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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Celiac Be A Cause For Gastritis?
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17 posts in this topic

Hello all! I had by endo and colonoscopy yesterday, I guess all went well. I wont know anything though, until my follow up, which isnt until May 1st. The doctor took biopsies, and she said she took several, in different places, (she is suppose to be very knowledgeable in Celiacs) even though I have been gluten free for almost 6 months..best to see whats going on. Anyway, she did notice I have mild gastritis, and sent more biopsies to see if she can see a reason for that as well, but in the meantime, I was wondering if Celiacs or Gluten sensitivity can also cause gastritis? just wondering...thanks

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For my DD gastritis was her primary symptom.

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For my DD gastritis was her primary symptom.

Hello, how long did it take her to notice any improvement?

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She saw improvement within about a month. I have had problems with gastritis myself but for me it comes with injesting soy and once as a reaction to a prep I was given for a colonoscopy. I was handed a bunch of acid blocker script samples but took Pepto instead which helped me heal within a week or so. Gastritis is literally 'inflammation of the stomach' and that can be caused by a number of things including gluten. I hope this improves for you soon.

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My endoscopy showed mild blunting of my villi and inflammation of my gastric mucosa....and my GI doc told me I have "chronic gastritis." I wasn't diagnosed with Celiac but went gluten free anyway. I'm having my biopsy slides looked at by another, more knowledgable doctor and will be getting the results back soon. I'll let you know when I find out! I don't really know why I had the inflammation and my first doc never even explored reasons for it (it seems obvious to look for answers, I mean your body parts/organs/tissue just shouldn't become inflammed for no reason!!) That's awesome your doc is searching for answers and not just leaving you hanging. I know that gastritis can be relatively harmless, but I would think doctors would want to know the cause. I suspect that Celiac can cause gastritis, but I'm not a doctor or anything.

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Hello all! I had by endo and colonoscopy yesterday, I guess all went well. I wont know anything though, until my follow up, which isnt until May 1st. The doctor took biopsies, and she said she took several, in different places, (she is suppose to be very knowledgeable in Celiacs) even though I have been gluten free for almost 6 months..best to see whats going on. Anyway, she did notice I have mild gastritis, and sent more biopsies to see if she can see a reason for that as well, but in the meantime, I was wondering if Celiacs or Gluten sensitivity can also cause gastritis? just wondering...thanks

Yes - it is my primary and ONLY symptom ever diagnosed by a doctor. All of my boys had severe problems with Reflux. Now that the family is gluten-free, noone has had any reflux or asthma problems. BTW - alot of times asthma is caused by less severe Gastritis and reflux. I have the DQ8 gene and also have an atypical DH reaction (it's less severe and more like ezcema). It is definitely a 'type' of DH because it occurs, and spreads, like DH. My sons (two of them) get it on their knees, elbows and buttocks. I don't get it anywhere typical anymore.

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For my DD gastritis was her primary symptom.

Can you please tell me what DD stands for? Ive read it a few times and I have no idea. haha... thank u!

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Yes - it is my primary and ONLY symptom ever diagnosed by a doctor. All of my boys had severe problems with Reflux. Now that the family is gluten-free, noone has had any reflux or asthma problems. BTW - alot of times asthma is caused by less severe Gastritis and reflux. I have the DQ8 gene and also have an atypical DH reaction (it's less severe and more like ezcema). It is definitely a 'type' of DH because it occurs, and spreads, like DH. My sons (two of them) get it on their knees, elbows and buttocks. I don't get it anywhere typical anymore.

I also had an upper endoscopy done and was told by my doc I have mild erythema and petechiae which she suspected is non erosive gastritis. Then labeled it as being caused by GERD and sent me on my way, but none of the meds she gave me helped at all. Is this the same thing you are talking about? I am very interested in hearing this is your primary symptom. How long did it take for the reflux to go away? Also, I have lots of problems breathing when doing lots of physical things and/or when it's hot. COld doesnt bother me so much. Went to several docs that told me it was exercise induced asthma, borderline asthma, and one even told me to stop running or deal with it. What a jerk huh? I cried my eyes out at the time haha.. I was only in like 10th grade! Thanks for all the wonderful info. You guys really help us newbies!

Jenn

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Can you please tell me what DD stands for? Ive read it a few times and I have no idea. haha... thank u!

DD=dear daughter :)

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DD=dear daughter :)

OH!!! hahahha... that's really sweet :) thank u!

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Hello all! I had by endo and colonoscopy yesterday, I guess all went well. I wont know anything though, until my follow up, which isnt until May 1st. The doctor took biopsies, and she said she took several, in different places, (she is suppose to be very knowledgeable in Celiacs) even though I have been gluten free for almost 6 months..best to see whats going on. Anyway, she did notice I have mild gastritis, and sent more biopsies to see if she can see a reason for that as well, but in the meantime, I was wondering if Celiacs or Gluten sensitivity can also cause gastritis? just wondering...thanks

FYI, if you've been gluten free for 6 months, your biopsy will probably be negative for celiac disease, even if you do have it. Bloodwork will also be negative.

