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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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All My Make-up, Shampoo, And Lotion Has Gluten!

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

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For Hair Products...Go to www.morroccomethod.com

I've been using there stuff for over a year. It's 100% Gluten Free.

And they have a great forum like this one.

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

I don't know where you got that information but it is incorrect. You may want to read the book:

Celiac Disease: A Hidden Epidemic by Dr. Peter Green. It is an extremely informative book about the disease and how to manage it well. It covers why you do not have to go gluten-free with topical products, except lip stick and like products. Of course, you absolutely can choose to go entirely gluten-free but unless you plan on eating any of this stuff, it's not necessary....really. You have to ingest a product for it to spark an autoimmune reaction. As well as learning the diet, it's important to learn the mechanism of how this disease works and not believe everything you hear from other people. There is a lot of incorrect information out there.

If you are still not feeling well it could either be from gluten you are unaware of ingesting from your diet or you may have multiple food intolerances/sensitivities. This is highly common with Celiacs and the most likely culprit.

Good luck and I hope you feel better!

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Suave and Dove will clearly label gluten ingredients. There are gluten free cosmetics also available. Giovannni products are organic and all the shampoos and condiitoners are safe as well as many of their skin care products. Most of the Burt's bees products are also safe, I use their styling gel. Many of us do react to gluten in toiletries and IMHO before you start thinking you are suffering from other intolerances you should be as gluten free as possible.

There are also threads here with products others use as well as advertisements for gluten free cosmetics that are on the side bars. Try doing a board search and you should find them easily.

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

ALL Giovanni Products are Gluten Free, I use the shampoo and conditioner and love them. ALL Afterglow Cosmetic products are Gluten Free. I personally try to only use personal care products that are 100% Gluten Free because I don't want to risk it. If I cover my body with gluten containing lotion and put my hand in my mouth or something I could get contaminated and research shows that consumers digest a significant amount of shampoo and cosmetic products without knowing it. So, my opinion is that it is worth the search, so good luck!

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Here is a list of Gluten Containing Ingredients that may be found in personal care products. Now, this can get VERY confusing, so bear with it and familiarize yourself with these! (If anyone has an corrections, additions, etc. please post!)

WHEAT DERIVED INGREDIENTS

AMP-ISOSTEAROYL HYDROLYZED WHEAT PROTEIN

DISODIUM WHEATGERMAMIDO PEG-2 SULFOSUCCINATE

HYDROLYZED WHEAT GLUTEN

HYDROLYZED WHEAT PROTEIN

HYDROLYZED WHEAT PROTEIN PG-PROPYL SILANETRIOL

HYDROLYZED WHEAT PROTEIN/PVP CROSSPOLYMER

HYDROLYZED WHEAT STARCH

HYDROXYPROPYLTRIMONIUM HYDROLYZED WHEAT PROTEIN HYDROLYZED

STEARYLDIMONIUMHYDROXYPROPYL

TRITICUM VULGARE (WHEAT) FLOUR LIPIDS

TRITICUM VULGARE (WHEAT) GERM EXTRACT

TRITICUM VULGARE (WHEAT) GERM OIL

VITAMIN E DERIVED FROM WHEAT GERM OIL

WHEAT GERMAMIDOPROPALKONIUM CHLORIDE

WHEATGERMAMIDOPROPYL ETHYLDIMONIUM ETHOSULFATE

WHEAT AMINO ACIDS

WHEAT BRAN EXTRACT

WHEAT GERMAMIDOPROPYLDIMONIUM HYDROXYPROPYL

WHEAT GERM EXTRACT

WHEAT GERM GLYCERIDES

WHEAT GERM OIL

WHEAT PROTEIN

WHEAT (TRITICUM VULGARE) BRAN EXTRACT

BARLEY DERIVED INGREDIENTS

AMINO PEPTIDE COMPLEX

BARLEY EXTRACT

BARLEY LIPIDS

HORDEUM VULGARE (BARLEY) EXTRACT

HYDROLYZED MALT EXTRACT

PHYTOSPHINGOSINE EXTRACT

SAMINO PEPTIDE COMPLEX

RYE DERIVED INGREDIENTS

SECALE CEREALE (RYE) SEED FLOUR

OAT DERIVED INGREDIENTS

AVENA SATIVA (OAT) KERNEL PROTEIN

HYDROLYZED OAT FLOUR

OAT AMINO ACIDS

OAT (AVENA SATIVA) EXTRACT

OAT BETA GLUCANOAT EXTRACT

OAT FLOURSODIUM LAUROYL

SAVENA SATIVA (OAT) FLOUR

MISC.

