• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do I Have A Sensitivity
0

7 posts in this topic

Hi

I never new I had celiacs. I went for an annual physical and my blood work came back and I wasnt absorbing vitamins. So i went to GI and was diagnosed after endoscopy.

So here is what I am wondering...I know not to eat gluten and I dont at all. But do i really have to worry about getting sick if I actually do eat some accidently? And what kind of sick do people get from eating it. I dont understand. So I assume I donnot have a sensitivity I just cant eat it because of the vitamin issue. So if I do get some some how I wont get sick....right?

I really need to know the answer to this. My Dr cant even answer it.

Thanks

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


As you know, it's very possible to be asymptomatic and have celiac, although I wouldn't consider you that... since you posted about nausea, that could be your symptom.

Either way, peoples sensitivity levels do vary, and what might make me sick may not bother another. You may be CC'd and not know it. That can be both a blessing and a curse, because if you don't know you have been glutened, it can make it harder to be as strict as is necessary. So, you may or may not actually feel the physical effects of eating gluten. But, just remember that even though you may not feel it, doesn't mean there isn't a reaction occurring.

I've also heard that some people become more sensitive to gluten the longer they are gluten-free, while others tend to become less sensitive as times goes on. There are a lot of mysteries to this disease.

0

Share this post


Link to post
Share on other sites

Yes, you should be concerned about accidental exposures. While everybody responds differently to this kind of scenario, I don't know any Celiac/Gluten-Intolerant person that doesn't have some sort of symptoms that lets them know they've been exposed.

Most people at time of diagnosis don't have the classic Celiac symptoms and often present with only one, seeemingly unrelated problem like anemia, vitamin deficiencies, acid reflux, osteoporosis, cognitive delay, dermatitis (Dermatitis Herpetiformis and others) and even misdiagnoses like Fibromyalgia and Chronic Fatigue Symdrome.

You need to read your body and determine what sensations and symptoms indicate to you that you may ahve been accidentally exposed. I didn't have hardly any GI symptoms when I went gluten-free but some recent exposures had me in bed for several days with severe adominal pain, indicating I've become more sensitive as I've "cleaned up" my act.

What I've reconciled myself with is that the "normal" world is pretty inhospitable to those with gluten intolerance and food allergies. Social circles and family can be the toughest to deal with during the early stages of this lifestyle. Be prepared for old aquaintances to drift away and to make new friends that better understand your needs.

0

Share this post


Link to post
Share on other sites

I need more answers please

0

Share this post


Link to post
Share on other sites
I never new I had celiacs. I went for an annual physical and my blood work came back and I wasnt absorbing vitamins. So i went to GI and was diagnosed after endoscopy. So here is what I am wondering...I know not to eat gluten and I dont at all. But do i really have to worry about getting sick if I actually do eat some accidently? And what kind of sick do people get from eating it. I dont understand. So I assume I donnot have a sensitivity I just cant eat it because of the vitamin issue. So if I do get some some how I wont get sick....right? I really need to know the answer to this. My Dr cant even answer it.

I never knew I had celiac disease, either. I got diagnosed via endoscopy when the doctors were looking for something else. I had no symptoms. I have been gluten free for 6 months (I believe) and I can think of one time when I for sure ate gluten. Even then I did not suffer with any symptoms. I cannot tell if I am getting cross contamination. The only way I will know if I am being successful with my diet is by bloodwork.

So . . . do you have to worry about getting sick? Well, I don't but you could be different.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I never knew I had celiac disease, either. I got diagnosed via endoscopy when the doctors were looking for something else. I had no symptoms. I have been gluten free for 6 months (I believe) and I can think of one time when I for sure ate gluten. Even then I did not suffer with any symptoms. I cannot tell if I am getting cross contamination. The only way I will know if I am being successful with my diet is by bloodwork.

So . . . do you have to worry about getting sick? Well, I don't but you could be different.

Just curious, sbj -- how long have you been gluten-free? I was diagnosed four years ago, a diagnosis right out of left field. I had no symptoms, with the exception of low iron. It took over six months for me to start noticing symptoms when I accidentally consumed gluten, and at first they were not heavy-duty. Then, once I was at a year gluten-free, I was (and have been ever since) experiencing the classic symptoms when I was cross-contaminated, very noticeable: cramps, bloating, D.

Valerie, you need to stay away from gluten because it causes your immune system to launch an inappropriate attack on the protein. The antibodies can damage every organ in the body, including the brain, skin, liver, pancreas. . . .....not to mention the obvious damage it will do to your lower intestine. Cancer can result. You've come to the right place for support and advice! :)

0

Share this post


Link to post
Share on other sites
Just curious, sbj -- how long have you been gluten-free? I was diagnosed four years ago, a diagnosis right out of left field. I had no symptoms, with the exception of low iron. It took over six months for me to start noticing symptoms when I accidentally consumed gluten, and at first they were not heavy-duty. Then, once I was at a year gluten-free, I was (and have been ever since) experiencing the classic symptoms when I was cross-contaminated, very noticeable: cramps, bloating, D.

I'm gluten free for a mere six months now, near as I can remember. So I'm just a baby at this! I realize that many have noticed their sensitivity to gluten increasing with time as they remain gluten free. So far that is not the case with me but who knows what the future will bring? I know that some people can become suddenly sensitive to gluten after only being gluten free for a couple of weeks! That certainly did not happen to me. In a way I am hoping that I do become more sensitive so that I can recognize cross contamination - but nothing so far. Right now it's just a toss of the dice. I'm avoiding gluten as best I can but there is the chance that I am getting CC. I have no way to know other than bloodwork.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,547
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • Learn more about testing for celiac disease here: http://www.cureceliacdisease.org/screening/ You do have to be on a gluten diet for ANY of the celiac tests (blood and biopsy) to work.  While the endoscopy (with biopsies) can reveal villi damage, many other things besides celiac disease can cause villi damage too: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ So, both the blood test and endoscopy are usually ordered.  There are some exceptions, but those are not common.  
    • Exactly what are your allergy symptoms?  Were they IgG or IgE?  Allergy testing as a whole is not super accurate -- especially the IgG.  Were you on any H1 or H2 antihistamines for the last five days  when you were tested?   As far as celiac testing, four days without consuming gluten probably would not impact testing.  
    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
    • So just to clarify  had not consumed any gluten for about 4 days before testing. I was assured by my allergist that it wouldn't affect the test. But what was alarming was that she retested my food allergies (my most recent reaction was two weeks ago) and every food allergy I have came back negative. I don't understand how that is possible. These food allergies developed when I was 20 and I am almost 24 now.
    • Thanks! You too! I have learned from this experience to take charge of my own health. It's nice at least that we can try the gluten-free treatment without a firm diagnosis or a doctor confirming the disease. I've also felt some of the gluten withdrawal symptoms, and my stomach pain ebbs and flows, but I'm determined to stick with the gluten-free diet to see what a difference it makes. Gemini, thank you! This was really validating and useful for me to hear. I've felt so confused through this process and just want some answers. If the biopsy results do come back negative, I'm going to follow your advice and do the gluten-free diet with repeat blood testing after a while. If they come back positive, well, then I'll have my answer. I'm supposed to get them back next week.
  • Upcoming Events