• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Melatonin
0

17 posts in this topic

I have been having a lot of trouble sleeping! I am a very light sleeper, and wake up many times during the night. It takes me forever to get back to sleep each time. I was thinking of trying melatonin. However, on the back of the bottle it says that it shouldn't be taken by people with immune disorders. Why?? I am desperate to find something to help me get a good night's sleep. Not a big fan of Advil or Tylenol PM. Does anyone know about melatonin or any type of sleep aids that really work? Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have you tried a sublingual methylcobalamin (active form of vitamin B12) supplement? B12 is vital for the production of melatonin. I recall other things are required too, magnesium I think is another.

Anyway, a good strong B-complex, plus a separate B12 may do the trick for you. A multivitamin would probably be a good idea too.

0

Share this post


Link to post
Share on other sites

I took melatonin for a while. Sometimes it help and others not. It did, after regular use, give me awful reflux. I stopped and it went away.

0

Share this post


Link to post
Share on other sites

I take melotonin at least once a week. I think it helps and its never bothered me, but now I'm wary. Anybody have an answer?

0

Share this post


Link to post
Share on other sites
Ads by Google:


Here is what I found, hope it will be of help. http://autoimmunedisease.suite101.com/arti...oimmune_disease

From the link:

"Controversy over the Safety of Melatonin in Autoimmune Diseases

In general, although melatonin is one of the least toxic substances known, it is not recommended for people with autoimmune diseases or immune system cancers because of its ability to stimulate immune function. However, in numerous studies of people with specific autoimmune disorders, melatonin can modulate the immune system in a beneficial way. Studies show that melatonin can inhibit cytokine production and reduce inflammation. [JM Guerrero and RJ Reiter, Melatonin-immune system relationships, Current Topics in Medical Chemistry, Feb 2002; 2(2): 167-179]."

Isn't that just what we need?

best regards, lm

BTW, I just took some, so I hope it's OK! B)

0

Share this post


Link to post
Share on other sites

I tried this for a while at my doctors recommendation. After reading the label I was wary, but still took it. For me it did nothing, anyway. It helps you for "fall asleep" but wanes in 4 hours. I have no trouble falling asleep.....I just don't STAY asleep. Yes, it is a naturally occuring substance in the body....but a warning is there for a reason. I tend to be wary of taking anything, so maybe I'm alarmed too easily. Anyway.....I guess it's an individual decision. Just not for me.

0

Share this post


Link to post
Share on other sites
I tried this for a while at my doctors recommendation. After reading the label I was wary, but still took it. For me it did nothing, anyway. It helps you for "fall asleep" but wanes in 4 hours.

I have to take mine at least nine hours before I need to get up or I'm still sleepy. Even after nine hours I'm kinda still groggy. If I take it at 7pm, the affects are fully gone around 8 or 9am the next day.

0

Share this post


Link to post
Share on other sites

This is a funny drug in that the directions on my bottle don't say take one or two pills. It says don't take more than 3 milligrams (or something like that, I'm not home right now). Well, that could be some crazy # like 30 if I remember correctly.

I only take 1 (or two pills if I'm really serious that night). And that's only occasionally. It seems to make me sleepy within an hour. As for sleeping thru the night, I may toss and turn a bit, but never wake up completely. And the morning after effects (at that dosage) are minimal, especially compared to some other sleepaids such as diphenhydramine or ambien.

Sweet dreams all. -_-

best regards, lm

0

Share this post


Link to post
Share on other sites

After looking at the bottle, I am correcting some errors in my previous post.

The label say's "take 1 or more tablets at bedtime as Melatonin may produce drowsiness. Do not exceed 5 mg."

That's 5 milligrams, or 5000 micrograms. The pills are 300 mcg, or 300 micrograms.

So the maximum recommended dosage would be 16.7 pills (5000 divided by 300). Of course some people don't pay much attention to such things as recommended dosages. But still, 16 or 17 pills of anything is a lot in my book.

BTW, this brand is Rexall Naturals.

best regards, lm

0

Share this post


Link to post
Share on other sites

I am still unclear as to WHY melatonin is not good for people with Immune Disorders.

0

Share this post


Link to post
Share on other sites
I am still unclear as to WHY melatonin is not good for people with Immune Disorders.

Based on this:

Here is what I found, hope it will be of help. http://autoimmunedisease.suite101.com/arti...oimmune_disease

It looks to me as if the jury is still out. It may rev up your immune system, or it may help regulate it. But the article also seems to indicate that these things happen when you take doses higher than those needed for sleep. So maybe it's not really worth worry about if you're only taking a bit at night.

0

Share this post


Link to post
Share on other sites

I think it's like anything else....the manufacturer is covering their butt. IF you happened to have a problem, and IF you claimed it was from their product, they have a loop hole. Kinda like the warnings on packaging that tells you not to put plastic bags over your head :P

0

Share this post


Link to post
Share on other sites

Hi, I have to tell you, I struggled with this question too. I have Hashimoto's, an auto immune disease and my girls may or may not have celiac's. But we have totally embraced Melatonin. I need it, my girls need it. Without it, we may never go to sleep. Plus, it seems to help their behavior during the day. They can tell when they need it, when they know they will not be able to go to sleep. But as a general rule, we use 2.5 mg a night and we all relax and go to sleep with no ill effects.

When dd (6) was 3 I started using it. It saved my life. Before that, it took hours to get her to go to sleep. This was way before learning about gluten intolerance.

GOOD LUCK!