CYCLODEXTRIN

DEXTRIN

DEXTRIN PALMITATE

HYDROLYZED VEGETABLE PROTEIN

MALTODEXTRIN

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After realizing my occasional tendency to get shampoo in my mouth when I'm in the shower, I switched to Giovanni and love it.

I've heard that all Softsoap products are gluten-free, at least they were as of a couple of years ago.

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

Most likely your gluten free diet has something in it that you think is safe but actually is not. (I think most of this have expierenced that a time or two) I am a very sensitive celiac and I use shampoo, and hair gel that has gluten in it and I don't have any problems. When I sweat I do however make a point to keep and perspiration away from my mouth.

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

I am extremely sensitive and will suffer from neurological symptoms (myoclonus) if I use cosmetic products (topically) that contain gluten. My Celiac Specialist acknowledged my reaction by saying that several of her patients had suffered various reactions from using cosmetic products containing gluten. Last year, I was actually glutened by a Nexus shampoo that contained wheat and three months ago by Neutrogena Triple Moisture hair conditioner. Neutrogena told me it was gluten-free and after I was sickened from it, they apologized when they told me I had been misinformed. The product was wheat free..not gluten-free!

Anyway, I use Dove sensitive skin soap, California Baby Super Sensitive fragrance free shampoo (Target carries it in the baby section), Shikai Color Reflect hair conditioner (Whole Foods or other health food stores carry it). Shikai also makes a hair mousse and many gluten-free products..check out their site for details.

Someone on this Board (Patti or Christa) told me about Now's Joba Joba and cocoa oil. It is not a lotion but is a great gluten-free moisturizer if you have extremely dry skin. It comes in a jar and you only have to use a small amount.

Desert Essence Organics makes gluten-free bodywash.

Hope this helps you

SylviaAnn

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I keep seeing that some people don't think celiacs need to avoid gluten in their personal care products that are not ingested. I'm sure the people writing these studies are only looking at the damage done to the intestinal track. If I use lotion or shampoo that contains gluten I start to itch. So there is another reason to avoid gluten in anything if you are sensitive to gluten.

Miss Emily, thanks for the list!

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I keep seeing that some people don't think celiacs need to avoid gluten in their personal care products that are not ingested. I'm sure the people writing these studies are only looking at the damage done to the intestinal track. If I use lotion or shampoo that contains gluten I start to itch. So there is another reason to avoid gluten in anything if you are sensitive to gluten.

Miss Emily, thanks for the list!

No problem, I hope it helps! And I agree, it is so much better to be safe the sorry. There is so much we just don't know yet about Celiac Disease as it is still being studied. Therefore, I always suggest to ere on the side of caution.

What I Use:

Bar Soap (Dove Sensitive Skin)

Shampoo and Conditioner (Giovanni)

Lotion (Currently using Curel Fragrance Free but they are not 100% gluten-free :/ here is a link to the statement on their website: http://www.curel.com/berson.asp)

Perfume (I use Giovanni Scented lotions and body butters, I love the Cucumber Melon one!)

Toothpaste (Tom's of Maine, http://www.tomsofmaine.com/products/ingred...-products.aspx)

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

Sorry to reply again, lol, but if you are specifically looking for a Voluminzing Shampoo, I use Giovanni's "Route 66." And they have hair spray and mouse too.

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Try Bubble and Bee... (dot com) Do read the ingredients, as I'm no expert but... looks safe to me, and it's paraben free. When my current shampoo and shower gel run out I'm replacing w/these.

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I don't know where you got that information but it is incorrect. You may want to read the book:

Celiac Disease: A Hidden Epidemic by Dr. Peter Green. It is an extremely informative book about the disease and how to manage it well. It covers why you do not have to go gluten-free with topical products, except lip stick and like products. Of course, you absolutely can choose to go entirely gluten-free but unless you plan on eating any of this stuff, it's not necessary....really. You have to ingest a product for it to spark an autoimmune reaction. As well as learning the diet, it's important to learn the mechanism of how this disease works and not believe everything you hear from other people. There is a lot of incorrect information out there.

If you are still not feeling well it could either be from gluten you are unaware of ingesting from your diet or you may have multiple food intolerances/sensitivities. This is highly common with Celiacs and the most likely culprit.