Even if you do have full-blown celiac disease, you have to be actively eating LOTS of gluten to have any chance of getting the tests to come out positive....and then you'd better not be on any immuno-suppressant medications like prednisone, because that would suppress auto-antibodies and allow the intestine to heal, again causing falsely negative tests.

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FYI, if you've been gluten free for 6 months, your biopsy will probably be negative for celiac disease, even if you do have it. Bloodwork will also be negative.

Even if you do have full-blown celiac disease, you have to be actively eating LOTS of gluten to have any chance of getting the tests to come out positive....and then you'd better not be on any immuno-suppressant medications like prednisone, because that would suppress auto-antibodies and allow the intestine to heal, again causing falsely negative tests.

I was reading from some other forums about a place called enterolab. Their website says for the stool and saliva test you can be off gluten for 1-2 yrs and still have a correct diagnosis. Do you guys know anything about this and if it is accurate or not?? Id really like to know if I really have celiac or just a sensitivity/intolerance. Thank you!

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I also had an upper endoscopy done and was told by my doc I have mild erythema and petechiae which she suspected is non erosive gastritis. Then labeled it as being caused by GERD and sent me on my way, but none of the meds she gave me helped at all. Is this the same thing you are talking about? I am very interested in hearing this is your primary symptom. How long did it take for the reflux to go away? Also, I have lots of problems breathing when doing lots of physical things and/or when it's hot. COld doesnt bother me so much. Went to several docs that told me it was exercise induced asthma, borderline asthma, and one even told me to stop running or deal with it. What a jerk huh? I cried my eyes out at the time haha.. I was only in like 10th grade! Thanks for all the wonderful info. You guys really help us newbies!

Jenn

Yes it is my primary symptom. They were going to give me medicine for reflux but I refused and went gluten-free. I found I had to refrain (for a while) from both Gluten AND Diary to have the reflux go away.. but it went away almost immediately (few days). Asthma took 1-2 MONTHS to go away. My son had severe Asthma (3 yrs old) and we took him off gluten. Turns out he has been 'undiagnosed' with Asthma and rediagnosed with Gluten induced asthma. What you describe sounds like the stomach valve is damaged (from reflux) and when you exercise it allows the stomach acid to go up your throat and cause asthma. Hence, if your GERD is caused by reflux from gluten, then stopping gluten should remove all your symptoms. My dad had 30 YEARS of reflux and it went away completely within 2 weeks and he stopped taking his medicine for stomach problems within 1 month. He hasn't had it reoccur since completely stopping gluten.

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Yes it is my primary symptom. They were going to give me medicine for reflux but I refused and went gluten-free. I found I had to refrain (for a while) from both Gluten AND Diary to have the reflux go away.. but it went away almost immediately (few days). Asthma took 1-2 MONTHS to go away. My son had severe Asthma (3 yrs old) and we took him off gluten. Turns out he has been 'undiagnosed' with Asthma and rediagnosed with Gluten induced asthma. What you describe sounds like the stomach valve is damaged (from reflux) and when you exercise it allows the stomach acid to go up your throat and cause asthma. Hence, if your GERD is caused by reflux from gluten, then stopping gluten should remove all your symptoms. My dad had 30 YEARS of reflux and it went away completely within 2 weeks and he stopped taking his medicine for stomach problems within 1 month. He hasn't had it reoccur since completely stopping gluten.

Wow Praise the Lord the symptoms went away!! :) Thanks so much for the info. When you say no dairy for a while would that include yogurt? I've been eating it since I stopped gluten and had ice cream 2 times.. (oops! haha it's my weakness) and my stomach doesn't hurt at all anymore, but the reflux is still there. So, maybe the yogurt and ice cream are the cause?? thanks again

Jenn

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Hello everyone! Its interesting to learn about all these symptoms are related to gluten. After I gave up gluten back in October, I was able to stop the Prilosec completley! my old gi doc, had me taking two a day, instead of just one. I was so sick of those old gi docs that I seen in the past, only telling me to take more pills, to "relieve" my symptoms. The only true relief I have had, honest to God, is to stop eating gluten. In fact, last year, and, actually every time I seen these docs in the past, I was alway told to increase my fiber, with, you guessed it, eating more whole wheat! well, of course I would try it, and be sicker! anyway, its absolutely amazing to me, the difference I have already noticed being gluten free. I have my follow up for all these last procedures, on May first, so Im anxious to what my doc will say. Also, of interesting note, last year, I had diverticulitis, but, now, after this last colonoscopy, there was no mention of it...does that gett better too?

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DD=dear daughter :)

:P Good to see you Patty! My name is now EvieLS..used to be on as evie but had to get a new email address to

Post. hope you are doing well.

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