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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trials For Celiac Vaccine Have Begun
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amber    1

If you click on the link below you will go to a very interesting story from Australia which describes the celiac vaccine which is now being trialled. If you click on video you will be able to see the story which was screened during the news here.

http://www.abc.net.au/news/stories/2009/04/13/2541789.htm

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Eh, I'd rather not eat gluten again. Too many horrible memories.

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Takala    413

I have multiple different side effects and other problems from a lifetime of being misdiagnosed. So I have no official sanction. If I were to be somehow officially diagnosed, now, in my country I would be uninsurable. I can't get officially diagnosed because some insurance conglomerate somewhere has set up criteria many people with the disease will never meet. Now somebody wants to eventually sell me a vaccine so I could imitate everybody else's really bad eating habits. After food manufacturers finally start noticing we have needs. Not that it could change my simple carbohydrate intolerant metabolism at this point.

Typical.

Pardon my total lack of enthusiasm.

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mushroom    1,205

Aaah, Takala, you are sounding very jaded. At least they are recognizing there is a problem. Even if you don't agree with their solution :rolleyes: When people are as far gone as we are their solutions are worthless, but for others coming along, who knows?? Don't deny others the chance of eating junk food :ph34r: The world is going to have to devise a way of killing people off after all.

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mommida    158

I am wondering about those of us who have developed other sensitivities. If this vaccine contains eggs for example, how many Celiacs still won't be able to get the vaccine?

Can you imagine the vaccine adds telling how bad and life threatening Celiac and gluten sensitivity is to scare the general population into getting the vaccine? I'm sure there will not be a genetic pre-screening before getting the vaccine either.

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Lisa    457

"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Desensitising the body to an allergy is one thing. Attempting to do the same with an autoimmune response may be another. I think you have to be very careful when tampering with the immune system.

I wish the Australian study every success and I'll pray for the volunteers. But I won't hold my breath.

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GottaSki    459

Hmmm...after 43 years of damaging my body by eating the wrong food for I find out all I have to do is not eat Gluten to have some healing and be healthier for the rest of my life. The last thing I want is to eat gluten under any circumstances and with my funky chemistry the vaccine will probably make my body allergic to vegies!

That being said...I do hope the vaccine is successful and not harmful...it may be nice some day to know that an accidental glutening won't harm us. Especially for kids and teens whom may not have much damage from Celiac Disease.

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ravenwoodglass    1,220
"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Desensitising the body to an allergy is one thing. Attempting to do the same with an autoimmune response may be another. I think you have to be very careful when tampering with the immune system.

I wish the Australian study every success and I'll pray for the volunteers. But I won't hold my breath.

My thoughts exactly.

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mommida    158

It doesn't say anything about the individuals in the trials even being genetically predisposed to Celiac.

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Tim-n-VA    0
"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Isn't that why the sentence says "could" instead of "will"? Or am I missing your point?

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Lisa    457
Isn't that why the sentence says "could" instead of "will"? Or am I missing your point?

Yes, in so much as it "could" do damage as well and that has yet to be determined.

http://celiac-disease.com/tag/celiac-vaccine/

"According to The Australian, it looks like this April 40 volunteers will be tested with the worlds first Celiac Disease vaccine. This trial will last a total of 11 months and attempt to determine if the vaccine does any harm."

As I already said, I wish this trial every success.

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Gemini    785
"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Desensitising the body to an allergy is one thing. Attempting to do the same with an autoimmune response may be another. I think you have to be very careful when tampering with the immune system.

I wish the Australian study every success and I'll pray for the volunteers. But I won't hold my breath.

I also totally agree with these statements, Momma Goose! Allergy is not the same as an intolerance. I used immunotherapy for my seasonal allergies and had great success with that but Celiac is entirely different. My immune system is wonky enough without introducing a vaccine which claims to allow people to eat whatever they want with no side effects. <_<

The second issue I have with this article is the attitude that Celiacs do not eat normally, as stated by that woman in the article. I have no idea what she eats but I certainly do eat a normal diet. It's a healthy, normal diet also....not the crap that I see people in the US eat on a daily basis. As for more variety, yup, I do that to. I guess it all depends on how much work you are willing to put into one of the most important aspects of a healthy life.....food. All restaurants have gluten-free options too. A piece of pan seared fish or steak plus a baked potato is gluten-free enough for me. Couple that with a good salad and eating gluten-free out is not as hard as some like to think. This disease is as easy or hard as you make it.

Doctors are looking for ways to make money off of Celiac Disease or it's treatment. If they ever do come up with something, whatever form that may take, all of a sudden people will be screened for the smallest amount of acid reflux and put on a pill for life. They will also be (my favorite medical term) monitored, ad nauseum, because this requires regular visits to a medical person. There is no money in celiac disease right now as it only requires adherence to a healthier diet. I'll take that over pills, questionable vaccines and surgery any day!

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Roda    186

My husband heard me listening to the news article and later asked me if it worked would I get it and eat what I used to. I told him that I would not go back to eating gluten even if I got a vaccine. If it is successfull, where I think it will be popular is with people that have celiac, but are in denial and don't want to change. I am thinking of my own brother, whom I suspect is celiac. He was dx with sarcoidosis in 1991, chronic rashes on his body, and gi issues. He has no desire to know if he has it or treat it. My other question is do you think if someone who has celiac , is not on a gluten free diet and has intestinal damage takes the vaccine and continues their gluten filled diet, I wonder if the intestinal damage would heal as well? I guess theoretically it should if they are stopping the autoimmune response. Just thinking out loud.