Good luck and I hope you feel better!

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For the person who said the Lady was incorrect about using products that contained wheat, you are the one that is wrong....

I have had celiac since 2002. Anytime that I put any type of product on my body that contains wheat, barley, rye, and gluten I break out.. Including the top of my head when I use shampoos that are contaminated. IT really depends on what type of celiac you have and how severe your reactions are.

My brother too has celiac. His at first was just the bowel problems but now it is becoming the skin problems too.

Mine was the skinl,dermatitis herpatiforms, now it is becoming the bowel,.......

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For the person who said the Lady was incorrect about using products that contained wheat, you are the one that is wrong....

I have had celiac since 2002. Anytime that I put any type of product on my body that contains wheat, barley, rye, and gluten I break out.. Including the top of my head when I use shampoos that are contaminated. IT really depends on what type of celiac you have and how severe your reactions are.

My brother too has celiac. His at first was just the bowel problems but now it is becoming the skin problems too.

Mine was the skinl,dermatitis herpatiforms, now it is becoming the bowel,.......

No, my information is correct. If a person has a topical reaction from touching gluten, that's an allergy, not a Celiac reaction. There are no "types" of Celiac as far as that is concerned. For a Celiac reaction to occur, you MUST ingest a product internally. This is what triggers the autoimmune system to react.

You really ought to read the book I mentioned so you can educate yourself further on Celiac Disease. Many Celiacs also have wheat allergies to boot so that would explain your reaction.

I'm sure you have the reaction you say you do but that would fall into the allergy category.

I was diagnosed at end stage of celiac disease and was deathly ill. After recovery, I can touch a wheat product with zero problems. Different story if I ingest it. I do not screen anything topical for gluten, except lip and mouth products and my blood work is right where it should be. If gluten were absorbed through the skin, I'd be back in the hospital by now. It's really important that people learn how this disease works so they can make informed decisions based on medical fact and not give erroneous information to someone new to this. If someone wants to eliminate gluten topically, that's perfectly fine but any reaction they are having is not a Celiac reaction, unless they eat the product.

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No, my information is correct. If a person has a topical reaction from touching gluten, that's an allergy, not a Celiac reaction. There are no "types" of Celiac as far as that is concerned. For a Celiac reaction to occur, you MUST ingest a product internally. This is what triggers the autoimmune system to react.

You really ought to read the book I mentioned so you can educate yourself further on Celiac Disease. Many Celiacs also have wheat allergies to boot so that would explain your reaction.

I'm sure you have the reaction you say you do but that would fall into the allergy category.

I was diagnosed at end stage of celiac disease and was deathly ill. After recovery, I can touch a wheat product with zero problems. Different story if I ingest it. I do not screen anything topical for gluten, except lip and mouth products and my blood work is right where it should be. If gluten were absorbed through the skin, I'd be back in the hospital by now. It's really important that people learn how this disease works so they can make informed decisions based on medical fact and not give erroneous information to someone new to this. If someone wants to eliminate gluten topically, that's perfectly fine but any reaction they are having is not a Celiac reaction, unless they eat the product.

People can of course have an allergy as well as celiac. A reaction that is solely on the skin would likely be an allergy as you have stated. However it is also possiible to injest enough gluten with toiletries to cause a autoimmune or celiac related issues. This could occur when shampooing or if you are using gluten lotions the residue on your hands could be enough to start the antibody reaction. IMHO it is best to be overcautious in the beginning and then once a person has healed they can add back in stuff that might be riskier to that person. I am glad you are doing well with gluten derived toiletries but not everyone will. Even the experts are learning more every day and stuff that they think is safe now may not be considered safe once more research is done. This can be seen in the newer definition of gluten free for labeling purposes in food. Not long ago the standard was 200ppm was safe. That has now been lowered to 20ppm. Quite a difference.

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No, my information is correct. If a person has a topical reaction from touching gluten, that's an allergy, not a Celiac reaction. There are no "types" of Celiac as far as that is concerned. For a Celiac reaction to occur, you MUST ingest a product internally. This is what triggers the autoimmune system to react.

You really ought to read the book I mentioned so you can educate yourself further on Celiac Disease. Many Celiacs also have wheat allergies to boot so that would explain your reaction.

I'm sure you have the reaction you say you do but that would fall into the allergy category.

