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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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I feel so dumb right now! I have been trying to figure out why I have been feeling so crummy lately (like I have been glutened). I knew that I had not eaten anything unsafe. Ha Ha. As I sat here reading the website drinking this new organic drink I found at Walmart, I had an epiphany. I had read the ingredients in the store, but I got distracted and did not finish. I just reread the label and learned that drink has barley and wheat grass in it. Too bad I had already finished drinking it. At least this time it is not in my head. :lol: Please tell me I am not the only one that has a brain lapse every now and then. It is all very ironic, the drink tasted terrible. If I am going get glutened, couldn

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Everyone has their moments when that happens. Don't beat yourself up about it things like that happen sometimes. Happened to me a few times...just learn from them when you can and try to prevent it next time. But sometimes accidents are inevitable. Did you get a bad reaction yet?

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I do not know how many people are like this. I have had some minor stomach issues already and nausea, but for me, the worst is yet to come. Most of my problems are neurological. Usually the day after I eat something I shouldn't have I get really fatigued, depressed, and extremely irritable. I get so upset over such minor things. This usually last three to four days. Plus my face breaks out in very painful cystic acne. I have been drinking this stuff for a couple of days, and have been having lots of problems. I should have guessed, but I do not usually think of drinks as having gluten in them. I had been trying to figure out what I had eaten wrong, but the only thing I had eaten differently (aside from the drink) was some Hebrew National hotdogs. I know those are gluten free, but I was really starting to wonder. Live and learn. Thanks for your support. It is really nice to share with people who know what you are going through. :D

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You should see all the shampoo and conditioner I have in my bathroom now! My husband was laughing about it this morning. I have been looking for a gluten/wheat free shampoo and conditioner that don't have any parabens in them. AND to be totally fussy, I want them to be nice to my hair. I have gone through many... still not satisfied but getting there. Anyway, my favorite one I had found didn't seem to say wheat in the ingredients but one day I'm in there reading the flowery prose on the back of the bottle (you know, "You'll feel so radient - like running down flowery slopes to a secret meadow where your shiny hair... blah blah blah") and I see something about wheat. Dumb - I looked at the *ingredients* but not the description. And there is wheat in both. Sigh.

Happens to the best of us (at least I'd like to think that!) :D

Stephanie

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Guest Viola

I was having many problems one time a couple years ago. Couldn't figure out what it was. Mom and Dad were visiting, but they were pretty good, and I was watching like a hawk. Then one day Mom and I were sitting having Mom's favourite Lemon tea and Dad was leaning on the counter watching a program on TV and reading the tea box during the comercials. And yup ... The "Lemon Tea" had toasted wheat germ in it! I hadn't even thought to read the ingredients of Lemon tea. Who would have thought they would put wheat germ in it! :o:angry: You know that from then on I read everything :lol: I sure felt dumb at the time though :rolleyes:

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Guest gfinnebraska

I did the same thing with Malt-O-Meal Coco Roos. Read on here, somewhere, that they were gluten-free. Took it for gospel ~ DIDN'T even think of actually READING the label (hahaha), and, sure enough there it was: Oats!! First ingredient!!!! UGH!!! Needless to say, my daughter is loving my mistake!! I used them for dessert... she loves them for breakfast! :(

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Guest ajlauer
If I am going get glutened, couldn

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To take it to the next level... if you have already glutened yourself, and are already sick, can you have that piece of cake? Or would you get sicker? I'm not gluten-free yet, so it would be a good thing to know!

You would be more sick then you were.That's really not a good idea you get more sick and more damage. Let's put it this way....If you have a car and get into an accident and it gets some damage... does that mean go around and act careless and keep trying to give it more damage?

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Sicker? Probably, but perhaps not. But definitely more damaged in the intestines, regardless of whether you feel worse as a result.

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I did the same thing a few weeks ago. We made this awesome taco meat and it didn't occur to me to read the many ingredients cause my son-in-law was cooking and he's got the skin form of celiac (hives and only mild intestinal symptoms). I woke up in the middle of the night positive there were WOLVERINES trying to claw their way out of my intestines!! I didn't know whether to sit or turn around, if you know what I mean. I sat... and sat... and sat... and sure enough... both the adobe sauce and the mole in the taco meat contained "toasted wheat bread."

I accused him of trying to poison me as he thinks I "cursed" him to get celiac disease... he found out about his about a year after I did... and as celiac disease didn't appear to be as common as I believe it will come to be... he accused me of cursing him. Hahaha

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Guest ajlauer

Kaiti and celiac3270: Thanks for the replies! Excellent analogy too!

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    • Gemma......if you are ever in London, please check out this place.  It is a 100% gluten free bakery and the food is out of this world!  I can't get bread like this in the States and it certainly is worth a road trip for anyone living in the Uk, within reasonable distance from London.  It will easily satisfy all of your bakery cravings and I bet the bread freezes well. http://www.beyondbread.co.uk/
    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
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