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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Writing A Book
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20 posts in this topic

Hey all

I am in the midst of writing a book. I am putting a chapter or 2 in the book of celiac experiences from numerous people. If anybody would like to add theirs just email me and let me know. I would like at least 5 more but could use more. Thanks everyone :D

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Hey, I think that's really cool, Katie...... ;)

After I get all the kids bathed and into bed tonight, I will try to stay awake to come down to the computer and write out my celiac story for you...... :P

Karen

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awesome I look forward to hearing it Karen :D

Also anyone who has any suggestions on things they would like to see in a book...as a reader what would catch your eye?

Thanks B)

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A Personal Touch On....Celiac has done a great job with their book on celiac disease. They used the format that you are speaking of.

-Jessica :rolleyes:

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Kaiti I think that a book is a wonderful idea. I have noticed many of your postings. You are a smart and beautiful young woman. Put you beautiful face on the cover, it will get attention. I'm glad you are going to spread the word about this hidden disease that doctors don't want to acknowledge because they can't get kickbacks from the drug companies. My doc threw a major fit :angry: and had a meltdown :angry: when I told him I was feeling better from enzymes. He called it <_< hocus pocus... I only stopped because of the cost factor.

I would share my story with you. Feel free to email me regarding what you are exactly looking for.

I noticed you have just been diagnosed with Graves Disease this March. I'm so sorry! I also have a serious thyroid problem too. Are you on thyroid medication? I'm having a hard time with it finding a balance in my system...

I wish you the very best with your quest and if I can help in anyway (I can design you a web site) or etc., please feel free to contact me. :)

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Thank you everyone who has offered to help :D If you still want yours in it let me know I have a little bit of room for the stories left.

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Hey Kaiti,

I am halfway through writing out my celiac journey. Do you still want me to send it? It would probably be tomorrow.......

Let me know!

Karen

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Karen

Yes most definitely. I am going to be trying to collect stories for another week or two. Thanks :D

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I've been writing articles for my local health food co op for over a year now, and a lot of people keep telling me that I should write a book. I'd love to, but I don't really have that much time to devote to that! Have you thought about having a co-writer or something to that effect??? Just a thought! :D:D:D

Anyway, Since I've already got these articles written (and there is nothing saying I can't use them in a book) would you be interested in seeing what I've got so far? I don't know if you'd want to use it in your endeavor, or if you have any suggestions for a direction that I might go with it. Feel free to pm me or e-mail me at nisla@comcast.net

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Also anyone who has any suggestions on things they would like to see in a book...

Any of the common questions that get asked. An appendix with safe/forbidden foods.... what tests to tell the doctor about.... maybe a few recipes for bread, pizza dough, cookies, and the more common "but I can't give that up!!!" foods. Would be good to mention the gluten-friendly food companies, but that could become outdated pretty quickly.

You could also see if any of the gluten-free food companies would give you coupons to put in the book, or with the book.

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Would be good to mention the gluten-friendly food companies, but that could become outdated pretty quickly.

That was one thing I was wondering about...I think I am going to put them in it and say this is correct to my knowledge but companies change their policies frequently and I will put the #'s by the company name as well.

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You should have a list of some of the symptoms and how to get tested if you think that you might have the disease, and also a FAQ section because people have a lot of questions, and I know that you can't answer all of them in a book, but thebasic questions are the most helpful.

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Yeah I have sections on symptoms, complications of ignoring the diet, cross contamination, a section for people with friends and loved ones with it, how to get tested& the diagnosis process,treatment-gluten free diet, personal experiences with celiac, and some other sections with manufacturers numbers and so forth. Thanks for the suggestion...helps to know what people want to read. :D

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Thanks Monica :D

I'll take a look at it...I can't use them unless I am given permission by them though.

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Because the gluten-friendly food companies will probably outdate pretty soon, you could also list the companies on a website and put the website adress in the book. It's easier to update a list on the internet, than in the book all the time. So the list would be more like an add to the book.

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Hi Kaiti, glad to hear you are writing a book!! Us newbies need all the info we can get our hands on at first. I have been gluten-free for a little over a month now and it is difficult. There needs to be a chapter about how to cope and grieving over foods and restaurants that are missed like Pizza Hut, Olive Garden, etc.... I used to love to eat and as the saying goes "Live to Eat, eat to live". I now have to learn to eat to live. Healthy!! I am still at that stage that I think a lot has been taken from me, until I get used to how all the new breads and everything taste.

Also, a little note that people could copy off to keep in their wallet/purse that really tells what and how important Celiac and the Celaic diet is so that we can give it to restaurant people, friends, relatives, etc. When I go to a restaurant it would be nice to have a little card (the restaurant card I have doesn't explain it) to hand to the waiter so you don't have to explain it to them, they get someone else out, you explain it to them. They could just take it back and all read it then know what to do. Does that make any sense. I tell people about Celiac and they think if I just don't eat bread, pizza, pasta all is well. WRONG!!!

Good Luck!!

Fonda

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Thanks Kaiti!!

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Your welcome :D and I know what you mean about people thinking if you just avoid bread then your ok..they don't realize the extent of what gluten is in...celiac has been getting more notice though so that is at least good.

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