I was diagnosed at end stage of celiac disease and was deathly ill. After recovery, I can touch a wheat product with zero problems. Different story if I ingest it. I do not screen anything topical for gluten, except lip and mouth products and my blood work is right where it should be. If gluten were absorbed through the skin, I'd be back in the hospital by now. It's really important that people learn how this disease works so they can make informed decisions based on medical fact and not give erroneous information to someone new to this. If someone wants to eliminate gluten topically, that's perfectly fine but any reaction they are having is not a Celiac reaction, unless they eat the product.

I respect your opinion..every celiac and gluten sensitive person reacts differently. In my experience and in my Celiac Specialist's experience (she lectures all over the country), she believes that topical products can,,and have caused reactions with many of her patients.

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Hi, I'm new to the forum and I need major help. Even after eating gluten free, I was still feeling very ill. I just found out that not only does what I put in my body need to be gluten free, but also what I put on it. I did find out that Bare Minerals make up is gluten free (correct me if I'm wrong) so I'm covered on make up now. Here is a list of products that I need. I would really appreciate it if someone could give me some recommendations.

Acne facewash

Volume shampoo

conditioner

body wash

lotion

mouse

hair spray

Any help would be appreciated :)

Shampoo/Conditioner - I buy Matrix Biolage and Trader Joe's brand ("Replenish"?)

Lotion - Gold Bond, Unilever (an umbrella company - look on the back),

Lotion - Seven Palms is great (just bought Lavender/Relax kind in a blue bottle at Smith's grocery store)

Mouse/Hair Spray - (Aussie? Not sure but I've heard people mention it here)

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Here are some non-supermarket brands to try (all but burt's bees) available from Sephora, the Skin store or otherwise online:

Acne facewash: korres, caudalie, ecco bella, 100% pure, LUSH (coal face and fresh pharma esp,) burt's bees, sundari-- ditto these for moisturizers

Volume shampoo and conditioner: phyto, Lush (big), rene furterer, korres (conditioner only, ) burt's bees

Body wash: korres (check label), LUSH, burt's bees

Lotion: 100% pure, LUSH, korres (very nice!), burt's bees, caudalie, sundari

Mousse and hairspray: phyto (hairspray, leave-in conditioner, etc.), furterer-- try LUSH and korres (yucca soft shine wax) for mousse alternatives

I have found that LUSH and korres (though expensive) have great lines with a number of safe products.

Good luck. As always, check the labels. There are other lists on this site if you do a search.

Also know that this topic (as you can tell from the posts) represents a kind of schism in the celiac community between those who believe you don't have to worry about it and those who feel just as strongly that you do. There have been some fights here.

I come down on the "be very careful about it" side because I know anything I put outside my body can end up inside. I sing in the shower!

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People can of course have an allergy as well as celiac. A reaction that is solely on the skin would likely be an allergy as you have stated. However it is also possiible to injest enough gluten with toiletries to cause a autoimmune or celiac related issues. This could occur when shampooing or if you are using gluten lotions the residue on your hands could be enough to start the antibody reaction. IMHO it is best to be overcautious in the beginning and then once a person has healed they can add back in stuff that might be riskier to that person. I am glad you are doing well with gluten derived toiletries but not everyone will. Even the experts are learning more every day and stuff that they think is safe now may not be considered safe once more research is done. This can be seen in the newer definition of gluten free for labeling purposes in food. Not long ago the standard was 200ppm was safe. That has now been lowered to 20ppm. Quite a difference.

I do agree with your statements as you defined them correctly. Yes, a person can have a reaction if they swallow enough shampoo but I personally am at a loss over this one. The smallest, tiniest amount of shampoo will be noticed, taste-wise in the mouth. Even if a person was not a Celiac or GS, who would voluntarily swallow shampoo all the time? I would be sick from that alone, never mind a Celiac reaction. The only reason a person would have a problem from toiletries is by swallowing them routinely so I guess if someone feels they cannot accomplish this, they will choose to go entirely gluten-free. Not a problem. I just have a problem with people giving erroneous information, especially to newbies. Unless you are not a young adult or adult, it shouldn't be too hard to not ingest products.

As far as the "learning more everyday" mantra is concerned, I think this in not new science. It's easy to establish whether a product will or will not be absorbed into the skin to the point where it reaches the GI tract. This is done all the time with meds. I also believe, from what I have read and questioned the AMA on personally, that they know at what point, in PPM's, a person will have villi blunting and damage. They may not have a cure other than the gluten-free diet or be good at diagnosis yet but the disease process is well understood. What it really takes for this diet to be successful with anyone is learning about the disease process itself along with the diet aspect.

