• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Struggling With Ibs/cd
0

5 posts in this topic

I'm new to the site and am looking for information and support...

My names Val and i was diagnosed with IBS-D at 12 yrs old. I'm currently 21 and have been struggling since with pretty debilitating GI issues. At 12 i lost 25lbs because of what my MD said was IBS-D. I know that he came to this conclusion because of a lack of anything else to call it. However, i was never tested for celiac disease. Recently, it's gotten worse, so my mom told me about Celiac Disease. After a week of a strictly wheat/gluten free diet I've felt great, except for that fact that it left me constipated. I decided to eat some breakfast this morning contained wheat (nutri-grain bar/WHEAT THINS!) and three hours later i was in the bathroom and really sick. I've made an appt with a Gastroenterologist that i saw for liver issues, and I'm hoping to find out if this is really celiac disease and now IBS-D.

Has anyone had similar issues or experiences? It hard for me to trust MDs, after all the things I went through when i was younger. I feel like if they cant come to a concrete conclusion, they settle for what seems most fitting.

Also, i read that celiac disease is an autoimmune disease, is that true? I currently have Hashimoto Thyroiditis which is also autoimmune, and im wondering if there could be a connection.

Thanks to anyone who reads and/or replys.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yes Celiac disease is a genetic autoimmune disease. Also thyroid is highly connected(I have graves disease-which is hyperthyroid) Liver problems(which you mentioned) can also be connected with celiac. It is commonly misdiagnosed for things such as IBS as well. There are over 200 symptoms with celiac and you don't have to have the same ones...in fact some people have no symptoms at all. I think that you shoud definitely be tested.

These are the common tests you should ask for

(blood tests)

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

This is a great place for support and answers when you need them

If you need any help just let me know.... :D

0

Share this post


Link to post
Share on other sites
After a week of a strictly wheat/gluten free diet I've felt great, except for that fact that it left me constipated. I decided to eat some breakfast this morning contained wheat (nutri-grain bar/WHEAT THINS!) and three hours later i was in the bathroom and really sick.

That's great that the diet made you feel better. BUT... In order to get accurate results on the celiac blood test or a biopsy of the small intestine, you have to be eating gluten. If you've been gluten free for awhile (like 2 weeks) you may get a false negative.

I think you should get tested especially when you got so sick after having gluten.

0

Share this post


Link to post
Share on other sites

thanks for the info. out of curiosity, what do all those tests test for and mean?! im usually good with medical terminology, but am not at all familiar with these tests.

also, this gastro appt is just to discuss the possibility of celiac disease. i've felt so much better this week that i dont want to go back on reg diet if he doesnt want to/wont test for celiac disease. id rather go back in 3 weeks when i KNOW he agrees with me.

i know celiac disease is genetic, but do you know anything about the rates of celiac disease found in twins? ive heard 70% of identical twins (which i am, have a sister named Karin :D ) both have if one does, but ive also heard percentages closer to 40%. my sister has had symptoms her whole life as well, but not as severe as mine. She seems to be the luckier twin when it comes to health. ive always been a little skinnier and a lot sicker. anyway..thanks again! :)

0

Share this post


Link to post
Share on other sites

Identical twins means you have EXACTLY the same genes. That means that she has the gene for celiac. She may not have had an environmental trigger to set it into action OR she could be asymptomatic. Either way she really should get tested because she has the genes.

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,551
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have 2 copies of DQ9. One from each parent.
    • Obviously from the outside it's difficult to comment, but if I were you I'd leave allergies for now and pursue definitive celiac testing via your doctor and preferably a gastroenterologist. They're the first port of call for digestion issues. If you do wind up being celiac it's possible that other allergies or intolerances would resolve or improve in any case once you've been on the diet for awhile. That's been my experience.   Ps note that wheat allergy is completely different and unrelated to celiac or non celiac gluten sensitivity. 
    • Thank you ps, it may be better if the thread title was changed as we now have two 'overwhelmed' topics. If it were 'Bile ducts and celiac?' then it may attract more users with direct experience?
    • Hello and welcome Maybe? From reading others accounts there's a big variation in how quickly gluten antibodies respond to the gluten diet. I did similar to you and my doctor said that 1 week back on should be enough to show up in a test, but he didn't know what he was talking about sadly... The 2 week figure refers to the endoscopy, for blood testing 8-12 weeks on gluten is more normal.  Basically if it comes back positive fine you have your answer. If its negative it may be a false negative due to your going gluten free beforehand. If you want to pursue a diagnosis then yes. Don't go off gluten again until you confirm that all testing is complete.  Keep a journal noting any symptoms, that may be useful to you later. More info here: There's some good info in the site faq: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/ I know how you feel! Partway through my gluten challenge I knew that too results notwithstanding. Fwiw I think you've found your answer. Good luck!
    • Learn more about testing for celiac disease here: http://www.cureceliacdisease.org/screening/ You do have to be on a gluten diet for ANY of the celiac tests (blood and biopsy) to work.  While the endoscopy (with biopsies) can reveal villi damage, many other things besides celiac disease can cause villi damage too: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ So, both the blood test and endoscopy are usually ordered.  There are some exceptions, but those are not common.  
  • Upcoming Events