• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
whiterabbit

Anyone With Celiac Also Have Oral Lichen Planus?

Rate this topic

Recommended Posts

Hi there all :)

I'm a newbie and I think it is wonderful that websites like this exist helping people understand and share experiences which otherwise might be a very lonely time not to mention, frightening and uncertain.

I was wondering if anybody here also suffers from oral lichen planus?

I was diagnosed in 2007 with oral lichen planus and then that November I had an overwhelmingly postive blood test for celiac disease. I had a biopsy taken early January 08 but the biopsy showed only minor atrophy of the villi. My specialist could not recommend me to go gluten free due to the biopsy but I know the blood test itself is substantial enough on its own.

I did go gluten free for three months at that stage but because I didn't really notice any of the more familiar symptons I thought perhaps, maybe, more like hoping that perhaps the blood test was simply a red herring and it could have possibly been mistaken for something else. I decided though to go gluten free mid March this year because I had diahorrea only in the mornings mainly since Xmas time.

However I got a bad chest infection just after going gluten free and with it, I experienced a very bad episode of reflux and heartburn which previously I never had. I am also continuing to lose unnecessary weight. (I wish I had more meat on my bones to say yeah but unfortunately I don't lol) On top of all this, I had a chest x-ray on Saturday just to check that I didn't have pneumonia and it was noted that I have over inflated lungs due to asthma possibly although I've never used an inhaler to date.

What I really wanted to know if anyone else out there suffers from this horrible condition oral lichen planus and how does this sit alongside their gluten sensitivity issue. I really find the lichen planus plays absolute havoc with my body, with all the inflammation and I would be interested to know if anyone else has similar experiences.

Thanks everyone for taking the time to read this and I hope to make some wonderful celiac friends.

kind regards

Whiterabbit

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Here is a copy of a post dated 4-15-2008 from another Lichen Planus thread (Actually a lichen Sclerosis post).

---------------------------------------------------------------------------------

This is so wierd. I had a strange skin condition about 20 years ago. It was only one small, smooth circle about the diameter of a cigarette. It didn't itch or cause me any physical problem. But, it was on a certain private part of my anatomy that immediately resulted in me totally freaking out. I was certain that God had inflicted me with a rebuke of my careless (albeit limited) behavoir.

My personal doctor had no idea what it was, and so referred me to a dermatologist who identified it in short order. Lichen Planus. It is not contagious (so I didn't "catch" it from anyone), and it's origin is not known. It is thought to be related to your disorder, but is a separate and less severe malady. It is said to be aggravated by eating toast, and crunchy foods such as cereals and chips, etc. DUH, I was the toast and all things crunchy fiend. Crusty bread chief amongst my many bread obsessions. They give you a topical cortasteroildal cream which makes it go away. But, here's the kicker, it's an autoimmune disorder. Granted, there are many autoimmune disorders. But still, given that I now have bonafide Celiac Disease, maybe there was an early connection.

This is the first I've ever heard either of these skin conditions mentioned here. Thanks for your post.

best regards, lm

---------------------------------------------------------------------------------

I didn't mention it in that post, but at the same time, I also had some oral symptoms. That's how the dermotologist diagnosed it. There were white lines on the inside of my cheeks. No pain or discomfort of any kind, and they went away after a while, never to return (as far as I know).

best regards, lm

Share this post


Link to post
Share on other sites

Hi im :-)

That's really interesting to hear that your white patches just disappeared never to return - great news :-). With my lichen planus I also have the white spidery marks on the cheeks which don't give me much trouble but it is the mouth ulcers (canker sores) along the tongue and the burning/inflammation of the tongue that really plays havoc with my health.

I feel like this dog lol I know when I'm feeling unwell because my tongue gets really hot and I usually put it between my teeth and I can feel the heat hence my unwellness factor climbs up several notches. I am thinking though that my hormones also have a big role to play in this as usually my best week in my month is the week just before my cycle kicks in - if only I could 'always' feel that way I'd feel like superwoman compared to how I feel right now.

Thanks for replying :-)

cheers

whiterabbit

Share this post


Link to post
Share on other sites

I just got diagnosed with lichen planus about five days ago and was looking for information about that together with celiacs and came across your post.

