shirley Ann
    Joined
  • Popular Now

  • Topics

  • Posts

    • It's unfair to make such a general statement about ER's and hospitals.  Unfortunately, I've been to the ER several times and hospitalized three times in the past few years.  The staff took me seriously when I told them I had celiac.  Popsicles and drinks were checked for gluten, and a good laugh took place when a nurse came in to remove the cheesecake that was brought to me when the staff found out it was our anniversary. Dietary services were called and Lucy's gluten free cookies were given to me instead. Once admitted to the hospital, a dietician was sent to my room to discuss meals and she checked back with me a couple of times.  The only mistake made was the dairy free protein shakes that were delivered daily and left untouched.  When dietary called my room to ask why I wasn't drinking them, my husband had to inform them to read the label as it was clearly labeled containing milk products.  
    • Here is more information about testing family members. https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/  
    • Hello, I have been dealing with a mysterious rash for the past ten years that I am slowly beginning to think is DH.  It comes and goes, is itchy as all get out and shows up in all the areas that DH appears (elbows, back, torso, knees and base of neck).  It comes and goes over the years which has thrown me a little, but from what I can tell it can happen with DH? Anyways I went to an allergist, he was a jerk and told me it was not an allergy and to get a biopsy (which was done ten years ago when it first happened, but okay).  Me being at my wits end I called up a local dermatologist and got an appt for a biopsy.  I went in armed and ready with the info I have read here about the correct biopsy etc.  Well of course the dermatologist wouldn't give me the time of day Would not listen to the past history of the rash or look at photos, was in and out within five minutes and insisted on a scratch biopsy instead of a punch biopsy.  She simply said she would be highly surprised if it was DH.  I try to respect doctors so I pushed but I did not push hard enough.  She did the scratch biopsy against my recommendations.  So that brings us to today when I received a message that the biopsy showed an allergy and that they could either give me an order of prednisone or refer me to an allergist.  Now if you remember my local allergist sent me away and said it wasn't an allergy.  I am so done and I refuse to just keep medicating myself, I need to find the root cause.   So I have a physical tomorrow night with my regular doctor and I am tempted to just insist on a punch biopsy next to the rash for a proper biopsy.  Couple questions for you guys though.  If a scratch biopsy came back as an allergy could that possibly lead to gluten allergy (I know it doesn't prove that, but could it mean it could be gluten?).  Should I keep pushing for a punch biopsy? I am planning to go gluten free after this appointment anyways but I keep eating it to try and get a proper diagnosis.  I feel I should get a proper diagnosis, one to keep me on track, one to make sure that is what it is and also I did try gluten free for 30 days before and it didn't seem to help the rash.  But from what I have read that could have been to short of a time.  I feel I need a proper diagnosis to help me stay with it and keep on the right path.   Lastly, the rash definitely went through stages and is at an end stage, still itches like crazy but isn't as bad looking as when it started.  Does it matter when you take the biopsy as long as there is a rash it will potentially show?  I hope all this makes sense.  I am tired of being told I am crazy from doctors.  If they could find the solution I wouldn't be looking myself.  I would be very happy to be proved wrong but so far that has not happened and I just want an answer! So tired of being itchy!! Thank you very much for your help and listening!!!
    • I'm sorry I don't have much advice for you but I can relate in some ways. I've took generic Zoloft for about 10 years. When I was diagnosed celiac I worried about and researched my medications and am confident that they are safe for me. I have spent many years fighting depression and anxiety and have tried different meds but finally accepted I need the Zoloft and Xanax probably for life. I will say that most of our serotonin is in our stomachs and any time I switched meds or had to withdrawal my stomach issues were the worst. So please be careful with switching or stopping ( never cold turkey) any psychiatric medication. Also you could be sensitive to other grains. Gluten free bread does not like me. Also so far I have not found any one in the medical field that takes celiac seriously. I have been laughed at even and most don't have a clue what problems gluten does to us mentally and physically.
    • When does it matter if its gluten-free? ( likely is)  but she isn't eating it. She isn't 2 and put her fingers and paint brush in her mouth.  Are you or your son going to lick the glass?  Of course not.    Any paint can be be scraped off glass with a razor blade.  Some people use dry erase markers
  • Upcoming Events