• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Severe Diarrhea Cant Stop It.
0

23 posts in this topic

I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton

Hi Kim :)

Have you been tested for celiac disease??? (blood tests or endoscopy with biopsies)

Have you had any other bowel diseases ruled out? (e.g Crohns disease)

0

Share this post


Link to post
Share on other sites

Here I am on a Celiac Sprue site trying to find some questions and don't even know where to start. My name is Kim and I am 48 and cant seem to find any help with this disease. I was diagnosed in 2005 with Celiac Sprue and at that time in the hospital weighing 69 pounds. Took my gall bladder out and cant remember everything that went on but now here I am again with severe diarrhea losing weight one week at a time. Doctors have given me antibotics and still no luck plus have no insurance left from all the doctor visits. I am going to the county hospital on Monday to start new Doctors but if you have a way to help stop this diarrhea or relieve it alittle please let me know. I am on a gluten free diet and only eating meat, veggies and fruit. Right now not eating very much because I am to scared too. NEED YOUR HELP Kim

0

Share this post


Link to post
Share on other sites

Have you tried Imodium? Many of us consider it a life-saver.

0

Share this post


Link to post
Share on other sites

Agree with peter on the Immodium. That's not much help, but I hope you feel better soon.

Susan

0

Share this post


Link to post
Share on other sites
Ads by Google:


Have you been tested for lactose intolerant?? That usually comes with having celiac disease. I hope you get your self tested for celiac disease. And you are describing alot of the sysmptoms I had before I realized I can't have dairy any more. Take the dairy test because of your insurance you speak of. Cut all dairy out of your diet for a week or two and see how your body does with out it. If it stops all your symptoms that is your answer.

0

Share this post


Link to post
Share on other sites
Have you tried Imodium? Many of us consider it a life-saver.

Yes I live on the stuff. I quess I will go to the doc on monday and find out what else I can do. They also put me on belladonna which I hate to take because of the drug relation. I really hate meds and would like to stay out of that realm. Thank you so much for answering I am really feeling helpless

0

Share this post


Link to post
Share on other sites
Here I am on a Celiac Sprue site trying to find some questions and don't even know where to start. My name is Kim and I am 48 and cant seem to find any help with this disease. I was diagnosed in 2005 with Celiac Sprue and at that time in the hospital weighing 69 pounds. Took my gall bladder out and cant remember everything that went on but now here I am again with severe diarrhea losing weight one week at a time. Doctors have given me antibotics and still no luck plus have no insurance left from all the doctor visits. I am going to the county hospital on Monday to start new Doctors but if you have a way to help stop this diarrhea or relieve it alittle please let me know. I am on a gluten free diet and only eating meat, veggies and fruit. Right now not eating very much because I am to scared too. NEED YOUR HELP Kim

Hi Kim

I saw an article a few weeks back that a lot of people with celiac also are lactose intolerant, maybe this is the case for you

Hope you feel better soon (hugs)

0

Share this post


Link to post
Share on other sites

Fish, rice if you can do it for some fibre, applesauce, no raw fruits or vegetables, cook everything. Make it very easily digestible; meat is not easy. See if that helps.

0

Share this post


Link to post
Share on other sites
Yes I live on the stuff. I quess I will go to the doc on monday and find out what else I can do. They also put me on belladonna which I hate to take because of the drug relation. I really hate meds and would like to stay out of that realm. Thank you so much for answering I am really feeling helpless

If you're living on immodium and still having severe diarrhea, my guess would be Chron's (it's possible to have both celiac disease AND Chron's). Have you looked up the symptoms?

I agree with mushroom about keeping your diet very simple while you're waiting... are you also drinking enough water? :(

0

Share this post


Link to post
Share on other sites
Hi Kim :)

Have you been tested for celiac disease??? (blood tests or endoscopy with biopsies)

Have you had any other bowel diseases ruled out? (e.g Crohns disease)

Yes they ran every test imaginable and I have Celiac Sprue. It has been 5 years since I have had very much trouble but now it is like it was when they diagnosed me. I haven't been checked for Crohn's or anything else. To be honest I hate the Doctors office thing and try to help myself with things like Imodium etc...... But I cant do this alone anymore. It is causing me to just stay home and now I am on leave of absence from work. I am seeing a doctor on Monday. Also have you ever had alot of sound in your stomach like gurgling but it never stops. Its very loud and is almost continuous at all times.

0

Share this post


Link to post
Share on other sites
Have you been tested for lactose intolerant?? That usually comes with having celiac disease. I hope you get your self tested for celiac disease. And you are describing alot of the sysmptoms I had before I realized I can't have dairy any more. Take the dairy test because of your insurance you speak of. Cut all dairy out of your diet for a week or two and see how your body does with out it. If it stops all your symptoms that is your answer.

Thank you for answering and I will try what you say on the dairy for 2 weeks. I love milk but not at the expense of my health. I had the tests for celiac and they were positive but haven't had anymore problems until now.

0

Share this post


Link to post
Share on other sites
Hi Kim

I saw an article a few weeks back that a lot of people with celiac also are lactose intolerant, maybe this is the case for you

Hope you feel better soon (hugs)

I am going to try the lactose free and see if that helps. Thank you so much for replying

0

Share this post


Link to post
Share on other sites
If you're living on immodium and still having severe diarrhea, my guess would be Chron's (it's possible to have both celiac disease AND Chron's). Have you looked up the symptoms?

I agree with mushroom about keeping your diet very simple while you're waiting... are you also drinking enough water? :(

No I have just resently started drinking water supplements but tonight I went out and bought bottle water and am starting to drink alot. I have never liked water but I am over that....haha thank you

0

Share this post


Link to post
Share on other sites

This may sound simplistic, but have you been tested for rotavirus or any other virus or bacteria that commonly causes diarrhea? It could be an illness, not related to the celiac sprue.