I have no problems with anyone choosing to go completely gluten-free, for whatever reasons they may have. However, it is wrong and incorrect for someone to give out information to a new Celiac that gluten can be absorbed through the skin and you have to go entirely gluten-free. Ask any Celiac expert in the medical field and they will tell you the same. At some point you have to include information from the experts because you cannot make decisions based on what someone said on the internet that's been proven otherwise. I am in the science field myself so maybe this flavors how I look at research and the information that's available.

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I do agree with your statements as you defined them correctly. Yes, a person can have a reaction if they swallow enough shampoo but I personally am at a loss over this one. The smallest, tiniest amount of shampoo will be noticed, taste-wise in the mouth. Even if a person was not a Celiac or GS, who would voluntarily swallow shampoo all the time? I would be sick from that alone, never mind a Celiac reaction. The only reason a person would have a problem from toiletries is by swallowing them routinely so I guess if someone feels they cannot accomplish this, they will choose to go entirely gluten-free. Not a problem. I just have a problem with people giving erroneous information, especially to newbies. Unless you are not a young adult or adult, it shouldn't be too hard to not ingest products.

As far as the "learning more everyday" mantra is concerned, I think this in not new science. It's easy to establish whether a product will or will not be absorbed into the skin to the point where it reaches the GI tract. This is done all the time with meds. I also believe, from what I have read and questioned the AMA on personally, that they know at what point, in PPM's, a person will have villi blunting and damage. They may not have a cure other than the gluten-free diet or be good at diagnosis yet but the disease process is well understood. What it really takes for this diet to be successful with anyone is learning about the disease process itself along with the diet aspect.

I have no problems with anyone choosing to go completely gluten-free, for whatever reasons they may have. However, it is wrong and incorrect for someone to give out information to a new Celiac that gluten can be absorbed through the skin and you have to go entirely gluten-free. Ask any Celiac expert in the medical field and they will tell you the same. At some point you have to include information from the experts because you cannot make decisions based on what someone said on the internet that's been proven otherwise. I am in the science field myself so maybe this flavors how I look at research and the information that's available.

Fyi...You do not have to have full blown Celiac Disease to suffer from the effects of ingesting or using topical products containing gluten. Many patients who are gluten sensitive suffer symptoms that are worse that Celiacs...but without the villous atrophy. At the recent GIG Conference held in Seattle, Dr. Peter Green said that he has changed his mind and, yes, gluten sensitivity without Celiac Disease (without villous atrophy) is real. He previously did not believe in gluten sensitivity. I am living proof of this as I suffer from neuro symptoms if I ingest a drop of gluten. I have myoclonus for several days and nights at sleep onset from ingesting or applying a cosmetic product topically (i.e. my husband rubbed my head with a towel after using a hair conditioner containing gluten). I had periodic limb movement all night, causing extreme insomnia from this. My celiac specialist diagnosed me with secondary myoclonus caused by gluten ingestion.

Siesta Key :)

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Fyi..that info on skin absorption (Cosmetic products is outdated). Althought the Mayo Clinic is well respected, they only speciialize in treating selected health conditions. They are not known for their expertise in Gluten sensitivity or Celiac Disease.

Sylviaann

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If you look at the original post, you will see that it is from a person who is requesting a list of gluten-free products to try in the hopes that she will feel better. This is a reasonable request.

It seems to me that this person has made an informed decision to try going gluten free in all areas of her life. She was not asking for anybody to weigh in on the debate. She was asking for concrete information about gluten-free products.

We can go back and forth ad infinitum here (and it has been done before,) but we should honor the original request. I see only two lists with the information she requested here.

People who feel the need to "police" this issue ( as well as a few other issues) and pass out "correct information" (that may not be correct at all) would do well to stop for a nanosecond and consider their true motivation. Why do you care if somebody decides to use a gluten free shampoo? She is not foisting her beliefs on others nor is she telling new people they must do this. She simply wants to know which ones are gluten-free. This is the right place to ask that question. And no erroneous information regarding her request was given.

If I were a new poster and I got this kind of response to my thread, I would be both oddly fascinated and disturbed.

I forgot to say that many of the juice beauty and juice organic products are gluten-free as well.

Good luck and welcome to the original poster. I bet you didn't think you were stepping into a hornet's nest, eh?