Susan

0

Share this post


Link to post
Share on other sites
Hi, I have to tell you, I struggled with this question too. I have Hashimoto's, an auto immune disease and my girls may or may not have celiac's. But we have totally embraced Melatonin. I need it, my girls need it. Without it, we may never go to sleep. Plus, it seems to help their behavior during the day. They can tell when they need it, when they know they will not be able to go to sleep. But as a general rule, we use 2.5 mg a night and we all relax and go to sleep with no ill effects.

When dd (6) was 3 I started using it. It saved my life. Before that, it took hours to get her to go to sleep. This was way before learning about gluten intolerance.

GOOD LUCK!

Susan

Let's see, that would be 2.5 mg (2500 mcg) / by 300 mcg (1 of my pills) = 8.3 pills. You probably have a different product than I have. Mine says "Not intened for use by persons under the age of 18. Keep out of the reach of children. For adults, take one or more tablets .....". Also, ""limit use to two months with a break of one week". Yikes!

Of course, when my girls were 3, Back in '84 & '86, we gave them cough syrup with codine so they could sleep when they had ear infections. That's what the doctor said to do.

best regards, lm

0

Share this post


Link to post
Share on other sites
Let's see, that would be 2.5 mg (2500 mcg) / by 300 mcg (1 of my pills) = 8.3 pills. You probably have a different product than I have. Mine says "Not intened for use by persons under the age of 18. Keep out of the reach of children. For adults, take one or more tablets .....". Also, ""limit use to two months with a break of one week". Yikes!

Of course, when my girls were 3, Back in '84 & '86, we gave them cough syrup with codine so they could sleep when they had ear infections. That's what the doctor said to do.

best regards, lm

My bottle does say for adults only and not intended for children which is another reason I worried about it's use. Luckily for me, her neurologist and peditrician know we use it and agree it's safe. I remember my mom used to give me wiskey and honey when I was sick. LOL :lol:

Susan

0

Share this post


Link to post
Share on other sites
I have been having a lot of trouble sleeping! I am a very light sleeper, and wake up many times during the night. It takes me forever to get back to sleep each time. I was thinking of trying melatonin. However, on the back of the bottle it says that it shouldn't be taken by people with immune disorders. Why?? I am desperate to find something to help me get a good night's sleep. Not a big fan of Advil or Tylenol PM. Does anyone know about melatonin or any type of sleep aids that really work? Thanks!

Having read the cautions about using it from the other posters, I'll add my 2 cents. I've had serious insomnia (anywhere from 0 to 5 hrs sleep) off and on for the past few years and have used a number of otc and rx items. I finally saw an ob/gyn about my hormones, the levels were off, and the hormone replacement I've been using have helped enormously -- most nights I sleep like a baby. However I'm 51 and assuming you're young this may or may not be something you want to explore. Younger women can also have hormonal imbalances.

As far as melatonin goes, I use it but only Trader Joe's .5 mg. So very low dose. It helps if I combine with the HRT and, here's the safest approach (drug free!)... a pre-bedtime ritual. No bright lights for an hour before bedtime. I turn the night light on only to remove makeup and wash face. No snack for several hours except maybe a piece of fruit. No water or soy milk for 3-4 hours except a sip for meds (the latter always makes me have to wake in middle of the night to pee). A low volume radio or tv, or reading in bed is okay, but no serious brainwork (other than reading) for a couple hours before bedtime. Also no exercise in the four hours before bedtime.

Another tip is, the minute you wake up in the morning turn on very bright lights or let in sunlight. And try to have a regular bedtime as much as possible.

These things are helpful, and even on the nights where I'm out late with friends and go to bed late, my body is so used to the sleep routine that I crash right away.

HTH, I know how hard it is to struggle with insomnia.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,469
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello Anonymous, and if nobody has said as much yet, welcome Don't worry (difficult to do when it can cause anxiety :P) it's very early days and you have a lot of healing to come.  If you've not already seen it there's advice and further info here:    It gets easier over time as checking becomes routine, you know your 'safe' products and your eating pattern changes. You'll get there  Maybe start a thread of your own if you'd like some input from others? Finally, back on topic. My Aunt has narcolepsy and although she's fiercely resistant to giving up gluten she has now made a connnection to eating bread and it's onset. As often, not conclusive but suggestive...
    • Hello again   Well first thing is the - Usual disclaimers apply... and this is something you have to follow up with your doctors as you know. But it's helpful sometimes to get another perspective so here's this layman see's from outside.  What I have seen from the various results posted here is that people's numbers vary wildly and, just as important, the numbers often don't bear any direct relationship to the level of intestinal damage revealed via endoscopy. Ultimately although you're not scoring much above positive, you are scoring a positive  and there are a couple of other risk factors you've mentioned that are suggestive if not conclusive - you have another autoimmune which raises the odds of having another one for example.  You've had two tests that are positive. The purpose of taking the second test was either to invalidate or confirm the first. I'd suggest it's achieved the latter, at least inasmuch as a GI may want to check you via endoscopy. That's still the 'gold standard' of celiac diagnosis and would give you an idea if there's any intestinal damage. I suspect with 2 positive tests and the history above that's what they'll suggest.  If your doctor or GI doesn't want to proceed with that you have a decision to make. Push for a second opinion or new doctor or if you're done with testing give the gluten free diet a proper try. Make a journal and see if some of those subtle things you reference may actually be symptoms. Fwiw, there are a lot of people here whose thyroid issues improved dramatically once they were gluten free, so whether celiac or gluten sensitive you should certainly give the diet a try. Only however once the testing is completed and remember: 
    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
  • Upcoming Events