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amber    1
It doesn't say anything about the individuals in the trials even being genetically predisposed to Celiac.

The people in the trial are definately all celiacs and have to fit very strict criteria before they could be part of the trial.

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amber    1
I am wondering about those of us who have developed other sensitivities. If this vaccine contains eggs for example, how many Celiacs still won't be able to get the vaccine?

Can you imagine the vaccine adds telling how bad and life threatening Celiac and gluten sensitivity is to scare the general population into getting the vaccine? I'm sure there will not be a genetic pre-screening before getting the vaccine either.

It is not aimed at the general population at all but at diagnosed celiacs.

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amber    1

This trial is for Celiacs not for those with gluten intolerance. The purpose of the vaccine is to switch off the bodies immune response to gluten. It is in trial stages only but so far they have had some success and it looks promising.

There is no way that they will release a vaccine unless it has been tested to be 100% safe so it could take years.

Those involved in the trial such as Dr. Jason Tye who is the gastroenterologist in the video is one of the worlds leading experts in celiac disease. He would not be involved if he didn't think it was worthy of pursuing a vaccine such as this. Australia is at the forefront of celiac disease research.

I understand that some people would be reluctant to eat gluten again even if a vaccine was available.

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My take on this is that successful results that are easy to deploy are probably decades away. But think about it... if it became something that was part of all those childhood vaccines they give you, we never would have had to go through all the pain and trouble of gluten intolerance. It probably wouldn't help people who have already suffered through it and developed the antibodies.

I totally agree that eating healthier is something to be highly valued, as I have recently changed many things in my diet and seen the improvement. But I have a 10 year old brother who I think is starting to show signs of gluten intolerance. If he could avoid all the horrible things that have gone wrong in my life because of gluten (long before I knew about it or how to avoid it), I think that would make it worthwhile. Then he could spend his teenage and college years really learning how to be healthy, going to the gym, out with friends, learning good nutrition, etc, instead of how I spend mine, which was depressed, unhealthy, isolated. Maybe it is false hope, but I still hope there is a cure or treatment someday.

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mommida    158

My take on this would be to screen all children by the age of 5. Other countries do.

Why aren't we acting on the information we have (possibly 3 million Americans have Celiac undiagnosed) until there is a vaccine?

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amber    1
My take on this is that successful results that are easy to deploy are probably decades away. But think about it... if it became something that was part of all those childhood vaccines they give you, we never would have had to go through all the pain and trouble of gluten intolerance. It probably wouldn't help people who have already suffered through it and developed the antibodies.

I totally agree that eating healthier is something to be highly valued, as I have recently changed many things in my diet and seen the improvement. But I have a 10 year old brother who I think is starting to show signs of gluten intolerance. If he could avoid all the horrible things that have gone wrong in my life because of gluten (long before I knew about it or how to avoid it), I think that would make it worthwhile. Then he could spend his teenage and college years really learning how to be healthy, going to the gym, out with friends, learning good nutrition, etc, instead of how I spend mine, which was depressed, unhealthy, isolated. Maybe it is false hope, but I still hope there is a cure or treatment someday.

If all goes well with the trial the vaccine would still be about 5 years away. There are other people in other countries working on a vaccine also. It is being designed to help those who are in fact celiacs to 'switch off' their immune resposne to gluten. People do tend to eat a healthier diet on a gluten free diet but there is nothing stopping people from continuing healthy eating if a vaccine becomes available and they can eat products with gluten again.

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If you click on the link below you will go to a very interesting story from Australia which describes the celiac vaccine which is now being trialled. If you click on video you will be able to see the story which was screened during the news here.

http://www.abc.net.au/news/stories/2009/04/13/2541789.htm

I actually am Australian and have talked to one of the doctors involved in this process. i'll give you his youtube here, positibe news so far.

I am 22 I have 60yrs hopefully more left on this planet and I want a cure in my lifetime hopefully by like 25 :) The gluten youtube guy is here, nice bloke too

http://www.youtube.com/user/GlutenFreeHealthNet

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This trial is for Celiacs not for those with gluten intolerance. The purpose of the vaccine is to switch off the bodies immune response to gluten. It is in trial stages only but so far they have had some success and it looks promising.

There is no way that they will release a vaccine unless it has been tested to be 100% safe so it could take years.

Those involved in the trial such as Dr. Jason Tye who is the gastroenterologist in the video is one of the worlds leading experts in celiac disease. He would not be involved if he didn't think it was worthy of pursuing a vaccine such as this. Australia is at the forefront of celiac disease research.

I understand that some people would be reluctant to eat gluten again even if a vaccine was available.

I would be concerned with the body switching off the immune response without some research going into why the body is reacting negatively to the gluten. Are the related autoimmune problems related to the bodies immune response or is it related to the bodies inability to process gluten?

For example if the body is not digesting and breaking down the Gliadin protean, and it is falling back on the immune system to get rid of the extra protean. What happens when you switch that response off?

The may already know. In which case I hope that gets published along side the information on the Vaccine.

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Wombat    0

I was one of the volunteers in this trial for Nexvax2 vaccine. :D Have recently just finished the trials!

The great news is that with this vaccine given to me by injection, I had NO side affects what so ever.

I hope this is does work out as I would LOVE to get onto this medication and go back to a normal diet again!

:)

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Gemini    785
I was one of the volunteers in this trial for Nexvax2 vaccine. :D Have recently just finished the trials!

The great news is that with this vaccine given to me by injection, I had NO side affects what so ever.

I hope this is does work out as I would LOVE to get onto this medication and go back to a normal diet again!

:)

Geez, and I thought what I ate WAS a normal diet! :P

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