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    • Hello all! I am new on here, and I was wondering if it worth a look for me to get tested for celiac disease. I've been experiencing severe stomach aches accompanied by issues with loose stool, constant fatigue, lots of infections, worsening of skin on my face, frequent nausea, lots of trouble losing weight. I'm asking because I was feeling better at home from vacation after having a very rough semester at school and I'm not very good at keeping track of what I eat typically, but at home it is mostly vegetables and meat, with the occasional rice thrown in. This morning I had my first bagel in months and was extremely nauseous with severe pains and urges to run to the bathroom.  Do y'all think it is worth a try to get tested for celiac disease or some type of gluten intolerance? I'm so tired of being sick and not knowing why... Thank you <3 
    • LexieA, I agree with Plumbago. The symptom's of low stomach acid and high stomach acid are similar so it is easy to confuse the symptom's of one as the other. Dr. Myatt explains this well in her online article about stomach acid. http://healthbeatnews.com/whats-burning-you/ quoting "But My Symptoms Feel Like Too Much Acid…" Strong stomach acid and pepsin quickly "emulsify" fats and proteins, making them ready for the next step of digestion, passage into the small intestine. When these digestive factors are weak, food remains in the stomach for longer and it begins to ferment. Gas pressure from the fermentation can cause bloating and discomfort and can can also cause the esophageal sphincter to open, allowing stomach contents to "backwash" into the esophagus. Even though weak stomach acid is the central cause of this, even this weak stomach acid, which has no place in the esophagus, will "burn." This burning sensation confuses many people, including doctors, who then "ASSuME" that excess acid is to blame. Too little acid, resulting in slowed digestion, and gas which creates back-pressure into the esophagus is the real cause of almost all "heartburn" and GERD." so  you can see how they can easily be confused for each other. you no doubt are having stomach acid issues but it is because it is too little or too much? Timeline helps us determine which it is. If it happens when we eat something it is already to low to  digest the food we are eating. if eating something cause the heartburn/gerd to improve (especially meat) then your stomach acid is really too high especially if this happens between meals. because eating something will naturally dilute/lower the stomach acid pH. I wrote about my stomach acid being misdiagnosed on my celiac.com posterboy blog. ( have summarized most of what you need to know in this reply but the post is still there if you want to study it more for yourself. if your not taking an antacid now then taking BetaineHCL should improve digestion. If it does then raising your stomach acid by lowering you pH should improve your digestion. study on the best way to take powdered stomach acid before trying this. but I found taking 3 to 4 capsules in the beginning was easier than taking only 1 or 2 in the beginning .. .  until I could back it down to only needing one per meal or now none per meal to aid digestion. which is what we are shooting for.  The place where our body is now producing our stomach acid naturally at a healthy level. if you feel a "warm sensation" in your stomach you have reached a good level. I hope this is helpful. I only know it helped me. *** this is not medical advice but I hope you have as a good experience with it as I did. Usually peopledon't  have a trouble taking BetaineHCL unless they have an ulcer or already taking PPI's which are actually lowering  their stomach acid contributing to a viscous cycle of being locked into taking PPI's long term. if PPIs are taken for more than 6 months they can be almost impossible to stop/quit because of the acid rebound people experience when trying to stop taking them cold turkey and why they recommend stepping back doses by 1/2 gradually so they don't get overwhelmed by the stomach acid your stomach is  able to produce again naturally itself (hopefully). . . if taking betaineHCL jump started your ability to produce stomach acid again. . . if not taking betaineHCL (Powdered Stomach Acid) can replace what the body is missing much like taking a hormone. chris kresser has a good online article on this subject as well. https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ he says it well. quoting chris kresser. "If heartburn were caused by too much stomach acid, we’d have a bunch of teenagers popping Rolaids instead of elderly folks. But of course that’s the opposite of what we see." **** this is not medical advice but I hope it is is helpful. posterboy by the grace of God, 2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things".  
    • Lex_ I agree with Ennis_Tx. You need to take some Magnesium.  It works best as a Magnesium Citrate or Magnesium Glycinate. Magnesium Citrate are easiest to find. Take it 2/day for the first couple weeks to see how much more energy you have. Then you can take it with each meal or 2/day and one hour before bedtime if it is not convenient to take it at work. If it is working you (right form of as a Magnesium Citrate or Glycinate) you will will experience vivid dreams. And wake up with enough energy to take on the day. **** this is not medical advice but it really helped my chronic fatigue symptom's. It is good for leg cramps too also known as charley horse's. posterboy,
    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
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