I've seen a lot recently about people with celiacs having oral ulcers, though the dentist I saw said she didn't believe the two were related (I'm not convinced). It doesn't seem like gluten is playing a role in my outbreaks though because I am super careful with my diet and mostly eat only food I've prepared myself.

The lichen planus is miserable though. I was to the point of not being able to eat at all. Prednisone is clearing it up, but now I'm dealing with the side effects from that...

quote name='whiterabbit' timestamp='1241168132' post='529801']

Hi there all :)

I'm a newbie and I think it is wonderful that websites like this exist helping people understand and share experiences which otherwise might be a very lonely time not to mention, frightening and uncertain.

I was wondering if anybody here also suffers from oral lichen planus?

I was diagnosed in 2007 with oral lichen planus and then that November I had an overwhelmingly postive blood test for celiac disease. I had a biopsy taken early January 08 but the biopsy showed only minor atrophy of the villi. My specialist could not recommend me to go gluten free due to the biopsy but I know the blood test itself is substantial enough on its own.

I did go gluten free for three months at that stage but because I didn't really notice any of the more familiar symptons I thought perhaps, maybe, more like hoping that perhaps the blood test was simply a red herring and it could have possibly been mistaken for something else. I decided though to go gluten free mid March this year because I had diahorrea only in the mornings mainly since Xmas time.

However I got a bad chest infection just after going gluten free and with it, I experienced a very bad episode of reflux and heartburn which previously I never had. I am also continuing to lose unnecessary weight. (I wish I had more meat on my bones to say yeah but unfortunately I don't lol) On top of all this, I had a chest x-ray on Saturday just to check that I didn't have pneumonia and it was noted that I have over inflated lungs due to asthma possibly although I've never used an inhaler to date.

What I really wanted to know if anyone else out there suffers from this horrible condition oral lichen planus and how does this sit alongside their gluten sensitivity issue. I really find the lichen planus plays absolute havoc with my body, with all the inflammation and I would be interested to know if anyone else has similar experiences.

Thanks everyone for taking the time to read this and I hope to make some wonderful celiac friends.

kind regards

Whiterabbit

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,925
    • Total Posts
      943,533
  • Member Statistics

    • Total Members
      67,140
    • Most Online
      3,093

    Newest Member
    Donna 63
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm from the UK so I can't help you on the recommendation, but  instead of canned chili have you tried making your own? It's super easy to do, far nicer and cheaper than any  pre-made  variety and you can make a big batch and freeze small portions so its always available if you need a quick filling meal? There's no reason a chili should include gluten btw, but if they're telling you that there's a high probability of cc its best not to eat there in any case!   Edit: checked their site:  https://www.skylinechili.com/special-dietary-options.php#glutenfree They're basically telling you there could be cc  
    • I live in Cincinnati. One thing we are known for is chili and a horrible football team. I was wondering if anyone had one of those gluten detectors and how they work because I would love to test them. They claim to be gluten-free and even state that in their restaurants there is a high probability for CC. I even wrote the company several times but no reply. I just had some earlier and am up with a reaction to something. I'm leaning towards the chili. Is there any good canned chili out there that will not make me sick?
    • I live in Cincinnati. One thing we are known for is chili and a horrible football team. I was wondering if anyone had one of those gluten detectors and how they work because I would love to test them. They claim to be gluten-free and even state that in their restaurants there is a high probability for CC. I even wrote the company several times but no reply. I just had some earlier and am up with a reaction to something. I'm leaning towards the chili. Is there any good canned chili out there that will not make me sick?
    • I really miss Pizza. I've tried many different brands but never that good. I stick with the Freshetta gluten-free pizza. It has the CSA symbol on it meaning that it has gone through some of the strictest tests there are and can test down to 5ppm I think. It's about as close to the real deal that I've come across.
    • Found it:   "The Canadian Celiac Association (CCA) recommends that people with celiac disease or gluten sensitivity DO NOT consume the gluten-free labeled Cheerios products at this time because of concerns about the potential levels of gluten in boxes of these cereals...Based on the information provided to date, our scientific advisors are not convinced that the testing procedures described by General Mills are sufficient to detect these contamination “hot spots” in the oats and oat flour or in the boxes of cereal that may contain those contaminated oats." 
  • Upcoming Events