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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free Trial
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10 posts in this topic

Ok I am on a gluten free trial to see if this is my issue or not. I started on Saturday. Anyone know how long I need to be off of gluten before I try to eat it again & see if I get sick. My issue is that I haven't been sick in a couple months (my sickness goes off & on) so I really can't tell a difference since I've been gluten free because I wasn't sick already. My plan was to go off of gluten completely for about a month & then eat gluten again & see if it made me sick. Does anyone know if a month is a good amount of time or should I do less or more?

Any advise on a gluten free trial would be helpful!

Thanks!

Tara

ps I'm starving all of the time now.

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Ok I am on a gluten free trial to see if this is my issue or not. I started on Saturday. Anyone know how long I need to be off of gluten before I try to eat it again & see if I get sick. My issue is that I haven't been sick in a couple months (my sickness goes off & on) so I really can't tell a difference since I've been gluten free because I wasn't sick already. My plan was to go off of gluten completely for about a month & then eat gluten again & see if it made me sick. Does anyone know if a month is a good amount of time or should I do less or more?

Any advise on a gluten free trial would be helpful!

Thanks!

Tara

ps I'm starving all of the time now.

I noticed a difference practically immediately, but everybody's different. I'm silent celiac; I have very limited digestive effects but the emotional/intellectual/neurological stuff (due to B12 depletion) was very obvious. I'd guess that if you don't see an effect after two weeks (other than being starving all the time), you might want to try something else, or at least a different approach. For instance, the next time you're feeling ill, keep a food diary and try eliminating as many common allergens as you can. Or visit an allergist.

Also, they say that the time it takes the gluten free diet to be effective depends on how old you are. Then again, I was 45 when I started, and as I said, I noticed the difference almost immediately. Hopefully you'll hear from other people sharing their experiences.

Regardless, good luck to you!

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Why not get testing done before putting yourself through a trial? Plus no one should be starving on a gluten-free diet. That statement makes me think you do not understand gluten-free.

I'm a believer that gluten can not be digested by any human but there are other issues that may be your problem . I think you should investigate through a medical check-up, bloodwork, endo, DNA . If you are gluten-free first & then decide to do testing the results will not be accurate......

Don't put the cart before the donkey....please see a doctor.The gluten free diet is not a fad diet.....it is a lifestyle for thousands.

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Why not get testing done before putting yourself through a trial? Plus no one should be starving on a gluten-free diet. That statement makes me think you do not understand gluten-free.

I'm a believer that gluten can not be digested by any human but there are other issues that may be your problem . I think you should investigate through a medical check-up, bloodwork, endo, DNA . If you are gluten-free first & then decide to do testing the results will not be accurate......

Don't put the cart before the donkey....please see a doctor.The gluten free diet is not a fad diet.....it is a lifestyle for thousands.

Screw doctors, bloodwork, and test. I went my whole life getting that stuff done with no answers, then someone convinced me to try the diet and before I knew it my life of pain and misery turned around. All my pain vanished, my body started bulking up muscle, my vision got clearer, my thinking was clearer, and my receding gumline started reversing the process.

I agree you shouldn't be starving on the diet, but I don't think you need to wait for some doctors "permission" to try the diet. I'm sure as hell glad I didn't wait. If you start the diet and feel more hungry the more you eat, then eat more, seriously. My first month I ate every two hours, I figured it was my body finally getting nutrients and wanting to store them up again. Listen to your body carefully, it will try to tell you what it needs.

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Ok first of all I have had the celiac panel done & it came back normal. My doctor is trying to write it off as IBS & I won't accept that as a diagnosis. I have had issues for 5 years now & had just about every test possible & they don't know what the issue is. That is why I'm trying a gluten free diet.

As far as being hungry all the time, I am eating regular meals but I'm still hungry.

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Okay so you have had testing completed. That was not stated in the first post. I do agree that doctors are not up on celiac or gluten intolerance. But now days people thinks this is a fad diet & it truly is not. We old timers must defend why or the reason for being gluten-free.There is a reason why we are so strict.

In your first post you also stated that you get sick on & off not all the time. Were you eating gluten on both sick & non sick days? Most always a person who has celiac has issues everyday they are eating wheat. gluten intolerant comes with a wide range of issues besides intestinal issues. There are more intolerant in the world than true intestinal damaged celiac. SOme celiac do not present with any symptoms, they find out the hard way. After a scope or have a cancer.

Anyone can do this diet. It has helped kids with autism, MS patients, psorisis patients, ADHD people & so on. ANd I agree most doctors don't know enough to investigate this illness. but again if something else is going on instead of this wouldn't you want to know? I know a person who all testing was negative but they went gluten-free anyway. Had good results but after a while they ended up having a disease that was not this & treatment ended up being to late because after starting this gluten-free they felt better for a good while& figured this was the answer but it wasn't. Other disease mimic celiac or gluten intolerance is all I'm saying.

I was dx'd with a life threating disease that I should have been long gone by now. I was given a death sentence but thankfully after much more searching & fighting constantly with doctors I found celiac was my answer. A better disease to have rather than Lou Gerhig's. It took a long time coming & doctors still tell me I have Als. doctors are not one of my favorite persons either.

AS I said I think no human can digest wheat.......

Once your body starts getting nutrients you should actually be getting filled up more, not less.

blessings

mamaw

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Thank you for all your advise. Like I said before, they have done about every test imaginable over the last 5 years & no results. This is my last resort as my doctor isn't really don't much of anything else. Plus my health insurance skyrocketed June 1st so I'm not able to afford to see the doctor anymore or have anymore tests done so I'm doing this on my own now.

My real question is, how long should I try this gluten free diet before trying to go back on regular food? I had planned on going gluten free for a month & then eat normal & see if I get sick.

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I guess the rule of thumb is 3 to 6 months . I think that would give you a good overview. My hubby did three months & felt awful after going back on gluten foods. BUt he has no symptoms as far as testing goes. He does know he is not so sluggish when being gluten-free.

Also watch for hidden gluten such as products containing malt & soy sauce. LaChoy & Wal-Mart brands are gluten-free

good luck

mamaw

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Just thought I'd throw in a few other things that can make you hungry........

corn syrup

artificial sweeteners

diet to high in carbs

diet to low in protein

not enough fluids

msg

some prescription meds

not enough sleep

to much sleep

lack of exercise

to little sunshine

This could be a long list! The artificial sweeteners are a big one for me.

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i was great after about 2 weeks, by then i could really see a difference

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