• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Calling All Catholics
0

11 posts in this topic

Hey, just wanting to get catholic's opinions on receiving communion and being gluten free. I just started eliminating wheat from my diet and went to church today and after I went up for communion (oops) :unsure: realized that altho it has been turned into the body of Christ, it still has the physical properties of wheat bread. I want to know how others have handled similar situations and how I should bring this subject up to my priest. Any help you guys could give would be great. Thanks

Christi

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The Communion wafer is definitely not okay for us. It will destroy your intestines. Catholics have...little we can do about it. There is a low-gluten wafer deemed safe, but the prospect of ingesting gluten purposely bothers me. You'll get slightly contaminated anyway, without realizing it (in minute amounts) so that additional gluten might make it too much. The other alternative is to drink the wine, but that can also be problematic since people sometimes drink it after taking communion (crumbs) and the rim is only wiped with a handkerchief--I wouldn't recommend that either. Protestants have the option of providing a gluten-free wafer and taking that instead, but as Catholics all we can do is...hope that the Church will be more accomodating eventually. It is 100% not allowed to take a gluten-free wafer. There's a story about an 8-year-old girl whose First Communion was invalidated because she used a gluten-free wafer. See the Publications section and look for one about the Catholic Church or Communion or something--there are a couple threads on it.

0

Share this post


Link to post
Share on other sites

christicrete -

I suggest you talk to your priest with the following information. Go to www.benedictinesisters.org and consider using the low-gluten host. See if he will use it. A special pyx can be made available to you to contain and pass the host to you. You can also take the wine in a separage chalice, if he has not put any of the host in it. You can also sit up front and go first. There is an opportunity for contamination, but you will have to make your own decicion regarding how much is too much. Personally, I find the amount of gluten consumed from wither species is insignificant. You can actually calculate the amount of gluten you might consume. If you are extremely sensitive you might react. You almost have to give it a try to see what is best for you.

0

Share this post


Link to post
Share on other sites

Although I am not Roman Catholic, my granddaughter is and the priest at her church is making the exception for an older child in their parish already by using a gluten-free wafer and just looking the other way....he is a younger priest. I wonder what Jesus would have done!!!!!!!!! My granddaughter will be 7 in a year and taking her first communion in this, their new church, so it was the first thing my DDIL asked of the new priest before considering enrolling her children in that school/church. I sure hope the Roman Catholic faith will be taking a look at this issue in the near future. I am a Lutheran and because I am the only gluten-free person in our congregation which is a rather small one, I just crack some of my rice crackers up and they use them in place of the wheat wafers/same results.

Barbara

0

Share this post


Link to post
Share on other sites

Personally, I don't take communion anymore. The doctors I consulted said low gluten hosts will damage the intestine overtime. For my daughter's 1st communion last year she (and I) received the low gluten host (from the benadicine sisters, mentioned above). I explained to her that until a completely non-gluten host is acceptable this would be her only time receiving the host. Each time we go to mass we "remember" her first communtion and recieving Christ.

I know this is unorthodox, but it works for us.

The priest also offered the wine instead, but it is a shared chalice and I don't want to risk gluten contamination among other things.

This is an ongoing dillemma for me... I wish there was an easy answer.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Ruth,

Apparently what you are doing is not unorthodox, it is very orthodox and has the official support of the church, communing with God while sitting out as it were, I mostly do that (I occasionally use a low gluten one but I can't see where I've put them and they might be stale anyway by now, I didn't get them, someone else passed them on).

Best wishes,

0

Share this post


Link to post
Share on other sites

I saw a thing on Dateline or 20/20 - one of those types of shows. Around 1200 celiac disease children go thru communion every year. They use specials rice wafers made from nuns (possibly the link mentioned in an earlier post). Although the local church will agree to it - and nuns make the wafers - the big catholic church will not recognize it as being official. I'm not at all catholic, so my "Wording" might be slightly off. I hope you get the idea anyways.

0

Share this post


Link to post
Share on other sites

:D To avoid (the risk of) going round and round in ever less well informed circles,

For everybody's information and benefit,

1. there is a URL to check out at www.catholicceliac.org

2. in this our own forum are at least two very informative previous threads around these issues, a search will turn them up immediately.

Purely personally I would like to be so bold as to mention how highly regarded it is not only by Jesus but also by discerning and authoritative elements within the church to make a "spiritual communion" while "sitting out" from the "distribution of the elements".