0

Share this post


Link to post
Share on other sites

while other food sensitivities could cause it i really would think it is something more serious. while i dont know much about chrons i would think that could be it. i know one person that i had in a class in Highschool that i TA'ed who had it and my freshmen year roommates sister had it. i know the kid that was in my class had to be on a feeding tube with special foods injected into it and that was the only thing he "ate" for 3-6 months. not exactly the best thing to hear but if, IF, chrons is what is causing it that is what may need to be done to help your body heal.

it is possible that you had celiac for such a long time undiagnosed that it caused so much damage to your body that you have not healed from the gluten-free diet, it is very rare that this will happen and usually, from my understanding, it is seen more so in older people than you.

since this is soooooo bad you basically need to try an elimination diet probably, and if that still doesnt help look to other illness or infection

i understand how bad you can feel when you have the big D for such a long time since that was the thing that caused my alternative medicine person to investigate more and figure out it wa probably celiac, so i hope you can get this resolved

-matt

0

Share this post


Link to post
Share on other sites
I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton
0

Share this post


Link to post
Share on other sites

So how are you doing now, Kim? Your post was from May but it looks like you're back. Have you had any improvement?

0

Share this post


Link to post
Share on other sites

PLEASE DO NOT TAKE ANYTHING TO STOP THE DIARRHEA: HERE IS WHY

You have been on antibiotics. They can cause an overgrowth of c. difficile a toxin that can be deadly. I know this because I almost passed on years ago from this problem. Had I taked immodium I would have died because it would have let all the c. difficile toxins stay in my system.

I ended up VERY seriously ill in the hospital for a week taking the strongest antibiotic (vancomycin) to get rid of the toxin.

DIARRHEA AFTER ANTIBIOTIC USE IS NOT ALWAYS HARMLESS AND MUST BE INVESTIGATED

Not trying to scare you but only want to help.......

0

Share this post


Link to post
Share on other sites

I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton

Hi Kim

I am a severe celiac and I have had problems post diagnosis similar to yours. I am 6'5" and was down to 130 lbs possibly less at my lowest point. I understand you have insurance issues in the states but if you can afford it I use PREDNISONE to stop my flare ups. Some people will say I am wrong doing this, but I can't afford to lose any weight by letting the diahorrea run it's course. Prednisone is NOT a nice drug to use, there are long term effects if you use it for longer then 5 days at a time. But I have worked closely with my Doctor to figure out the best way to treat the situation.

Best Wishes

Mike Irwin

P.S. I am up to 155 lbs through hard work

Also becareful going through a health food store for "natural remedies". Some stores out there are just there to sell product. And if they know nothing about celiac disease then who knows what ur getting.DO NOT BE AFRAID of asking them basic questions to see if they know what celiac disease is.

Best of Luck

0

Share this post


Link to post
Share on other sites
I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton

Kim,

I had the same unrelenting diarrea and other symptoms (nausea, weakness, etc.) and was down to 89 lb. After four hospital admissions in less than six months, I went to the Harvard Medical Center in Boston -- Beth Israel Hospital, Celiac Research Center -- and confirmed that I had REFRACTORY Celiac Sprue. That is a rare type of Celiac disease that does not respond to the gluten-free diet. This can be fatal if you don't get it under control. The doctor from Harvard put me on 8 capsules of Pentasa daily (4 AM and 4 PM) and on Codene Sulfate , 60 mg. 4 times a day. The Pentasa was for inflamation (which did not show up on any tests) and the Codene Sulfate was for the diarrea. FINALLY, the diarrea stopped. I went from 240 mg. of Codene down to just 60 mg. now (30 mg. twice a day) -- it took almost a year for this progress, and from 8 Pentasa capsules to 4 capsules daily -- I'm now 113 lbs. It was like a miracle. Note that the Codene is a narcotic/controlled substance so it takes a special prescription from the doctor -- is not addictive when used medically. ASK your doctors about this treatment. The Harvard doctor was Dr. C. Kelly -- a nationally recognized Celiac expert. I do have to follow a strict gluten-free diet, but it now works for me!

Good luck.

Edie H.

0

Share this post


Link to post
Share on other sites

There is a medication they give to people with microscopic colitis to help them control their diarrhea. It's called entecort. The most common symptom of microscopic colitis is constant diarrhea. You might want to check out the MC support board (link below) and ask some questions there. I'd recommend having a colonscopy and biopsy to check for MC. Lots of drs don't look for it.

http://www.perskyfarms.com/phpBB2/index.ph...41e8b6b4d3b1658

0

Share this post


Link to post
Share on other sites

I had it for months following the diagnoses of my diabetes. I do not have celiac and didn't know of my food allergies back then. I drank a lot of weak black tea, chicken broth and of course, water. Ate mostly chicken and rice, boiled eggs, cottage cheese, some applesauce and did eat white bread, toasted, with no butter or margarine. Perhaps you could eat rice or tapioca bread, toasted, instead? Bananas would also be good if you can handle the carbs. I can't. And my SIL who is a nurse also recommends plain yogurt with active cultures. I just can't stand yogurt!

Mine was so bad I couldn't stray far from the bathroom or leave the house. The Dr. gave me something to make my stomach feel more settled, but it didn't work. I tried Imodium and Kaopectate. They didn't help.

I know there are prescription meds you can take. My mom used to take something called Lomotil. However, they are difficult to get these days and I think they are considered a controlled substance.

I still don't know what caused my problem, but one day it just went away.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,800
    • Total Posts
      932,543
  • Member Statistics

    • Total Members
      64,291
    • Most Online
      3,093

    Newest Member
    1Newtothis
    Joined
  • Popular Now

  • Topics

  • Posts

    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
  • Upcoming Events