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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Treatments-ala- Alpha Lipoic Acid
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10 posts in this topic

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Candy    0

I learned of this autoimmune disease cure from Dr. Mercola's website and I sware I felt sorta normal again and I desired and ate a wheat bagel and wheat noodles;and felt OK afterwards too.

Do you think the Alpha Lipoic Acid reversed my Autoimmune Celiac Disease-I hope it does!

You gotta try some ALA !!!!!!!!!!!

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Candy    0

And don't forget the Hydrangea Root as well as the Alpha Lipoic Acid as they both are said to reverse Autoimmune diseases.

WOW! I hope these alternative treatments work !!!! Oh WOW!!

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tarnalberry    314

I'm guessing that they don't actually change the expression of your genes (they don't deactivate the genes, that is), so... no, they're not going to "cure* the autoimmune condition. Your body is still going to recognize wheat as a foreign substance. Whether it is actually reducing expression of that gene, reducing reactivity of the produced immune molecules with gluten, reducing the rate at which the product of that reaction can damage the intestines, or is just masking symptoms... who knows? I'm no GI, but I would not rely on this to allow you to eat wheat and expect to not get any internal damage.

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FMcGee    1

I actually just had a doctor on the phone, and her response was, "Yeah, right." She's someone who's pretty open to natural remedies and definitely open to new ideas, and she said that you can actually hurt yourself a lot with this stuff, aside from the possibility that it's just masking the symptoms of the disease and you're still getting intestinal damage. It isn't safe to use this stuff, and not because it's "non-Western" medicine, but because the long-term, big study, double-blind research isn't there. So, you know. Just a couple more cents. Also, there is absolutely no way to change your genes, so you still have celiac disease, there's no cure. Even if someone comes up with the perfect vaccine, it won't cure the disease, it will just minimize the damage from gluten exposure.

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Darn210    174

Candy,

I'm worried about the message that you are sending out. Newly diagnosed Celiacs may think that the gluten free diet is optional if they try some of these remedies that you have posted about. I know you've been at this a couple of years and I think you are still in denial that this is a life long committment.

Looking at your past topics, you seem to be looking for a quick cure. About three years ago, you thought you were cured because you were eating gluten products and not getting sick. Obviously, somewhere along the line, you started having symptoms again.

You were also looking for the gluten digestion enzyme so that you could eat gluten . . . this may help someone who is gluten intolerant but would be dangerous for a Celiac.

You were looking at trying Einkorn (an ancient form of wheat) . . . and wheat grass.

Now you are promoting the hydrangea root and ALA and once again eating gluten products. How do you know that you are just experiencing what happened the first time around?? That you are able to ingest gluten for awhile and then your system is going to start reacting again.

I suggest that you put your effort into finding safe good-tasting gluten-free foods.

Celiac disease requires a gluten free diet. Anything else at this point in time is speculative, experimental and dangerous in my opinion.

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tarnalberry    314

apparently, some very initial study on hydrangea root has been done in the scientific community. (same for ALA)

http://www.medicalnewstoday.com/articles/152822.php

BUT, this isn't saying that it stops the immune system from attacking itself, it's saying that it reduces the inflammation caused by the auto-immune response. A gluten free diet is the only CURE for celiac disease (and, celiac disease the only auto-immune condition with a 'CURE'). So, less damage? Perhaps. No damage? No long term consequences? There is no reason to believe that based on evidence so far.

(ALA is just a very strong anti-oxidant, which also affects glucose intake by the cells. It doesn't have the immune specificity that the study linked above suggests for auto-immune conditions. It'd be interesting to see if there will ever be more research on this...)

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mamaw    133

Lets face it the only real fix is the gluten-free lifestyle for life....I think we all wish there was a real fix but as time rolls on we know the gluten-free diet is the only fix.I think that may be a hard choice to swallow for some...

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FMcGee    1
Lets face it the only real fix is the gluten-free lifestyle for life....I think we all wish there was a real fix but as time rolls on we know the gluten-free diet is the only fix.I think that may be a hard choice to swallow for some...

I completely agree, and don't think this is limited to people with celiac disease. Look how many "quick fix" diet plans are out there, and every year there's a new pill that promises to actually work this time, you guys, no really, we mean it now. They never work. The only way to really be healthy is to eat a balanced diet and exercise. Some people are naturally thin, and some people lose weight (temporarily) on fad diets, but they're not actually doing themselves any favors in the long run by neglecting their eating and exercise habits and not learning how to really nourish their bodies. It's the same phenomenon. Our bodies can be very frustrating sometimes, especially if we're essentially forced into a gluten-free diet or feel like we can't win the battle against extra weight. The first thing to do to be successful in gluten-free living or weight loss is to realize that it's hard, and that in both cases, it's as much a psychological/emotional game as a physical one. Just as most people feel better at a healthy weight, most people with celiac feel better if they're not eating gluten. That doesn't mean some people can't accept that and try every quick fix on the market.

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ravenwoodglass    1,214

Trying what your trying is dangerous as many have pointed out. You have been gluten free for a while and after someone heals it can take time for the GI symptoms to return. That is why doctors used to think children outgrew celiac, they now know that is not the case. Meanwhile you are reactivating the antibodies and they can choose any organ to impact that they want. You are risking your liver, gallbladder, thyroid, your ability to get pregnant and carry a baby to term, and even your brain. I know it can be tough to stick with the diet but the choices of gluten free items available grows every day. I do hope you will stop risking your health and looking for the 'magic pill' that will somehow change your genetic makeup so that you are no longer celiac.

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Alan7    0

One the one hand I believe there will be a cure for Celiac one day.  At one time in the past there was Polio, but a cure was found.   I heard on television that due to climate changes, some crops will disappear within the next 20 years.  Wheat was one of them  Once wheat is gone, we will not have to avoid wheat anymore.

At one time Celiac was extremely rare.  Maybe it was due to having a simpler form of wheat,  also, the way bread was made with a sourdough starter made it less toxic. 

Aside from gluten, there are other toxic proteins in modern wheat.  About a month ago I read that at a University in Germany, researches discovered that the ALI proteins also cause inflammation.  These proteins are the Alpha Amalayse Inhibitors, a pestiside naturally occurring in wheat.  They believe that these proteins trigger certain types of antibodies which brings on non-celiac gluten sensitivity.  These are different antibodies than what people with Celiac have.

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