I wonder how many misconceptions about Communion (in more than one denomination) are due to a kind of social pressure disguised in religious terms.

I have arrived at these "insights" through my own experiences.

Evidently some people say that the very low level of gluten will not hurt them when it is transformed into Jesus; some say it will have to not hurt them the first time (like Ruth); some embrace the sitting out from the start.

(I have been wavering between the first and third, but that doesn't mean I don't probably need to go absolutely 100%.)

I wish to emphatically stand up for and defend the consciences of all three groups and though no expert, wish to reassure everybody for whom this is a matter of genuine personal concern, that there is backing for all three routes in theology and church order and you should not succumb to social pressure or any feeling that anyone else is trying to make you feel, that any course of action is inferior.

0

Share this post


Link to post
Share on other sites

Thank you for that last reply. I guess I was struggling with what others would think by my not going up for communion and I think I needed someone to tell me that this is something between me and Jesus and speculation is purely that, speculation. I think I will contact my priest and speak with him about this and what he is willing to do. This is just such a great place when I have topics because I know noone with this and my doctor isn't the greatest believer in being totally gluten free ( I keep testing negative, but have not had a biopsy) but I just know how I feel when I eat wheat wether it is celiacs or not. By the way, where would I find a gluten-free host if we decide on that route? Thanks everyone so much, I am now rambling along so I will go, thanks again, nice to know others have been there and done that.

Christi :P

0

Share this post


Link to post
Share on other sites

Hi Christie,

I also have chosen not go partake in the taking of the host anymore. I am of the belief that "a little bit of gluten" here, and "a little bit of gluten there" add up to an amount that is not acceptable. Also, I don't feel comfortable drinking the wine for fear of cross-contamination (a quick swipe with a hanky doesn't do much in my eyes), but also since the SARS outbreak last year which I was unfortunately and unwittingly VERY closely involved in, I am also now extremely overly cautious when it comes to germs spreading...... :unsure:

My husband is aware of my position and totally understanding of it. He goes up with our oldest Eileen, and I stay in the pew with our other three children.....

You have to do whatever fits within your comfort level..... ;)

Karen

0

Share this post


Link to post
Share on other sites

Celiac is an issue that they are aware of at our church probably due mostly to the fact that one of the directors of religious education at our parish has it. At our church you have to alert the priest before mass that you will be receiving communion and he lets you know where to sit so that you will be receiving communion from him. They put the low gluten wafers into a separate pyx. Of course the majority of the time we end up getting to mass a little to late to do this so there have only been a few occassions that I have received it. I haven't had any problems with tollerating it but I'm probably not as sensitive as many others are. Before my diagnosis I never made a regular practice to taking the wine. I guess I have more of a problem with the thought of catch the latest bug going around town when taking the wine than any fear of crumbs contaminating me.

I have adjusted to not going to communion although it does make me feel a bit self conscious when people around me have to squeeze past me in my seat in order to go up themselves. I do wonder what they must be thinking. I probably feel worse for my teenage daughter who is also gluten intolerant.

I know I was shy about having a conversation with the priest about it. I found out about their protocol in an article that was printed in our bulletin. Talk to your priest sometime after mass and let him know about your diagnosis and see when he'd have sometime to talk to you. You might find that they may already be addressing this issue with others in your parish.

-Peg

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,464
    • Total Posts
      930,717
  • Member Statistics

