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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hi,

I'm new here and decided it's time to post. I've been lurking and reading for a few months now.

I have multiple forms of arthritis, fibromyalgia, multiple chemical sensitivity, severe fibroid issues which has had me anemic for the past couple of years (so I'm on perscription iron supplementation). I also have restless leg syndrome (take Carnitore for that and Ultram when it's bad). I have healing issues because of the autoimmune problems so I fear surgery greatly. Generally, I've been a pretty sick puppy for the past 25+ years.

A little over three months ago I read a book called "The Inflammation Syndrome" which led me to cut wheat out of my diet. Some searching on the net brought me to this site and I decided to go gluten free just to see if it helped. Realizing that I've had explosive diarreah for most of my life, with rashes on my hands since childhood I decided to bring up gluten intollerance to my rheumatologist. She had such a look of shock on her face and said, "Why haven't we tested you for this?" Unfortunately, before I was tested, I cut out all gluten 2 months before, which seems to have skewed some of the celiac panel. But one of the test showed I had quite a bit of gluten antibodies still circulating my system. She concluded that I should remain on the diet and further testing was unneccesary.

One month after starting the diet, most of my pain went away. My RLS disapeared. The horrible intestinal cramping and explosions ceased ...gone! Now that it's been a full 3 months without any pain I started to feel pretty confident that I could keep this thing controlled. Well.....Until I had dinner at my sister-in-laws on Easter. Sigh....I don't know what had gluten in it. I tried so hard to be vigilant; without success. I got home and steadilly declined. The explosive "D" returned for hours. The next day I slept 16hours and had to take Ultram every 5 hours just to control the pain. Used my heating pad on my legs just so I could stand it till I got unconscious. It's calming down again, but I swear, I'm not going to take any chances on food anymore. After 3 months of peace in my life, returning to gluten hell was very unwelcome.

I'm still in shock that all these years gluten was my problem. My general practitioner now thinks the arthritis is secondary to the celiac. I'm starting to wonder about that myself.

Anyway, thanks for this board. You helped me to figure things out and go ahead with the diet on a hunch.

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[i too have just become a member. I have been sick for also 25+ years maybe even double that and just didn't know it. I have been gluten free since Nov 2004 or at least tried to be. I have now eaten something wrong twice and could not believe the reaction of what I thought used to be normal...

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Welcome to the board both of you :D

This is a great place for support and to ask any questions B)

Look forward to talking with both of you :D

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Hi and welcome to both of you!! :D

There are a bunch of really great people on this board who are always willing to answer any questions you might have. Our motto here is "No question is too stupid to ask....." We've all been there...

Glad you found us! ;)

Karen

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    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
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