• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Struggling With Ibs/cd
0

5 posts in this topic

I'm new to the site and am looking for information and support...

My names Val and i was diagnosed with IBS-D at 12 yrs old. I'm currently 21 and have been struggling since with pretty debilitating GI issues. At 12 i lost 25lbs because of what my MD said was IBS-D. I know that he came to this conclusion because of a lack of anything else to call it. However, i was never tested for celiac disease. Recently, it's gotten worse, so my mom told me about Celiac Disease. After a week of a strictly wheat/gluten free diet I've felt great, except for that fact that it left me constipated. I decided to eat some breakfast this morning contained wheat (nutri-grain bar/WHEAT THINS!) and three hours later i was in the bathroom and really sick. I've made an appt with a Gastroenterologist that i saw for liver issues, and I'm hoping to find out if this is really celiac disease and now IBS-D.

Has anyone had similar issues or experiences? It hard for me to trust MDs, after all the things I went through when i was younger. I feel like if they cant come to a concrete conclusion, they settle for what seems most fitting.

Also, i read that celiac disease is an autoimmune disease, is that true? I currently have Hashimoto Thyroiditis which is also autoimmune, and im wondering if there could be a connection.

Thanks to anyone who reads and/or replys.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yes Celiac disease is a genetic autoimmune disease. Also thyroid is highly connected(I have graves disease-which is hyperthyroid) Liver problems(which you mentioned) can also be connected with celiac. It is commonly misdiagnosed for things such as IBS as well. There are over 200 symptoms with celiac and you don't have to have the same ones...in fact some people have no symptoms at all. I think that you shoud definitely be tested.

These are the common tests you should ask for

(blood tests)

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

This is a great place for support and answers when you need them

If you need any help just let me know.... :D

0

Share this post


Link to post
Share on other sites
After a week of a strictly wheat/gluten free diet I've felt great, except for that fact that it left me constipated. I decided to eat some breakfast this morning contained wheat (nutri-grain bar/WHEAT THINS!) and three hours later i was in the bathroom and really sick.

That's great that the diet made you feel better. BUT... In order to get accurate results on the celiac blood test or a biopsy of the small intestine, you have to be eating gluten. If you've been gluten free for awhile (like 2 weeks) you may get a false negative.

I think you should get tested especially when you got so sick after having gluten.

0

Share this post


Link to post
Share on other sites

thanks for the info. out of curiosity, what do all those tests test for and mean?! im usually good with medical terminology, but am not at all familiar with these tests.

also, this gastro appt is just to discuss the possibility of celiac disease. i've felt so much better this week that i dont want to go back on reg diet if he doesnt want to/wont test for celiac disease. id rather go back in 3 weeks when i KNOW he agrees with me.

i know celiac disease is genetic, but do you know anything about the rates of celiac disease found in twins? ive heard 70% of identical twins (which i am, have a sister named Karin :D ) both have if one does, but ive also heard percentages closer to 40%. my sister has had symptoms her whole life as well, but not as severe as mine. She seems to be the luckier twin when it comes to health. ive always been a little skinnier and a lot sicker. anyway..thanks again! :)

0

Share this post


Link to post
Share on other sites

Identical twins means you have EXACTLY the same genes. That means that she has the gene for celiac. She may not have had an environmental trigger to set it into action OR she could be asymptomatic. Either way she really should get tested because she has the genes.

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Popular Now

  • Topics

  • Posts

    • I am considering having my brother - who inherited Daddy's power woodworking tools - plane down my cutting boards and sand the edges enough so I can keep them. The spoons and soup stirring things though will have to be decorative. Breaks my heart. I've had good luck with Merle Norman cosmetics. They have a listing of things that are gluten-free that has helped me. My local store owner was able to get the list and knows what I can use and what I can't.
    • While you could very well be vitamin/mineral deficient, you could also have issues with your thyroid.  Autoimmune thyroid is common with .......autoimmune celiac disease.  Your doctor should order a full thyroid panel, including thyroid antibodies.   Your blood sugar should also be checked (autoimmune diabetes).  I am not saying you have these issues, but these AI issues are common with celiac disease.  In fact, you can develop or have more than one AI issue.   If I feel a very strong need to nap, I know my thyroid is off and my doctor should be notified.  A simple blood test usually verifies that an adjustment to my thyroid replacement is needed.   That said, you are in the healing stages of celiac disease.   Eat healthy and include plenty of fats to keep you satiated.  Try to avoid processed foods.  Make sure that gluten-free diet is varied and full of veggies.  Get plenty of rest.  Just listen to your body.  Soon you will feel much better.  
    • Hi and welcome Can you tell us a little about your diet? What are you eating on a typical day? You may find that some simple switches in food choices can deliver more energy and fewer spikes and crashes. This is something that receives too little attention, particularly from the medical community. It can come as a huge shock to the system and as the implications become apparent its easy to feel overwhelmed. This certainly happened to me and many others here so first do know that you're not alone. You are currently grieving believe it or not and you will be going through the stages of grief.  Second, although it may not feel it now, it WILL get better and you will adjust and adapt as you get used to the diet and start focusing on what you can still do rather than what you can't.  In the meantime, this is a good place to vent and share those feelings as they are perfectly natural and understandable and whilst not always helpful,  they are a part of you and a part of the healing process. Go easy on yourself, this is very early days. You are young, which is good news, it means you will heal sooner and you will adapt quicker and there's lots of good things on the way for you as your body gets a rest from the gluten that's been holding you back.  All the best! Matt
    • Hope it proves of use  The Umberto Volta interview is particularly interesting and the case study from England also...
    • Following a gallbladder surgery, I could not get my digestive system back to normal.  After several months of constant diarrhea, I went to see the gastro dr. and told her my problems. I also mentioned that I had a sister, brother and nephew with Celiacs.  She said, "I'm almost sure that's the problem".  I, like you, did not want to go back to eating gluten so I did the gene test but it was not positive.  I learned it is not always an exact test.  It came back with Crohns which so far I have no symptoms.  The Endoscopy  indicated Hpylori, CDiff, and one other bacteria.  After I took all the meds to clear my body of these bacterias, I was still having  some symptons of diarrhea and found that I thought I was clear of all gluten but I had a long way to go. Throwing away a wooden cutting board my dad had given me, lipstick, lipgloss, makeup, handcream, plastics in the kitchen, pans that had a scratch, any item in the pantry that had any of the items with starch that may have gluten and the list goes on and on.  I'm still reading labels but I definately can tell a difference as I have eliminated more items that I had no idea were harmful.  This website has been a life-saver for me.  Thank You so much for your wealth of information.   Linda Fortson    
  • Upcoming Events