    • Total Members
      63,892
    • Most Online
      3,093

    Newest Member
    Days with Grace
    Joined
  • Popular Now

  • Topics

  • Posts

    • Feeneyja, This will be a little long but I will  try to be brief as possible. See this discussion thread that talks about how Pellagra is often diagnosed as other disease's today because doctor's rarely recognize it today in a clinical setting. Pellagra's is described as the 3 D's if you don't count the 4th D of death if it goes long enough and is not diagnosed in a timely manner. Dementia (Neurological) Digestive (GI problems), Dermatitis issues (Ezcema, Psorsias, Acne etc.) According to mdguidelines website http://www.mdguidelines.com/pellagra indicates that quoting “The diagnosis of pellagra is straightforward when the classic rash is present but may be elusive if there are only gastrointestinal and/or neurological manifestations.” And why I believe in many cases Pellagra goes undiagnosed today.  Because doctor's have forgotten how it presents. A longer researcher article about the neurological presentations of pellagra mention the many ways a Niacin deficiency can present itself. Here is the link https://www.hindawi.com/journals/cggr/2012/302875/ and I will quote some of the neurological/dementia related symptom's of an undiagnosed pellagra patient. "Mental symptoms were wider than dementia, in that depression, fatigue, psychomotor retardation, mania, obsessions, and a whole range of psychoses with auditory and visual hallucinations were well described, along with personality change and sociopathic and drug and alcohol addictive behaviours. Panic disorders were seen as was a general inability to deal with physical or mental stress. Poor brain development such as hydrocephalus or cerebral palsy was also common. Acute delirium or even coma occurred, with some patients having myoclonus and other extrapyramidal signs reminiscent of the spongiform encephalopathies. The dementias of pellagra included features akin to Lewy body, Alzheimer’s, frontotemporal, vascular, and prion diseases. Parkinsonism was also common and a festinant gait was first described in pellagrins. Tremors of various descriptions, including asymmetric rest tremors, were noted and some patients had typical paralysis agitans. Pellagrins had a characteristic expressionless facies, so some signs of parkinsonism were present in most cases. Many features of pellagra closely resemble the nonmotor aspects of PD. The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." It is me again. You can see the neurological symptom's of Pellagra are severe and wide ranging. Taking Niacinamide 3/day for 6 months can alleviate many of these symptom's if your daughter has subclinical pellagra and the doctor's don't know to look for it. I had deep depression for many, many years and I shudder to think now that only a Vitamin could of helped me 30+ years ago and the doctor's didn't know to look for it. Shoot it isn't just Niacin.  All B-Vitamin's help your stress levels.  IF you have stress B-Vitamins can help your stress levels. I take Folic Acid for Blood pressure problems and it keeps my BP with in a normal range. A article on celac.com discussed this topic in detail a few months ago. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html I hope it is helpful.  Good luck on your continued journey. If you have never heard of Pellagra you are not alone. Dr. Heaney discusses why this is so in his online article Pellagra and the 4 D's. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ If you don't have time to read the whole hindawi article I also suggest this shorter but informative blog about why a Niacin deficiency can cause dementia related conditions. https://pellagradisease.wordpress.com/ Then decide for yourself and your daughter's sake to decide whether to take Niacinamide or not to see if it helps the D's symptom's she is experiencing (Digestive, Dementia etc.) The International Journal of Celiac Disease makes note of this in their research that Pellagra could be contributing to symptom's being diagnosed as Celiac disease today instead of a possible (co-morbid) Pellagra that causes the same symptom's. When they discuss how Pellagra and Celiac disease are related (Co-Morbid) in a Celiac diagnosis are surprised to find that in 58% of Celiac's -- can also be diagnosed with Pellagra. See this link http://pubs.sciepub.com/ijcd/3/1/6/ Quoting 3. Pellagra and celiac disease "The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]." If one is being diagnosed incorrectly the other co-morbid conditions can continue to cause Celiac like symptom's. But if the majority of those who have been diagnosed as Celiac could be helped by taking Niacinamide I see no you reason you shouldn't try it. Or at least research it some more. Again good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
    • Read this posted on the FDA.gov site: https://www.fda.gov/food/guidanceregulation/guidancedocumentsregulatoryinformation/allergens/ucm362880.htm
    • Color me confused.  I went to Costco yesterday and there were 2 products there that had GLUTEN FREE plastered on the box but then in the ingredients was a: May contain wheat. How is this possible?  How can they still put gluten-free on the box?  We should be able to trust gluten-free labeling no?? And second question:  How many of you would still buy that item?  I REALLY wanted to buy the Island Way Sorbet for my daughter as it is her FAVE.  But I didn't want to take the risk.  Maybe when she is healthier?  I mean it is SORBET?! LOL So frustrating!
    • JMG I have never laughed so hard! This was the best epic comment I've read! Thankyou so much!  Your all teaching me so much! Love the 'my glass to go' idea!! I will be adopting this... can't believe the mucky glasses we must be drinking from! Shocking!  Im still baffled how so many people don't understand cross contamination i.e. The crumbs on the work surface to cut the lime for your tasty beverage!  Your all amazing Thankyou x
    • Yes!  I never really had GI symptoms, but I did have palpitations and restless leg syndrome from anemia.  These went away within the first month. But myalgia and joint aches aren't better after 1 year.  Waiting to get my antibodies re-tested and see if they're negative.....
  • Upcoming Events